Activity of the Alpha-1 Antitrypsin Deficiency Registry in Belgium

Jacques HutsebautHôpitaux Iris Sud, Département de Médecine Interne, Service de Pneumologie, Brussels, BelgiumCorrespondence[email protected]

Wim JanssensKatholieke Universiteit Leuven, University Hospital Leuven, Department of Respiratory Diseases, Leuven, Belgium

Renaud LouisCentre Hospitalier Universitaire du Sart-Tilman, Department of Pulmonology, Liège, Belgium

Frank WillersinnAlpha- Plus asbl/vzw, Brussels

Xavier StephenneCliniques Universitaires Saint Luc, Département de Pédiatrie, Service de Gastro-entérologie et Hépatologie Pédiatrique, Brussels, Belgium

Etienne SokalCliniques Universitaires Saint Luc, Département de Pédiatrie, Service de Gastro-entérologie et Hépatologie Pédiatrique, Brussels, Belgium

Eric DeromUniversiteit Gent, Ghent University Hospital, Department of Pulmonology, Ghent, Belgium

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Abstract

A Belgian alpha-1-antitrypsin (AAT) deficiency registry has been established in 2003. Currently 55 patients are included. At the same time, a working group has been set up for publishing national guidelines. In 2014, several Belgian patients founded Alpha-1 Global. We hope that the integrated activities of all the stakeholders involved in AAT deficiency will permit a high quality care for all patients suffering from this disabling disease.

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Activity of the Alpha-1 Antitrypsin Deficiency Registry in Belgium

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Activity of the Alpha-1 Antitrypsin Deficiency Registry in Belgium

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