Citations (26)
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Monica L. Ponder, Jordan L. Lindsey & Wei Sun. (2023) Undocumented Latinx/Hispanic immigrants’ perceived stigma, social barriers, coping and adapting during COVID-19. Qualitative Research Reports in Communication 24:1, pages 76-86.
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Lisa Mikesell & Allyson C. Bontempo. (2023) Healthcare Providers’ Impact on the Care Experiences of Patients with Endometriosis: The Value of Trust. Health Communication 38:10, pages 1981-1993.
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Marla Munro, Abigail M. Cook & Kathleen R. Bogart. (2022) An inductive qualitative content analysis of stigma experienced by people with rare diseases. Psychology & Health 37:8, pages 948-963.
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Sarah Smith-Frigerio. (2021) “You are Not Alone”: Linking Peer Support to Information and Resources for Mental Health Concerns in Advocacy Groups’ Social Media Messaging. Health Communication 36:14, pages 1980-1989.
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Xi Tian, Denise Haunani Solomon & Rachel A. Smith. (2020) A Stress Buffering Perspective on the Progression of Alpha-1 Antitrypsin Deficiency. Health Communication 35:6, pages 747-755.
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Sarah Smith-Frigerio. (2020) Coping, Community and Fighting Stereotypes: An Exploration of Multidimensional Social Capital in Personal Blogs Discussing Mental Illness. Health Communication 35:4, pages 410-418.
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Frank D Buono, Lauretta E Grau, Matthew E Sprong, Kenneth L Morford, Kimberly J Johnson & David H Gutmann. (2019) Pain symptomology, functional impact, and treatment of people with Neurofibromatosis type 1. Journal of Pain Research 12, pages 2555-2561.
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Xun Zhu, Rachel A. Smith, Roxanne L. Parrott & Amber K. Worthington. (2018) Understanding information sharing about rare diseases: an evaluation of the NIH's website on AATD. Journal of Communication in Healthcare 11:2, pages 128-139.
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Articles from other publishers (18)
Jenny L. Crowley, Andrew C. High, Michael R. Kotowski & Dennis N. McCarty. (2023) Conflicting Goals When Seeking Support for Mental Health Concerns: Testing a Stigma Support Activation Model. Communication Research.
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Xiaoxue Wu, Yueyun Hu & Ailing Hu. (2023) Living With Stigma and Low Self-esteem Among Individuals With Burn Injuries: A Cross-sectional Study. Journal of Burn Care & Research 44:3, pages 573-579.
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Sarah Smith-Frigerio. 2023. The Palgrave Handbook of Disability and Communication. The Palgrave Handbook of Disability and Communication
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Luz-Estella Varela, María-Mercedes Arias, María-Antonia Martorell-Poveda, Clara V. Giraldo & Rosa A. Estrada-Acuña. (2022) Beyond the clinical context: the process of losing oneself living with Huntington’s disease. Orphanet Journal of Rare Diseases 17:1.
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Christina Q. Nguyen, Didu Kariyawasam, Kristine Alba‐Concepcion, Sarah Grattan, Kate Hetherington, Claire E. Wakefield, Susan Woolfenden, Russell C. Dale, Elizabeth E. Palmer & Michelle A. Farrar. (2022) ‘Advocacy groups are the connectors’: Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics. Health Expectations 25:6, pages 3175-3191.
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Claudia Ching Yan Chung, Annie Tsz Wai Chu & Brian Hon Yin Chung. (2022) Rare disease emerging as a global public health priority. Frontiers in Public Health 10.
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Iccha Basnyat, Nadine Bol & Marleah DeanAnna M. Kerr. 2022. The International Encyclopedia of Health Communication. The International Encyclopedia of Health Communication
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Yvette N.C. Ng, Nicole Y.T. Ng, Jasmine L.F. Fung, Adrian C.Y. Lui, Nicholas Y.C. Cheung, Wilfred H.S. Wong, So Lun Lee, Martin Knapp, Claudia C.Y. Chung & Brian H.Y. Chung. (2022) Evaluating the Health-Related Quality of Life of the Rare Disease Population in Hong Kong Using EQ-5D 3-Level. Value in Health 25:9, pages 1624-1633.
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Margarita G. Gevandova. (2021) Pediatric oncology: diagnosis as stigma in parents’ opinion. Sociology of Medicine 20:2, pages 27-35.
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Shanquan Chen, Jingxuan Wang, Jianfeng Zhu, Roger Yat-Nork Chung & Dong Dong. (2021) Quality of life and its contributors among adults with late-onset Pompe disease in China. Orphanet Journal of Rare Diseases 16:1.
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Xi Chen, Chenli Huang, Hongyun Wang, Weiming Wang, Xiangli Ni & Yujie Li. (2021) Negative Emotion Arousal and Altruism Promoting of Online Public Stigmatization on COVID-19 Pandemic. Frontiers in Psychology 12.
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M Rosie Shrout & Daniel J Weigel. (2019) A two-wave study on the health and relationship consequences of experienced stigma among individuals with concealable chronic health conditions. Journal of Health Psychology 26:6, pages 860-869.
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Brooke Bryson, Kathleen Bogart, Makenzie Atwood, Kelly Fraser, Taylor Locke, Kiley Pugh & Mohamed Zerrouk. (2019) Navigating the unknown: A content analysis of the unique challenges faced by adults with rare diseases. Journal of Health Psychology 26:5, pages 623-635.
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Rebecca Hedrick & Kristina Jones. 2020. The Handbook of Wellness Medicine. The Handbook of Wellness Medicine
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Christine Lee, Christopher St Clair, CDR Christine Merenda, CAPT Richardae Araojo, Sara Ray, Derrick Beasley & RADM Denise Hinton. (2020) Assessment of public and patient online comments in social media and food and drug administration archival data. Research in Social and Administrative Pharmacy 16:7, pages 967-973.
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Xun Zhu, Youllee Kim & Haseon Park. (2020) Do messages spread widely also diffuse fast? Examining the effects of message characteristics on information diffusion. Computers in Human Behavior 103, pages 37-47.
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Ashleen L. Crowe, Amy Jayne McKnight & Helen McAneney. (2019) Communication Needs for Individuals With Rare Diseases Within and Around the Healthcare System of Northern Ireland. Frontiers in Public Health 7.
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