Huntington's Disease Client as Activity Leader

Abstract

Huntington's Disease (HD) is an inherited degenerative disorder involving neuropsychiatric symptoms (i.e., chorea, slurred speech, mood swings, irritability, attention/short-term memory loss, motor clumsiness). The trajectory of HD has been researched; however, little is known about the clinical needs of HD in long-term care. Staff of the Myers Research Institute developed an activity training program for a resident with HD with a willingness to learn and participate in a meaningful activity. Mastering and facilitating computer-based activities decreased depression/apathy and impatience, and improved, or prevented, atrophy of ADL skills of the resident. The intervention increased self-confidence and, furthermore, encouraged independent ambulation and socialization.

Key Words:

• Huntington's disease
• long-term care
• meaningful social roles
• activities
• plan of care