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Original Articles

Evaluating a Volunteer Cancer Support Service

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Pages 53-72 | Accepted 03 Apr 2002, Published online: 24 Oct 2008
 

Abstract

Hope and Cope, a voluntary self-help organization for cancer patients and their families, was evaluated as part of a randomized controlled clinical trial of newly diagnosed patients with breast or colon cancer. Measures of psychosocial distress, functional well-being, and optimism were evaluated four months after diagnosis (Time 1) and eight months later (Time 2). There were differences between the users and nonusers at Time 1: Users of Hope and Cope had greater needs but became more satisfied regarding resolution of their needs at Time 2 than did nonparticipants. The outcome of physical well-being was significantly better for those who took part in Hope and Cope. Participants of voluntary support organizations appear to make appropriate choices on the basis of their needs. Issues of patients' preference have not been given sufficient attention in psychosocial oncology research and may influence the results of such studies.

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