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Reproductive Health Matters
An international journal on sexual and reproductive health and rights
Volume 22, 2014 - Issue 44: Using the law and the courts
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Original Articles

Termination of pregnancy for fetal abnormality: a meta-ethnography of women’s experiences

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Read on this site (8)

M. J. Hendriks & A. Abraham. (2022) Perinatal loss and parental loneliness: Narratives of late termination of pregnancy. Death Studies 46:6, pages 1490-1500.
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Saskia Hendriks, Christine Grady, David Wasserman, David Wendler, Diana W. Bianchi & Benjamin Berkman. (2022) A New Ethical Framework for Assessing the Unique Challenges of Fetal Therapy Trials: Response to Commentaries. The American Journal of Bioethics 22:3, pages W1-W3.
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Ronit D. Leichtentritt & Galia Weinberg Kurnik. (2020) Bereaved parents’ unwillingness to participate in a joint research interview: The case of feticide. Health Care for Women International 41:4, pages 412-444.
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Susanne Georgsson, Stina Krautmeyer, Emilia Sundqvist & Tommy Carlsson. (2019) Abortion-related worries, fears and preparedness: a Swedish Web-based exploratory and retrospective qualitative study. The European Journal of Contraception & Reproductive Health Care 24:5, pages 380-389.
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Helen Callaby, Jane Fisher & Patricia A. Lohr. (2019) Surgical termination of pregnancy for fetal anomaly: what role can an independent abortion service provider play?. Journal of Obstetrics and Gynaecology 39:6, pages 799-804.
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Caroline Lafarge, Kathryn Mitchell & Pauline Fox. (2017) Posttraumatic growth following pregnancy termination for fetal abnormality: the predictive role of coping strategies and perinatal grief. Anxiety, Stress, & Coping 30:5, pages 536-550.
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Penelope Pitt, Belinda J McClaren & Jan Hodgson. (2016) Embodied experiences of prenatal diagnosis of fetal abnormality and pregnancy termination. Reproductive Health Matters 24:47, pages 168-177.
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Articles from other publishers (58)

Havva Yeşildere Sağlam & Elif Gürsoy. (2024) Termination of pregnancy due to fetal anomaly: A qualitative study from Turkey on women's experiences. Midwifery 132, pages 103957.
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Antoinette Fletcher, Triona Cowman, Hazel Cazzini, Judith Fleming & Niamh Healy. (2024) Evaluation of a termination of pregnancy education programme in the Republic of Ireland: part 2. British Journal of Midwifery 32:1, pages 6-13.
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Rosemary Theroux & Cathy Violette. (2023) Fetal Anomaly: Family Experiences and Preferences for Care. Journal of Perinatal & Neonatal Nursing 37:4, pages 310-324.
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Joaquín Guillermo Gómez-Dávila & Carlos Enrique Yepes-Delgado. (2023) Significado de afrontar una interrupción voluntaria del embarazo tardía en mujeres que se realizaron el procedimiento en instituciones de salud de dos ciudades colombianas. Revista Colombiana de Obstetricia y Ginecología 74:3, pages 202-213.
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Mabel Leng Sim Lie, Vikki Smith, Allison Farnworth & Stephen Courtenay Robson. (2023) Termination for fetal anomaly in the UK – Women's views on termination method in the second trimester. Women's Studies International Forum 100, pages 102801.
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Mengjia Zhou, Xi Li, Chi Huang, Jiaying Xie, Li Liu, Ying Wang, Gui Xiao, Tingting Zhang & Chunxiang Qin. (2023) Needs for supporting women undergoing termination of pregnancy for fetal anomaly: A phenomenological study based on the cognitive–emotional–behavioral framework. Midwifery 123, pages 103726.
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Ileen Slegers, Kathelijn Keymolen, Kim Van Berkel, Boyan Dimitrov, Sonia Van Dooren, Rani Cooreman, Frederik Hes & Maaike Fobelets. (2023) Searching for a sense of closure: parental experiences of recontacting after a terminated pregnancy for congenital malformations. European Journal of Human Genetics.
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Julia Roncoroni, Salina Whitaker, Brigid Magdamo, Tayler Hendrix, Kornelia Zaręba & Rebekah Yohannes. (2023) Perceptions of Patient-Centered Care and Their Association With Patient Satisfaction in Abortions for Medical Reasons. Women's Health Issues.
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Batsheva Guy. (2022) Terminating a Wanted Pregnancy: A Feminist, Analytic Autoethnographic Account. Journal of Contemporary Ethnography 52:2, pages 243-260.
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Abigail Wilpers, Erica Goldblatt Hyatt, Mert Ozan Bahtiyar, Yunzhe Hu, Daisy Leon-Martinez, Frank A. Chervenak & Judith L. M. McCoyd. (2023) “We All Want to Be Able to Tell You Something Hopeful”: Clinicians’ Experiences Providing Maternal-Fetal Surgery Counseling. Fetal Diagnosis and Therapy 50:5, pages 353-367.
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Xi Li, Huiting Peng, Lihong Zeng, Theresah Owusua, Ying Wang, Yaohan Wang & Chunxiang Qin. (2023) Stigma and its influencing factors among women with termination of pregnancy for fetal anomaly: A cross-sectional study. Midwifery 116, pages 103553.
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Vikas Kaushal. 2023. Encyclopedia of Sexual Psychology and Behavior. Encyclopedia of Sexual Psychology and Behavior 1 13 .
Suzanne Heaney, Mark Tomlinson & Áine Aventin. (2022) Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents. BMC Pregnancy and Childbirth 22:1.
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Rosemary Theroux & Cheryl L. Hersperger. (2022) Managing broken expectations after a diagnosis of fetal anomaly. SSM - Qualitative Research in Health 2, pages 100188.
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Julie Bindeman. (2022) A Costly Choice? In Vitro Fertilization and Those That Terminate: Working towards an Understanding in a Post-Roe America. Women 2:3, pages 176-179.
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Katrina Kimport. 2022. Facing Death: Familial Responses to Illness and Death. Facing Death: Familial Responses to Illness and Death 91 118 .
Jennifer KernsMorgan Cheeks, Arianna CassidyGeffan PearlsonBiftu Mengesha. (2022) Abortion Stigma and Its Relationship with Grief, Post-traumatic Stress, and Mental Health-Related Quality of Life After Abortion for Fetal Anomalies. Women's Health Reports 3:1, pages 385-394.
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Hajo I.J. Wildschut, Hilmar H. Bijma & Maarten F.C.M. Knapen. 2022. Prenatal Genetic Counseling. Prenatal Genetic Counseling 21 38 .
Frederike Dekkers, Lara Ras, Iris Emons, Sam Riedijk, Jane Fisher & Karin E.M. Diderich. 2022. Prenatal Genetic Counseling. Prenatal Genetic Counseling 107 119 .
Zuleika González-Ramos, Esperanza Zuriguel-Pérez, Núria Albacar-Riobóo & Lina Casadó-Marín. (2021) The emotional responses of women when terminating a pregnancy for medical reasons: A scoping review. Midwifery 103, pages 103095.
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Susanne Armour, Andrea Gilkison & Marion Hunter. (2021) Midwives holding the space for women undergoing termination of pregnancy: A qualitative inquiry. Women and Birth 34:6, pages e616-e623.
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Dorte Hvidtjørn, Sofie Mørk, Mette Eklund, Rikke Damkjær Maimburg & Tine Brink Henriksen. (2021) Women’s Length of Stay in a Danish Specialized Unit for Perinatally Bereaved Parents. Journal of Obstetric, Gynecologic & Neonatal Nursing 50:6, pages 714-723.
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Abigail Wilpers, Mert Ozan Bahtiyar, David Stitelman, Janene Batten, Roberto X. Calix, Victoria Chase, Nicholas Yung, Nathan Maassel & Gina Novick. (2021) The parental journey of fetal care: a systematic review and metasynthesis. American Journal of Obstetrics & Gynecology MFM 3:3, pages 100320.
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Vidyashree Ganesh Poojari, Sanghamitra Paladugu, Akhila Vasudeva, Anjali Mundkur, Muralidhar V. Pai & Pratap Kumar. (2021) We Need to Improve Prenatal Screening Practices in Primary Obstetric Care: A Representative Data from a Fetal Medicine Unit in Coastal Karnataka. The Journal of Obstetrics and Gynecology of India.
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Laura Parra Rodríguez. (2021) “Es gratis, pero es demasiada volteadera ”. Percepciones sobre la espera en mujeres que abortaron durante el segundo y tercer trimestre de gestación en Colombia . Antípoda. Revista de Antropología y Arqueología:42, pages 107-131.
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Bahareh Kamranpour, Mahnaz Noroozi & Masoud Bahrami. (2021) Termination of pregnancy for fetal anomalies: A qualitative study of the informational and educational needs of women. Iranian Journal of Nursing and Midwifery Research 26:2, pages 97.
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Ellen Roets, Sigrid Dierickx, Luc Deliens, Kenneth Chambaere, Laure Dombrecht, Kristien Roelens & Kim Beernaert. (2020) Healthcare professionals’ attitudes towards termination of pregnancy at viable stage. Acta Obstetricia et Gynecologica Scandinavica 100:1, pages 74-83.
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Martina Smorti, Lucia Ponti, Lucia Bonassi, Elena Cattaneo & Chiara Ionio. (2020) Centrality of Pregnancy and Prenatal Attachment in Pregnant Nulliparous After Recent Elective or Therapeutic Abortion. Frontiers in Psychology 11.
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Yuxiao Li, Siyuan Tang, Jing Lu, Chi Huang, Huiting Peng, Jiaying Xie, Altangarvdi Borjigen, Mengxiang Liu & Chunxiang Qin. (2020) Prevalence and Factors Associated With Depressive Symptomatology Among Women Before Termination of Pregnancy for Fetal Anomaly. Journal of Psychosocial Nursing and Mental Health Services 58:12, pages 43-50.
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Signe Lindgaard Andersen, Ove Andersen, Janne Petersen & Ayo Wahlberg. (2019) Traveling health-promoting infrastructures: A meta-ethnographic analysis. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 24:5, pages 606-622.
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Shiwen Sun, Mengye Yang, Jieqiong Zhang, Xiaoli Zhou, Ge Jia & Xiaoyan Yu. (2020) Family support for pregnant women with foetal abnormality requiring pregnancy termination in China. Health & Social Care in the Community 28:3, pages 1020-1029.
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José Atienza‐Carrasco, Manuel Linares‐Abad, María Padilla‐Ruiz & Isabel María Morales‐Gil. (2020) Experiences and outcomes following diagnosis of congenital foetal anomaly and medical termination of pregnancy: A phenomenological study. Journal of Clinical Nursing 29:7-8, pages 1220-1237.
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Marsha Michie. (2020) Is preparation a good reason for prenatal genetic testing? Ethical and critical questions. Birth Defects Research 112:4, pages 332-338.
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Claire Blakeley, Debbie M. Smith, Edward D. Johnstone & Anja Wittkowski. (2019) Parental decision-making following a prenatal diagnosis that is lethal, life-limiting, or has long term implications for the future child and family: a meta-synthesis of qualitative literature. BMC Medical Ethics 20:1.
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Tommy Carlsson, Banaz Balbas & Elisabet Mattsson. (2019) Written narratives from immigrants following a prenatal diagnosis: qualitative exploratory study. BMC Pregnancy and Childbirth 19:1.
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Jo Watson, Anne Simmonds, Michelle La Fontaine & Megan E. Fockler. (2019) Pregnancy and infant loss: a survey of families’ experiences in Ontario Canada. BMC Pregnancy and Childbirth 19:1.
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Susanne Georgsson & Tommy Carlsson. (2019) Pain and pain management during induced abortions: A web‐based exploratory study of recollections from previous patients. Journal of Advanced Nursing 75:11, pages 3006-3017.
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Susanne Georgsson, Linde van der Spoel, Johanna Ferm & Tommy Carlsson. (2019) Quality of web pages about second‐trimester medical abortion: A cross‐sectional study of readability, comprehensiveness, and transparency. Journal of Advanced Nursing 75:11, pages 2683-2691.
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Jinxiu Li, Siyuan Tang, Minhui Liu, Wei Liu, Chunxia Cheng, Ying Li, Mei Sun & Chunxiang Qin. (2019) The relationship between salivary cortisol and perinatal depression in women undergoing termination of pregnancy for fetal anomaly: A prospective cohort study. Midwifery 75, pages 103-109.
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Daniel Brooks, Katharine Asta, Julie Sturza, Birhanu Kebede, Delayehu Bekele, Balkachew Nigatu, Jenny Hewison & Shane C. Quinonez. (2019) Patient preferences for prenatal testing and termination of pregnancy for congenital anomalies and genetic diseases in Ethiopia. Prenatal Diagnosis 39:8, pages 595-602.
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Frederike H.W. Dekkers, Attie T.J.I. Go, Luuk Stapersma, Alex J. Eggink & Elisabeth M.W.J. Utens. (2019) Termination of pregnancy for fetal anomalies: Parents' preferences for psychosocial care. Prenatal Diagnosis 39:8, pages 575-587.
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Caroline Lafarge, Sophia Rosman & Isabelle Ville. (2019) Pregnancy termination for fetal abnormality: Ambivalence at the heart of women's experience. Women's Studies International Forum 74, pages 42-51.
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Tommy Carlsson. (2018) Management of physical pain during induced second‐trimester medical abortions: a cross‐sectional study of methodological quality and recommendations in local clinical practice guidelines at Swedish hospitals. Scandinavian Journal of Caring Sciences 33:1, pages 111-118.
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Kornelia Zaręba, Marta Makara-Studzińska, Michał Ciebiera, Jacek Gierus & Grzegorz Jakiel. (2018) Role of Social and Informational Support while Deciding on Pregnancy Termination for Medical Reasons. International Journal of Environmental Research and Public Health 15:12, pages 2854.
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Chunxiang Qin, Wei-Ti Chen, Yunlong Deng, Xinchun Liu, Xiaoxia Wu, Mei Sun, Ni Gong & Siyuan Tang. (2018) Factors in healthcare violence in care of pregnancy termination cases: A case study. PLOS ONE 13:11, pages e0206083.
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Lisa Crowe, Ruth H. Graham, Stephen C. Robson & Judith Rankin. (2018) A survey of health professionals’ views on acceptable gestational age and termination of pregnancy for fetal anomaly. European Journal of Medical Genetics 61:9, pages 493-498.
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José Rocha, C. Nunes, A. Leonardo, M. J. Correia, M. Fernandes, M. C. Paúl & V. Almeida. (2018) Women generating narratives after an unwanted prenatal diagnosis result: randomized controlled trial. Archives of Women's Mental Health 21:4, pages 453-459.
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Franz Hanschmidt, Julia Treml, Johanna Klingner, Holger Stepan & Anette Kersting. (2017) Stigma in the context of pregnancy termination after diagnosis of fetal anomaly: associations with grief, trauma, and depression. Archives of Women's Mental Health 21:4, pages 391-399.
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Franz Hanschmidt, Michaela Nagl, Johanna Klingner, Holger Stepan & Anette Kersting. (2018) Abortion after diagnosis of fetal anomaly: Psychometric properties of a German version of the individual level abortion stigma scale. PLOS ONE 13:6, pages e0197986.
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Rachel N. A. Graziani, Laurie Nemzer & Jennifer Kerns. (2017) The Experience of Genetic Counselors Working with Patients Facing the Decision of Pregnancy Termination after 24 Weeks Gestation. Journal of Genetic Counseling 27:3, pages 626-634.
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Jan Hodgson & Belinda J. McClaren. (2018) Parental experiences after prenatal diagnosis of fetal abnormality. Seminars in Fetal and Neonatal Medicine 23:2, pages 150-154.
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Caroline Lafarge, Kathryn Mitchell, Andrew C. G. Breeze & Pauline Fox. (2017) Pregnancy termination for fetal abnormality: are health professionals’ perceptions of women’s coping congruent with women’s accounts?. BMC Pregnancy and Childbirth 17:1.
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Anna L. Altshuler, Alison Ojanen-Goldsmith, Paul D. Blumenthal & Lori R. Freedman. (2017) A good abortion experience: A qualitative exploration of women's needs and preferences in clinical care. Social Science & Medicine 191, pages 109-116.
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Kay Jones, Kathleen Baird & Jenny Fenwick. (2017) Women's experiences of labour and birth when having a termination of pregnancy for fetal abnormality in the second trimester of pregnancy: A qualitative meta-synthesis. Midwifery 50, pages 42-54.
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Ronit D. Leichtentritt & Galia Weinberg-Kurnik. (2016) No one sees the fathers: Israeli fathers' experience of feticide. Social Science & Medicine 168, pages 159-166.
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Saeid Gholamzadeh, Fatemeh Godrati, Narges Saadatmand & Marzieh Akbarzadeh. (2016) The Obstetrics and Gynecology and Genetic Counseling of Mother With Legal Abortion Had Been Referred to in Fars Province Center Since 2007 - 2013. Shiraz E-Medical Journal 17:2.
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Aarti Ramdaney, Syed S. Hashmi, Manju Monga, Rebecca Carter & Jennifer Czerwinski. (2015) Support Desired by Women Following Termination of Pregnancy for a Fetal Anomaly. Journal of Genetic Counseling 24:6, pages 952-960.
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Carrie Purcell. (2015) The Sociology of Women's Abortion Experiences: Recent Research and Future Directions. Sociology Compass 9:7, pages 585-596.
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