Advocacy Needs of Adolescent and Young Adult Cancer Survivors

Abstract

A limited literature on the experiences of late adolescent and young adult survivors of cancer identifies psychosocial issues and needs that are unique to this population. Although the advocacy needs of adult cancer survivors have been addressed increasingly in both the psychooncology literature and in educational programs, the advocacy needs of adolescent and young adult survivors have not. This article reports the findings of an exploratory study conducted with pediatric oncology social workers who are frequently asked to assist survivors and their families with the psychosocial issues related to cancer. The quantitative and qualitative data collected through surveys and a focus group support the findings of previous studies that this population faces unique concerns related to surviving cancer based on the developmental stage at which cancer occurs. The study participants also identified the advocacy training needs of this population and made recommendations for interventions to build on survivors' strengths and empower them as they adapt to the roles, responsibilities, and challenges of adulthood.

Key Words:

• Advocacy
• adolescent
• young adult
• cancer survivor