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ORIGINAL ARTICLES

Learning to assist women born with atypical genitalia: journey through ignorance, taboo and dilemma

Pages 229-238 | Received 15 May 2002, Published online: 13 Jun 2008

Keep up to date with the latest research on this topic with citation updates for this article.

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Tove Lundberg, Katrina Roen, Carina Kraft & Peter Hegarty. (2021) How young people talk about their variations in sex characteristics: making the topic of intersex talkable via sex education. Sex Education 21:5, pages 552-567.
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Katrina Roen, Erik Carlquist & Lin Prøitz. (2021) ‘Does anyone else have this?’ The role of emotion in forum discussions about medical conditions affecting sex characteristics. Culture, Health & Sexuality 23:1, pages 52-67.
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Lih-Mei Liao & Margaret Simmonds. (2014) A values-driven and evidence-based health care psychology for diverse sex development. Psychology & Sexuality 5:1, pages 83-101.
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Arlene Istar Lev. (2006) Intersexuality in the Family: An Unacknowledged Trauma. Journal of Gay & Lesbian Psychotherapy 10:2, pages 27-56.
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Articles from other publishers (31)

MysoreNarasimha Vranda, Suresh Badamath, MaritaKadicheeni Paul, RadhakrishnanVasanthra Cicil, PrakyathRavindranath Hegde, Adharsa Ajayan, HariHara Suchendra & Tshering Lhamu. (2023) Psychological and family intervention with a person diagnosed with complete androgen insensitivity syndrome. Telangana Journal of Psychiatry 9:1, pages 54.
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Julie W. Cheng, Elizabeth McCauley, Lauren N. Nicassio, Patricia Y. Fechner, Anne-Marie E. Amies Oelschlager, Margaret P. Adam, Christina Fisher, Joanne Wetzler, Rachel Kinsinger, Paige Nelson, Nancy McCune, Mark P. Cain & Margarett Shnorhavorian. (2022) Integration of child life services in the delivery of multi-disciplinary differences in Sexual Development (DSD) and Congenital Adrenal Hyperplasia (CAH) care. Journal of Pediatric Urology 18:5, pages 612.e1-612.e6.
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S. Faisal Ahmed, John Achermann, Julie Alderson, Naomi S. Crouch, Sue Elford, Ieuan A. Hughes, Nils Krone, Ruth McGowan, Talat Mushtaq, Stuart O’Toole, Leslie Perry, Martina E. Rodie, Mars Skae & Helen E. Turner. (2021) Society for Endocrinology UK Guidance on the initial evaluation of a suspected difference or disorder of sex development (Revised 2021). Clinical Endocrinology 95:6, pages 818-840.
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Nina Callens, Baudewijntje P.C. Kreukels & Tim C. van de Grift. (2021) Young Voices: Sexual Health and Transition Care Needs in Adolescents with Intersex/Differences of Sex Development—A Pilot Study. Journal of Pediatric and Adolescent Gynecology 34:2, pages 176-189.e2.
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Jane Czyzselska. (2021) The truth that’s denied: Psychotherapy with LGBTIQ+ clients who identify as intersex. Psychology of Sexualities Review 12:1, pages 20-33.
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Sorrel Pitcher, Nazia Fakie, Tracey Adams, Lynette Denny & Jennifer Moodley. (2020) Sexuality post gynaecological cancer treatment: a qualitative study with South African women. BMJ Open 10:9, pages e038421.
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Amanda L. Jenkins, Sara E. Crann, Deborah M. Money & Kieran C. O’Doherty. (2017) “Clean and Fresh”: Understanding Women’s use of Vaginal Hygiene Products. Sex Roles 78:9-10, pages 697-709.
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Roberta Fonseca de Souza, Janaina Pereira da Silva, Bruno Vieira Balla, Rodrigo Neves Ferreira & Antônio Chambô Filho. (2017) Bilateral Sertoli Cell Tumors in a Patient with Androgen Insensitivity Syndrome. Case Reports in Obstetrics and Gynecology 2017, pages 1-4.
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Tove Lundberg, Katrina Roen, Angelica L. Hirschberg & Louise Frisén. (2016) “It's Part of Me, Not All of Me”: Young Women's Experiences of Receiving a Diagnosis Related to Diverse Sex Development. Journal of Pediatric and Adolescent Gynecology 29:4, pages 338-343.
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Katinka Schweizer, Franziska Brunner, Benjamin Gedrose, Christina Handford & Hertha Richter-Appelt. (2016) Coping With Diverse Sex Development: Treatment Experiences and Psychosocial Support During Childhood and Adolescence and Adult Well-Being. Journal of Pediatric Psychology, pages jsw058.
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Hedvig Engberg, Anders Möller, Kerstin Hagenfeldt, Agneta Nordenskjöld & Louise Frisén. (2016) The experience of women living with Congenital Adrenal Hyperplasia: impact of the condition and the care given. Clinical Endocrinology 85:1, pages 21-28.
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S. Faisal Ahmed, John C. Achermann, Wiebke Arlt, Adam Balen, Gerry Conway, Zoe Edwards, Sue Elford, Ieuan A. Hughes, Louise Izatt, Nils Krone, Harriet Miles, Stuart O'Toole, Les Perry, Caroline Sanders, Margaret Simmonds, Andrew Watt & Debbie Willis. (2015) Society for Endocrinology UK guidance on the initial evaluation of an infant or an adolescent with a suspected disorder of sex development (Revised 2015) . Clinical Endocrinology 84:5, pages 771-788.
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Rita Cassia Amaral, Marlene Inacio, Vinicius N. Brito, Tania A. S. S. Bachega, Sorahia Domenice, Ivo J. P. Arnhold, Guiomar Madureira, Larissa Gomes, Elaine M. F. Costa & Berenice B. Mendonca. (2014) Quality of life of patients with 46, XX and 46, XY disorders of sex development . Clinical Endocrinology 82:2, pages 159-164.
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L.-M. Liao, E. Baker, M.E. Boyle, C.R.J. Woodhouse & S.M. Creighton. (2014) Experiences of Surgical Continence Management Approaches for Cloacal Anomalies: A Qualitative Analysis Based on 6 Women. Journal of Pediatric and Adolescent Gynecology 27:5, pages 266-270.
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Nina Callens, Griet De Cuypere, Petra De Sutter, Stan Monstrey, Steven Weyers, Piet Hoebeke & Martine Cools. (2014) An update on surgical and non-surgical treatments for vaginal hypoplasia. Human Reproduction Update 20:5, pages 775-801.
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Nina Callens, Steven Weyers, Stan Monstrey, Sabine Stockman, Birgit van Hoorde, Eline van Hoecke, Griet De Cuypere, Piet Hoebeke & Martine Cools. (2014) Vaginal dilation treatment in women with vaginal hypoplasia: a prospective one-year follow-up study. American Journal of Obstetrics and Gynecology 211:3, pages 228.e1-228.e12.
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Breanne Fahs. (2014) Genital panics: Constructing the vagina in women's qualitative narratives about pubic hair, menstrual sex, and vaginal self-image. Body Image 11:3, pages 210-218.
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Ieuan A Hughes, John D Davies, Trevor I Bunch, Vickie Pasterski, Kiki Mastroyannopoulou & Jane MacDougall. (2012) Androgen insensitivity syndrome. The Lancet 380:9851, pages 1419-1428.
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Jean Calleja-Agius, Petra Mallia, Karen Sapiano & Pierre Schembri-Wismayer. (2012) A Review of the Management of Intersex. Neonatal Network 31:2, pages 97-104.
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Lori S. Saiki & Marie L. Lobo. (2011) Disclosure: a concept analysis. Journal of Advanced Nursing 67:12, pages 2713-2722.
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S. Faisal Ahmed, John C. Achermann, Wiebke Arlt, Adam H. Balen, Gerry Conway, Zoe L. Edwards, Sue Elford, Ieuan A. Hughes, Louise Izatt, Nils Krone, Harriet L. Miles, Stuart O’Toole, Les Perry, Caroline Sanders, Margaret Simmonds, A. Michael Wallace, Andrew Watt & Debbie Willis. (2011) UK guidance on the initial evaluation of an infant or an adolescent with a suspected disorder of sex development. Clinical Endocrinology 75:1, pages 12-26.
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Emilee Gilbert, Jane M. Ussher & Janette Perz. (2008) Renegotiating Sexuality and Intimacy in the Context of Cancer: The Experiences of Carers. Archives of Sexual Behavior 39:4, pages 998-1009.
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Lisa Margetts. (2010) Meaning and Relevance in a Therapeutic Journey: An Exploration of the Relevance of Fairy Tales to Work with Older Learning Disabled Clients Who Have Been Institutionalised. British Journal of Music Therapy 24:1, pages 12-21.
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MatthewA Malouf, ArpanaG Inman, AmandaG Carr, Jill Franco & LindseyM Brooks. (2010) Health-Related Quality of Life, Mental Health and Psychotherapeutic Considerations for Women Diagnosed with a Disorder of Sexual Development: Congenital Adrenal Hyperplasia. International Journal of Pediatric Endocrinology 2010:1, pages 253465.
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Matthew A. Malouf, Arpana G. Inman, Amanda G. Carr, Jill Franco & Lindsey M. Brooks. (2010) Health-Related Quality of Life, Mental Health and Psychotherapeutic Considerations for Women Diagnosed with a Disorder of Sexual Development: Congenital Adrenal Hyperplasia. International Journal of Pediatric Endocrinology 2010, pages 1-11.
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L‐M Liao, H Green, SM Creighton, NS Crouch & GS Conway. (2009) Service users’ experiences of obtaining and giving information about disorders of sex development. BJOG: An International Journal of Obstetrics & Gynaecology 117:2, pages 193-199.
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Katrina Roen. (2008) `But We Have to Do Something': Surgical `Correction' of Atypical Genitalia. Body & Society 14:1, pages 47-66.
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Cara Megan Ogilvie, Naomi S. Crouch, Gill Rumsby, Sarah M. Creighton, Lih‐Mei Liao & Gerard S. Con Way. (2005) Congenital adrenal hyperplasia in adults: a review of medical, surgical and psychological issues. Clinical Endocrinology 64:1, pages 2-11.
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Sarah M Creighton, Catherine L Minto, Lih Mei Liao, Julie Alderson & Margaret Simmonds. (2004) Meeting between experts: evaluation of the first UK forum for lay and professional experts in intersex. Patient Education and Counseling 54:2, pages 153-157.
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Milton Diamond & Linda Ann Watson. (2004) Androgen insensitivity syndrome and Klinefelter's syndrome: sex and gender considerations. Child and Adolescent Psychiatric Clinics of North America 13:3, pages 623-640.
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S.M. Creighton & L.‐M. Liao. (2004) Changing attitudes to sex assignment in intersex. BJU International 93:5, pages 659-664.
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