Declaration of interest: The authors report no conflicts of interest. The authors alone are responsible for the content and writing of the paper.
Henriette Farkas has received consultancy/speaker fees and honoraria from Shire Human Genetic Therapies Inc., Pharming, Viropharma and CSL Behring. Dorottya Csuka has received a travel grant from Viropharma and Lilian Varga has received travel grants from CSL Behring and Shire Human Genetic Therapies Inc.