The Danish Lung Cancer Registry

Abstract

Aim of database

The Danish Lung Cancer Registry (DLCR) was established by the Danish Lung Cancer Group. The primary and first goal of the DLCR was to improve survival and the overall clinical management of Danish lung cancer patients.

Study population

All Danish primary lung cancer patients since 2000 are included into the registry and the database today contains information on more than 50,000 cases of lung cancer.

Main variables

The database contains information on patient characteristics such as age, sex, diagnostic procedures, histology, tumor stage, lung function, performance, comorbidities, type of surgery, and/or oncological treatment and complications. Since November 2013, DLCR data on Patient -Reported Outcome Measures is also included.

Descriptive data

Results are primarily reported as quality indicators, which are published online monthly, and in an annual report where the results are commented for local, regional, and national audits. Indicator results are supported by descriptive reports with details on diagnostics and treatment.

Conclusion

DLCR has since its creation been used to improve the quality of treatment of lung cancer in Denmark and it is increasingly used as a source for research regarding lung cancer in Denmark and in comparisons with other countries.

Keywords:

• lung cancer
• histology
• tumor stage
• lung function
• performance
• comorbidities
• diagnostic procedures
• type of surgery
• oncological treatment
• treatment complications

Acknowledgments

DLCR is managed in close collaboration with Competence Centre South for National Clinical Databases at Odense University Hospital. This article is part of the Thematic Series Clinical Databases in Denmark initiated by the Program for Clinical Research Infrastructure (PROCRIN).

Disclosure

The authors report no conflicts of interest in this work.