The Dignity of Struggle

Abstract

The theme of this article focuses on the survivors’ ability to participate in life as fully as they choose and the way in which individuals in those persons’ lives can support this objective. A description of how the adult onset of communication disorders can affect self-image and self-identity is provided. Persons with aphasia are encouraged to consider various issues: What do individuals have control over at each level of their recovery versus what choices are made for them? What communicative power do individuals have and what environmental barriers are at play? Variables that define dignity along each stage of recovery are outlined. This thematic impression is supported by my recent experience with my mother who suffered a stroke with aphasia. It can be a challenge to translate the philosophical basis for professional work into a personal relationship. However, many lessons about dignity and empathy are gleaned from the experience.

Keywords:

• aphasia
• life participation
• Triangle Aphasia Project