Engaging with National Disability Insurance Scheme Planning: perspectives of parents of an adult with intellectual disability

ABSTRACT

Background: This article reports research about the experiences of families with an adult child with intellectual disability as they engaged in the NDIS planning processes in Australia.

Method: Parents of 19 adults with intellectual disability responded to a number of closed and Likert-type items and provided comments. Responses are reported using frequencies with parental comments used to exemplify their views.

Results: The analysis generated insights that included positive perceptions about the availability of National Disability Insurance Scheme (NDIS) information; increased choice and control of participants; some concerns about the implementation of plans; and the lack of inclusion of the adult with intellectual disability in the process.

Conclusions: The sample may not be broadly generalisable; however, some aspects of the NDIS planning and implementation process require addressing.

KEYWORDS:

• NDIS
• families
• parents
• adults with intellectual disability
• planning

Disclosure statement

No potential conflict of interest was reported by the authors.

Additional information

Funding

This study was supported by an Australian Postgraduate Award. Ethics approval was granted by the University of Queensland Human Research Ethics Committee -Clearance number 2018000042.