Experiences of using mobile phones in everyday life among persons with stroke and their families in Uganda – a qualitative study

Abstract

Aim The aim of this study was to describe the experiences and meaning of using mobile phones in everyday life after stroke, among persons with stroke and their family members. Methods Qualitative semi-structured interviews were conducted among 11 persons with stroke and 9 family members 2 months to 2 years after the stroke. The interviews were analysed by using constant comparative grounded theory (GT) approach. Results Seven categories were identified from the analysis of the participants’ experiences. The mobile phone: (1) as an enabler of communication and connections with other people, (2) a source of inspiration for agency, (3) structuring routine and activities in daily life, (4) as a facilitator of social and economic wellbeing of an individual or family, (5) promoter of belonging and participation in social relationships, (6) facilitator of reintegration to community living and (7) enabler of family members to feel secure. From these categories, a core category emerged: The mobile phone as a “life line” and an extension of the body enabling connection, belonging and agency to act in a complex everyday life situation. Conclusion The study gives support for the possibility of using mobile phones to facilitate change and community integration in the rehabilitation process after stroke.

Implications for Rehabilitation

• Stroke leads to decreased functioning in everyday life due to impairments, activity limitations and participation restrictions as well caregiver burden.

• Mobile phones seem to be an accessible and affordable technology used in daily life of persons with stroke and family members and connects them to the needed services and social relationships.

• The mobile phone technology reduces resource and infrastructural challenges and increases accessibility to rehabilitation interventions.

• The mobile phone was an important instrument that facilitated the quality of life of persons with stroke and their family members and could increase their participation in rehabilitation interventions.

Keywords:

• ICT
• occupational therapy
• stroke
• tele-rehabilitation

Acknowledgments

We thank the participants with stroke and their family members for participating in this study. The financial support for this study was provided by the Swedish Research Council, Developmental Research [grant number 2014-28-63].

Disclosure statement

The authors report no conflicts of interest. The authors alone are responsible for the content and writing of the article.