The experience of discharge for patients with an acquired brain injury from the inpatient to the community setting: A qualitative review

Abstract

Background: Discharge planning for patients with an acquired brain injury (ABI) is considered best practice for assisting the patient and caregiver to successfully transition from hospital to home and is complex because of the long-term care and support needs of the patient. This review aimed to describe and synthesize the perspectives of patients with ABI and their family/caregivers on the transition from hospital to home to better understand opportunities to optimize the process.

Methods: Electronic medical databases (n = 5) and grey literature published between January–May 2015 were searched to identify qualitative studies on the experience of transition from the hospital to home setting following ABI. Relevant studies were appraised and narratively synthesized.

Results: Nine eligible studies that met the inclusion criteria were identified. Two major themes were identified—Engagement and Support. Three underlying sub-themes—poor communication, limited participation and disorganized arrangements for support services—were identified as key contributors to an unsatisfactory experience for patients and their family/caregivers.

Conclusion: The transition for patients with an ABI and their family/caregivers was characterized as fragmented and unsatisfactory for supporting a successful return home. This review highlights the importance of tailored education and involvement of the patient and their family/caregiver to increase readiness for returning home and reduce unplanned re-admissions.

Keywords:

• Acquired brain injury
• discharge
• perspectives
• planning
• qualitative review

Acknowledgements

The authors gratefully acknowledge the contribution of all participants in the focus group that informed this article.

Declaration of interest

The authors report no conflicts of interest. The authors alone are responsible for the content and writing of the paper.