Sick and solo: a qualitative study on the life experiences of people living with HIV in Somalia

Abstract

Background

HIV stigma and the resultant fear of being identified as HIV-positive can compromise the effectiveness of HIV programs by undermining early diagnosis and antiretroviral treatment initiation and adherence of people living with HIV (PLHIV). In the wake of the longstanding conflict in the country, little is known about the life experiences of PLHIV in Somalia.

Methods

A qualitative study using unstructured interviews was conducted in Somalia from September to December 2017. A convenience sampling approach was used to recruit 13 participants, including 10 persons who live with HIV and three senior officials who work for the HIV program at the Ministry of Health. Data were analyzed using a thematic analysis.

Results

Our findings show that PLHIV are alienated and prefer to isolate themselves due to widespread stigma subjected to them by their family members, society, employers, and health providers, which continue to undermine the scale-up of testing and treatment of PLHIV in Somalia. Consequently, they are reluctant to seek voluntary diagnosis and treatment of HIV. They often come to know about their status when their partners are found HIV positive, they are tested for other clinical purposes, or when an individual’s health deteriorates, and all other means fail to work in improving his/her situation. The study also pointed out a shortage of facilities that provide HIV diagnosis, counseling and treatment in Somalia.

Conclusion

Addressing stigma and discrimination subjected to PLHIV are critical to a successful HIV response in Somalia. To successfully address stigma, HIV programs need evidence on effective interventions at individual, community, and societal levels in order to strategically incorporate stigma and discrimination reduction into national HIV programs.

Keywords:

• HIV stigma
• PLHIV
• discrimination
• Somalia

Acknowledgments

The authors acknowledge the help they received from the ARV clinics staff and Network Organization for HIV/AIDS patients, Somalia, in conducting this study. This work was supported by the School of Public Health and Research, Somali National University. The abstract of this paper was presented at the 2nd International Conference on Sexually Transmitted Diseases, Infections and AIDS as an abstract presentation with interim findings. The abstract was published at www.pulsus.com, and it can be accessed at: https://std.cme-society.com/2018/abstract/sick-and-solo-a-qualitative-study-on-lived-experience-of-living-with-hiv-aids-in-somalia.

Disclosure

The authors report no conflicts of interest in this work.