A Qualitative Study of Perception and Experience Toward End-of-Life Care Among Nursing Students Who Witnessed Dying People in Their Family

Abstract

Introduction

This study aims to explore nursing students’ perception and experience of end-of-life care (EoLC) in Indonesia, particularly in the family environment.

Methods

This study used a qualitative research design to explore the experiences and perceptions of nursing students who have witnessed the dying of their family members. The study recruited 15 nursing students using a purposive sampling method, who were then invited to reflect and write their experiences in witnessing death of their families, and perceptions towards EoLC. The written reflections were analyzed using thematic analysis.

Results

Thematic analysis showed that the experience of witnessing dying of a family member shaped nursing students’ perceptions and attitudes towards EoLC. Some themes that emerged in this study included the importance of effective communication with patients and their families, symptom management, spiritual, emotional, and social support, as well as the need to improve nursing education and training.

Conclusion

This present study shows that the experience of witnessing the death of a family member shapes nursing students’ perceptions of EoLC in Indonesia. This present study provides recommendations that the students must be prepared emotionally and psychologically in caring EoL or dying patients. How attitude and readiness to care EoL patients are shaped by the experience in witnessing the dying family or loved one. As such, palliative and EoL curriculum should be included methods that allow desensitization and naturalization of dying for the students in order to make them ready to provide better EoLC for patients and their families. The results of this study can contribute to improving the quality of EoLC in Indonesia.

Keywords:

• end-of-life care
• death
• family
• nursing student
• spiritual care

Acknowledgment

This study was supported by the Hibah Inovasi Pembelajaran Daring (HIPDU) from Universitas Padjadjaran with funding number 2042/UN6.RKT/Kep/HK/2021 and the APC funding from the Directorate for Research and Community Engagement, Universitas Padjadjaran.

Disclosure

The authors report no conflicts of interest in this work.