The Danish Hip Arthroscopy Registry: Registration Completeness and Patient Characteristics Between Responders and Non-Responders

Abstract

Purpose

To report completeness of registered surgeries in the Danish hip arthroscopy registry (DHAR) and proportion of patients completing patient-reported outcome measures (PROMs) prior to surgery and at 1-year follow-up.

Patients and Methods

Completeness was determined as the number of surgeries registered in DHAR in comparison with the number of surgeries registered in the Danish National Patient Registry database (DNPR). The number of patients self-reporting pre-surgical PROMs was compared to the total number of surgeries registered in DHAR. Further, we evaluated potential differences in baseline characteristics between the groups of responders and non-responders at 1-year follow-up. Patient characteristics included age, sex, activity levels measured by the hip sports activity scale (HSAS), and PROMs (Copenhagen Hip and Groin Outcome Score, EQ-5D-3L and general hip status). Age was stratified in three groups (<25, 25–39, ≥40).

Results

From February 2012 to September 2018, 5565 arthroscopic hip surgeries were registered in DNPR, and 4937 were registered in DHAR (89%). The yearly rate of registrations in DHAR compared to DNPR increased from 77% in 2012 to 85% in 2018 and peaking in 2015 at 94%. A total of 3294 DHAR-registered patients (67%) had self-reported their pre-surgical outcome scores, and of those, 2886 (58%) completed PROMs at 1-year follow-up. More males (45 vs 41%, p = 0.002) and individuals younger than 25 years of age (24% vs 18%, p<0.001) had not completed follow-up questionnaire. The PROM baseline scores of the responders at follow-up did not differ from the non-responders.

Conclusion

The proportion of arthroscopic hip surgeries registered in the Danish Hip Arthroscopy Registry and the proportion of self-reporting PROM scores have increased to acceptable levels, whereas the proportion of patients with follow-up data is comparably low. For further quality improvement, more attention should be given to patients completing PROMs, focusing on younger males and follow-up PROMs.

Keywords:

• database
• hip arthroscopic surgery
• epidemiology
• data quality
• Denmark

Abbreviations

DHAR, Danish hip arthroscopy registry; DNPR, Danish national patient registry; PROM, patient-reported outcome measures; HSAS, hip sports activity scale; HAGOS, The Copenhagen hip and groin outcome score; VAS, visual analogue scale; EQ-5D-3L, European health-related quality of life questionnaire using five dimensions and recording 3 levels of severity; NAHR, non-arthroplasty hip registry.

Ethics Approval and Informed Consent

Prior to entering information into DHAR, patients give written consent to the use of data for research purposes. This project is approved by the National Board of Health and the Danish Data Protection Agency, journal number 2015-41-4278.

Author Contributions

All authors contributed to data analysis, drafting or revising the article, have agreed on the journal to which the article will be submitted, gave final approval of the version to be published, and agree to be accountable for all aspects of the work.

Disclosure

BL is the administrator and part of the steering committee of the Danish Hip Arthroscopy Registry. ER is the deputy editor of Osteoarthritis and Cartilage, the developer of Knee injury and Osteoarthritis Outcome Score (KOOS) and several other freely available patient-reported outcome measures and founder of the Good Life with Osteoarthritis in Denmark (GLA:D), a not-for-profit initiative to implement clinical guidelines in primary care. The authors report no other conflicts of interest in this work.

Additional information

Funding

The study was funded by IMK Almene Fond.