Self-reported quality of life after skin cancer in young adults

Abstract

Introduction: Skin cancer incidence is increasing in younger adults. Patient satisfaction and quality of life surveys are limited, and more information is needed on the unique perspectives of these younger patients who may be affected differently. We sought to explore how skin cancer has affected quality of life in younger adults.

Methods: A self-reported questionnaire was administered to patients with skin cancer aged 20–50 years diagnosed from 2007 to 2008. Quality of life was measured using the Skin Cancer Index (SCI) and Skindex-16 with a transformed scale. Descriptive statistics with standard deviations were calculated.

Results: One-hundred sixty-one patients were identified; 62 completed surveys (38.5%), with 47 patients eligible for inclusion. Forty participants (85%) reported having made lifestyle changes since being diagnosed with non-melanoma skin cancers, most commonly habitual use of sunscreen (n = 34; 77.3%). Quality of life was most impacted by worries about their skin cancer (Skindex-16 score 24.5 (34.4 standard deviation)), including their future risk of developing further cancers (58.5 (31.8)).

Limitations: Limitations include small sample size and possible response bias.

Conclusions: There is a modest impact on quality of life in young patients with skin cancer based on the Skindex-16 and SCI. Young skin cancer survivors may benefit from patient counseling, which addresses risk assessment and future risk reduction.

• Basal cell carcinoma
• quality of life
• squamous cell carcinoma

Acknowledgements

The authors would like to acknowledge Gwen Alexander, PhD, for her guidance with participant recruitment.

Declaration of interest

Authors have no financial disclosures.

This study was funded by the Department of Dermatology, Henry Ford Hospital.