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Original

Renewing Everyday Hope: The Hope Experience of Family Caregivers of Persons with Dementia

, PhD, RN, , PhD, , PhD, RN & , MN, RN
Pages 514-521 | Published online: 13 Aug 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (10)

Cynthia A. Hovland & Christopher A. Mallett. (2021) Positive Aspects of Family Caregiving for Older Adults at End-of-Life: A Qualitative Examination. Journal of Social Work in End-of-Life & Palliative Care 17:1, pages 64-82.
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Jocelyn Shealy McGee, Holly Carlson Zhao, Dennis R. Myers & Steffi Marotzke Kim. (2017) Positive Psychological Assessment and Early-Stage Dementia. Clinical Gerontologist 40:4, pages 307-319.
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E.L. Wolverson, C. Clarke & E.D. Moniz-Cook. (2016) Living positively with dementia: a systematic review and synthesis of the qualitative literature. Aging & Mental Health 20:7, pages 676-699.
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Sarah Wayland, Myfanwy Maple, Kathy McKay & Geoffrey Glassock. (2016) Holding on to hope: A review of the literature exploring missing persons, hope and ambiguous loss. Death Studies 40:1, pages 54-60.
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Mike Healey & Susan Renes. (2014) Lessons From Iris: Perspectives on Aging. Journal of Creativity in Mental Health 9:1, pages 135-145.
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Denise J. Larsen, Rachel Stege & Keri Flesaker. (2013) ‘It’s important for me not to let go of hope’: Psychologists’ in-session experiences of hope. Reflective Practice 14:4, pages 472-486.
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Emma L. Wolverson (Radbourne)Christopher Clarke & Esme Moniz-Cook. (2010) Remaining hopeful in early-stage dementia: A qualitative study. Aging & Mental Health 14:4, pages 450-460.
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Elizabeth Quinlan & Wendy Duggleby. (2009) “Breaking the fourth wall”: Activating hope through participatory theatre with family caregivers. International Journal of Qualitative Studies on Health and Well-being 4:4, pages 207-219.
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Yong Hao Ng, Keyuan Jiao, Margaret H. P. Suen, Juan Wang & Amy Y.M Chow. The role of the social environment on dementia caregivers’ pre-death grief: A mixed- methods systematic review. Death Studies 0:0, pages 1-20.
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Jocelyn Shealy McGee, Edward C. Polson, Dennis R. Myers, Angela McClellan, Rebecca Meraz, Weiming Ke & Holly Carlson Zhao. (2024) Hope Mediates Stress to Reduce Burden in Family Caregivers of Persons with Alzheimer’s Disease. Geriatrics 9:2, pages 38.
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Richard D Pione, Charlotte R Stoner, Anna V Cartwright & Aimee Spector. (2023) Measuring hope and resilience in carers of people living with dementia: The positive psychology outcome measure for carers (PPOM-C). Dementia 22:5, pages 978-994.
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Aleksandra Kudlicka, Anthony Martyr, Alex Bahar-Fuchs, Julieta Sabates, Bob Woods & Linda Clare. (2023) Cognitive rehabilitation for people with mild to moderate dementia. Cochrane Database of Systematic Reviews 2023:6.
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Heather J. Campbell-Enns, Stephen Bornstein, Veronica M. M. Hutchings, Maya Janzen, Melanie Kampen, Kelli O’Brien, Kendra L. Rieger, Tara Stewart, Benjamin Rich Zendel & Malcolm B. Doupe. (2023) The experiences and needs of unpaid family caregivers for persons living with dementia in rural settings: A qualitative systematic review. PLOS ONE 18:6, pages e0286548.
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Daniel L. Herron, Jessica Runacres, Ian Danton & Jack Beardmore. (2023) Carers’ experiences of caring for a friend or family member with dementia during the Covid-19 pandemic. Dementia 22:3, pages 576-593.
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Josep Fabà, Feliciano Villar & Gerben Westerhof. (2023) Perceived Caregiving Trajectories and their Relationship with Caregivers’ Burdens and Gains. The Spanish Journal of Psychology 26.
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Jari Pirhonen, Leena Forma & Ilkka Pietilä. (2022) COVID-19 related visiting ban in nursing homes as a source of concern for residents’ family members: a cross sectional study. BMC Nursing 21:1.
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Rui Hu, Bingbing Lai, Wenhao Ma, Yuan Zhang, Yujiao Deng, Lianqi Liu, Zeping Lv, Chetwyn Chan, Fan Zhang & Qian Tao. (2022) How formal caregiver’s BPSD knowledge influences positive aspects of caregiving: the mediating role of attitude and the moderating role of self-efficacy. BMC Geriatrics 22:1.
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Catherine Quinn, Gill Toms, Isla Rippon, Sharon M. Nelis, Catherine Henderson, Robin G. Morris, Jennifer M. Rusted, Jeanette M. Thom, Eleanor van den Heuvel, Christina Victor & Linda Clare. (2022) Positive experiences in dementia care-giving: findings from the IDEAL programme. Ageing and Society, pages 1-21.
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Darrell Jackson, René Erwich, Eleanor Flynn & Titus S. Olorunnisola. (2022) Equipping Families and Friends to Offer Spiritual Care to People Living with Dementia: Findings from a Meta-Synthesis. Religions 13:5, pages 462.
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Alissa Bernstein Sideman, Jenna L. Wells, Jennifer Merrilees, Suzanne M. Shdo, Claire I. Yee, Katherine L. Possin & Robert W. Levenson. (2022) Pronoun Use among Caregivers of People Living with Dementia: Associations with Dementia Severity Using Text Analysis of a Natural Language Sample. Dementia and Geriatric Cognitive Disorders Extra 12:1, pages 60-68.
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Natalia Salamanca Balen & Thomas V. Merluzzi. (2021) Hope, uncertainty, and control: A theoretical integration in the context of serious illness. Patient Education and Counseling 104:11, pages 2622-2627.
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Doris S. F. Yu, Sheung‐Tak Cheng & Timothy Kwok. (2020) Developing and testing of an integrative theoretical model to predict positive aspects of caregiving among family caregivers of persons with dementia: A study protocol. Journal of Advanced Nursing 77:1, pages 401-410.
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Neil Drummond, Linda Garcia & Lynn McCleary. 2020. Evidence-Informed Approaches for Managing Dementia Transitions. Evidence-Informed Approaches for Managing Dementia Transitions 1 28 .
Nathan Davies, Nina Walker, Jenny Hopwood, Steve Iliffe, Greta Rait & Kate Walters. (2019) A “separation of worlds”: The support and social networks of family carers of people with dementia at the end of life, and the possible role of the internet. Health & Social Care in the Community 27:4.
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Rajeswari Sambasivam, Jianlin Liu, Janhavi A. Vaingankar, Hui L. Ong, Min‐En Tan, Restria Fauziana, Louisa Picco, Siow Ann Chong & Mythily Subramaniam. (2018) The hidden patient: chronic physical morbidity, psychological distress, and quality of life in caregivers of older adults. Psychogeriatrics 19:1, pages 65-72.
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Ping Li, Yu-Jie Guo, Qing Tang & Lei Yang. (2018) Effectiveness of nursing intervention for increasing hope in patients with cancer: a meta-analysis. Revista Latino-Americana de Enfermagem 26:0.
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Andrew Hanna, James Donnelly & Christina Aggar. (2018) Study protocol: A Montessori approach to dementia-related, non-residential respite services in Australia. Archives of Gerontology and Geriatrics 77, pages 24-30.
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Doris S.F. Yu, Sheung-Tak Cheng & Jungfang Wang. (2018) Unravelling positive aspects of caregiving in dementia: An integrative review of research literature. International Journal of Nursing Studies 79, pages 1-26.
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Valerie T Cotter, Elizabeth W Gonzalez, Kathleen Fisher & Kathy C Richards. (2017) Influence of hope, social support, and self-esteem in early stage dementia. Dementia 17:2, pages 214-224.
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Abir K. Bekhet & Jennifer Sjostedt Avery. (2018) Resilience from the Perspectives of Caregivers of Persons with Dementia. Archives of Psychiatric Nursing 32:1, pages 19-23.
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Laura Louise Hammond & Conrad Debney. (2017) Recovery and dementia: promoting choice and challenging controversy. Mental Health and Social Inclusion 21:5, pages 297-303.
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Jingjun Zhang & Diana T.F. Lee. (2017) Meaning in stroke family caregiving: A literature review. Geriatric Nursing 38:1, pages 48-56.
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Ingrid Hellström & Sandra Torres. (2016) The “not yet” horizon: Understandings of the future amongst couples living with dementia. Dementia 15:6, pages 1562-1585.
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Joanna Lloyd, Tom Patterson & Jane Muers. (2016) The positive aspects of caregiving in dementia: A critical review of the qualitative literature. Dementia 15:6, pages 1534-1561.
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Abir K. Bekhet. (2015) Resourcefulness in African American and Caucasian American Caregivers of Persons With Dementia: Associations With Perceived Burden, Depression, Anxiety, Positive Cognitions, and Psychological Well-Being. Perspectives in Psychiatric Care 51:4, pages 285-294.
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Fiona Wong, Heather H. Keller, Lori Schindel Martin & Olga Sutherland. (2014) A recipe for mealtime resilience for families living with dementia. Scandinavian Journal of Caring Sciences 29:3, pages 486-494.
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Andrew J. Howell & Denise J. LarsenAndrew J. Howell & Denise J. Larsen. 2015. Understanding Other-Oriented Hope. Understanding Other-Oriented Hope 27 47 .
Allison Lindauer & Theresa A. Harvath. (2014) Pre‐death grief in the context of dementia caregiving: a concept analysis. Journal of Advanced Nursing 70:10, pages 2196-2207.
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Åsa Audulv, Tanya Packer & Joan Versnel. (2014) Identifying gaps in knowledge: A map of the qualitative literature concerning life with a neurological condition. Chronic Illness 10:3, pages 192-243.
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Ulla H. Graneheim, Anneli Johansson & Britt‐Marie Lindgren. (2013) Family caregivers’ experiences of relinquishing the care of a person with dementia to a nursing home: insights from a meta‐ethnographic study. Scandinavian Journal of Caring Sciences 28:2, pages 215-224.
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Sharon L. Moore, Susan E. Hall & Jennifer Jackson. (2014) Exploring the Experience of Nursing Home Residents Participation in a Hope-Focused Group. Nursing Research and Practice 2014, pages 1-9.
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Allison Williams, Wendy Duggleby, Jeanette Eby, Reverend Dan Cooper, Lars K Hallstrom, Lorraine Holtslander & Roanne Thomas. (2013) Hope against hope: exploring the hopes and challenges of rural female caregivers of persons with advanced cancer. BMC Palliative Care 12:1.
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Wendy Duggleby, Dawn Schroeder & Cheryl Nekolaichuk. (2013) Hope and connection: the experience of family caregivers of persons with dementia living in a long term care facility. BMC Geriatrics 13:1.
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Abir K. Bekhet. (2012) Effects of positive cognitions and resourcefulness on caregiver burden among caregivers of persons with dementia. International Journal of Mental Health Nursing 22:4, pages 340-346.
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Jan R. Oyebode, Paul Bradley & Joanne L. Allen. (2012) Relatives’ Experiences of Frontal-Variant Frontotemporal Dementia. Qualitative Health Research 23:2, pages 156-166.
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Frances Bunn, Claire Goodman, Katie Sworn, Greta Rait, Carol Brayne, Louise Robinson, Elaine McNeilly & Steve Iliffe. (2012) Psychosocial Factors That Shape Patient and Carer Experiences of Dementia Diagnosis and Treatment: A Systematic Review of Qualitative Studies. PLoS Medicine 9:10, pages e1001331.
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Sharon L. Moore. (2012) The Experience of Hope and Aging: A Hermeneutic Photography Study. Journal of Gerontological Nursing 38:10, pages 28-36.
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Paula R. Sherwood, Barbara A. Given, Charles W. Given, Alla Sikorskii, Mei You & Jennifer Prince. (2011) The impact of a problem-solving intervention on increasing caregiver assistance and improving caregiver health. Supportive Care in Cancer 20:9, pages 1937-1947.
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