754
Views
69
CrossRef citations to date
0
Altmetric
Articles

Predictors of psychological functioning in mothers and fathers of infants born with severe congenital heart disease

, , , , , , , & show all
Pages 390-400 | Received 11 Jul 2008, Accepted 23 Dec 2008, Published online: 15 Oct 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (3)

Lyndsay MacKay, Karen Benzies, Shelley Raffin Bouchal & Chantelle Barnard. (2022) Parental and Health Care Professionals' Experiences Caring for Medically Fragile Infants on Pediatric Inpatient Units. Children's Health Care 51:2, pages 119-138.
Read now
M. Amber Soulvie, PritiP. Desai, Carmel Parker White & BrittanyN. Sullivan. (2012) Psychological Distress Experienced by Parents of Young Children With Congenital Heart Defects: A Comprehensive Review of Literature. Journal of Social Service Research 38:4, pages 484-502.
Read now
Ana Fonseca, Bárbara Nazaré & Maria Cristina Canavarro. (2011) Patterns of parental emotional reactions after a pre- or postnatal diagnosis of a congenital anomaly. Journal of Reproductive and Infant Psychology 29:4, pages 320-333.
Read now

Articles from other publishers (66)

G Navangi J de Silva & Gayani P Gamage. (2024) Queens of hearts: Exploring the lived experiences of mothers caring for infants with complex congenital heart disease in Sri Lanka. Journal of Health Psychology.
Crossref
Francesca Giulia Maraschin, Fidelis Jacklyn Adella & Shobhana Nagraj. (2023) A scoping review of the post-discharge care needs of babies requiring surgery in the first year of life. PLOS Global Public Health 3:11, pages e0002424.
Crossref
Jennifer Gerlach, Elena S. Decker, Anne-Christine Plank, Stefan Mestermann, Ariawan Purbojo, Robert A. Cesnjevar, Oliver Kratz & Anna Eichler. (2023) Long-Term Effects of Child Early Surgical Ventricular Septal Defect Repair on Maternal Stress. Children 10:12, pages 1832.
Crossref
Jill M. G. Bally, Meridith Burles, Shelley Spurr & Jessica McGrath. (2023) Exploring the Use of Arts-Based Interventions and Research Methods in Families of Seriously Ill Children: A Scoping Review. Journal of Family Nursing 29:4, pages 395-416.
Crossref
Karen J Eagleson, Desiree McCombs, Tiffany M Gerlich, Robert N Justo, Nadine A Kasparian & Samudragupta Bora. (2023) Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease. Journal of Pediatric Psychology 48:6, pages 537-552.
Crossref
Alistair Thorpe, Rebecca K. Delaney, Nelangi M. Pinto, Elissa M. Ozanne, Mandy L. Pershing, Lisa M. Hansen, Linda M. Lambert & Angela Fagerlin. (2023) Parents’ Psychological and Decision-Making Outcomes following Prenatal Diagnosis with Complex Congenital Heart Defect: An Exploratory Study. MDM Policy & Practice 8:2.
Crossref
Sarah Muñoz-Violant, Verónica Violant-Holz & Manuel J. Rodríguez. (2023) Factors of well-being of youth with complex medical conditions from the experience of hospitalization and convalescence: A pilot study. PLOS ONE 18:5, pages e0285213.
Crossref
Kathryn S Mangin-Heimos, Michael Strube, Kaylin Taylor, Kymberli Galbraith, Erin O’Brien, Cynthia Rogers, Caroline K Lee & Cynthia Ortinau. (2023) Trajectories of Maternal and Paternal Psychological Distress After Fetal Diagnosis of Moderate–Severe Congenital Heart Disease. Journal of Pediatric Psychology 48:4, pages 305-316.
Crossref
Kathleen A. Mussatto, Felicia L. Trachtenberg, Ke Wang, Karen Uzark, Erica Sood, Linda Lambert, Michelle Hamstra, Shanelle Clarke, Tonia Morrison, Michelle Otto, Amanda Picart, Kathleen Rathge, Patricia Walter, Frances Woodard & Victoria L. Pemberton. (2023) The Relationship of Family Factors to Psychosocial Outcomes in Children with Hypoplastic Left Heart Syndrome at 6 Years of Age. The Journal of Pediatrics 255, pages 50-57.e2.
Crossref
S. Watkins, O. Isichei, T. L. Gentles, R. Brown, T. Percival, L. Sadler, R. Gorinski, S. Crengle, E. Cloete, M. W. M. de Laat, F. H. Bloomfield & K. Ward. (2022) What is Known About Critical Congenital Heart Disease Diagnosis and Management Experiences from the Perspectives of Family and Healthcare Providers? A Systematic Integrative Literature Review. Pediatric Cardiology 44:2, pages 280-296.
Crossref
Ulrika Hallberg & Gunilla KlingbergUlrika Hallberg & Gunilla Klingberg. 2023. Children with Special Needs. Children with Special Needs 31 45 .
Kiona Y. Allen & Bradley S. Marino. 2020. Pediatric Cardiology. Pediatric Cardiology 1 11 .
Abigail C. Demianczyk, Colleen F. Bechtel Driscoll, Allison Karpyn, Amanda Shillingford, Anne E. Kazak & Erica Sood. (2021) Coping strategies used by mothers and fathers following diagnosis of congenital heart disease. Child: Care, Health and Development 48:1, pages 129-138.
Crossref
Amy J. Lisanti, Aparna Kumar, Ryan Quinn, Jesse L. Chittams, Barbara Medoff-Cooper & Abigail C. Demianczyk. (2021) Role alteration predicts anxiety and depressive symptoms in parents of infants with congenital heart disease: a pilot study. Cardiology in the Young 31:11, pages 1842-1849.
Crossref
Jill MG Bally, Meridith Burles, Nicole R Smith, Lorraine Holtslander, Chris Mpofu, Heather Hodgson-Viden & Marcelline Zimmer. (2020) Exploring opportunities for holistic family care of parental caregivers of children with life-threatening or life-limiting illnesses. Qualitative Social Work 20:5, pages 1356-1373.
Crossref
Lyndsay MacKay, Karen Benzies, Chantelle Barnard & Shelley Raffin Bouchal. (2020) Parental Experiences Caring for Their Hospitalized Medically Fragile Infants: A Description of Grief, Stress, and Coping. Canadian Journal of Nursing Research 53:3, pages 191-201.
Crossref
Erica Sood, Amy Jo Lisanti, Sarah E. Woolf-King, Jo Wray, Nadine Kasparian, Emily Jackson, Mary R. Gregory, Keila N. Lopez, Bradley S. Marino, Trent Neely, Amy Randall, Sinai C. Zyblewski & Cheryl L. Brosig. (2021) Parent mental health and family functioning following diagnosis of CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative. Cardiology in the Young 31:6, pages 900-914.
Crossref
Amy J. Lisanti, Abigail C. Demianczyk, Kayla Vaughan, Giordana Fraser Martino, Rachel Schaake Ohrenschall, Ryan Quinn, Jesse L. Chittams & Barbara Medoff-Cooper. (2021) Parental role alteration strongly influences depressive symptoms in mothers of preoperative infants with congenital heart disease. Heart & Lung 50:2, pages 235-241.
Crossref
Michelle M. Ernst, Carrie Piazza-Waggoner, Bradley S. Marino & Jo Wray. 2020. Pediatric and Congenital Cardiology, Cardiac Surgery and Intensive Care. Pediatric and Congenital Cardiology, Cardiac Surgery and Intensive Care 1 24 .
Midori Ruth Lumsden, Debbie M. Smith, Emma Twigg, Rafael Guerrero & Anja Wittkowski. (2020) Children with single ventricle congenital heart defects: An interpretative phenomenological analysis of the lived parent experience. Progress in Pediatric Cardiology 59, pages 101297.
Crossref
Meredith Bishop, Lindsey L Cohen & Abigail S Robbertz. (2020) Illness-Related Parenting Stress and Maladjustment in Congenital Heart Disease: Mindfulness as a Moderator. Journal of Pediatric Psychology 45:10, pages 1208-1215.
Crossref
Lyndsay Mackay, Karen Benzies, Chantelle Barnard & Shelley Raffin Bouchal. (2020) Health Care Professionals' Experiences of Providing Care to Hospitalized Medically Fragile Infants and Their Parents. Journal of Pediatric Nursing 53, pages 14-21.
Crossref
Ji-Hye Hwang & Sun-Mi Chae. (2020) Experiences of Fathers of Young Children With Severe Congenital Heart Defects in Korea: A Qualitative Descriptive Study. Journal of Pediatric Nursing 53, pages e108-e113.
Crossref
Alexis V. Hunt, Desiree C. K. Hilton, Charlotte E. Verrall, Kristine K. Barlow-Stewart, Jane Fleming, David S. Winlaw & Gillian M. Blue. (2020) “Why and how did this happen?”: development and evaluation of an information resource for parents of children with CHD. Cardiology in the Young 30:3, pages 346-352.
Crossref
Lyndsay J. Mackay, Karen M. Benzies, Chantelle Barnard & K Alix Hayden. (2019) A scoping review of parental experiences caring for their hospitalised medically fragile infants. Acta Paediatrica 109:2, pages 266-275.
Crossref
Katharine Callahan, Rochelle Steinwurtzel, Lyn Brumarie, Sarah Schechter & Elvira Parravicini. (2019) Early palliative care reduces stress in parents of neonates with congenital heart disease: validation of the “Baby, Attachment, Comfort Interventions”. Journal of Perinatology 39:12, pages 1640-1647.
Crossref
P. Govindaswamy, S. Laing, D. Waters, K. Walker, K. Spence & N. Badawi. (2019) Needs and stressors of parents of term and near-term infants in the NICU: A systematic review with best practice guidelines. Early Human Development 139, pages 104839.
Crossref
Kathleen R. Ryan, Melissa B. Jones, Kiona Y. Allen, Bradley S. Marino, Frank Casey, Gil Wernovsky & Amy Jo Lisanti. (2019) Neurodevelopmental Outcomes Among Children With Congenital Heart Disease: At-Risk Populations and Modifiable Risk Factors. World Journal for Pediatric and Congenital Heart Surgery 10:6, pages 750-758.
Crossref
Meredith N Bishop, Jensi E Gise, Matthew R Donati, Caitlin E Shneider, Brandon S Aylward & Lindsey L Cohen. (2019) Parenting Stress, Sleep, and Psychological Adjustment in Parents of Infants and Toddlers With Congenital Heart Disease. Journal of Pediatric Psychology 44:8, pages 980-987.
Crossref
Lidija B. McGrath & Adrienne H. Kovacs. (2019) Psychological resilience: Significance for pediatric and adult congenital cardiology. Progress in Pediatric Cardiology 54, pages 101129.
Crossref
Nabeel Al-Yateem, Maria Brenner, Intima Alrimawi, Arwa Al-Shujairi & Sharif Al-Yateem. (2019) Predictors of uncertainty in parents of children living with chronic conditions. Nursing Children and Young People.
Crossref
Chunxiang Qin, Ying Li, Dianjun Wang, Zeya Shi, Rui Yao, Dan Wang & Siyuan Tang. (2018) Maternal factors and preoperative nutrition in children with mild cases of congenital heart disease. Japan Journal of Nursing Science 16:1, pages 37-46.
Crossref
Jo Wray, Amy Cassedy, Michelle M. Ernst, Rodney C. Franklin, Katherine Brown & Bradley S. Marino. (2018) Psychosocial functioning of parents of children with heart disease—describing the landscape. European Journal of Pediatrics 177:12, pages 1811-1821.
Crossref
Lindsey E. Hunter & Anna N. Seale. (2018) EDUCATIONAL SERIES IN CONGENITAL HEART DISEASE: Prenatal diagnosis of congenital heart disease. Echo Research & Practice 5:3, pages R81-R100.
Crossref
Amy J. Lisanti. (2018) Parental stress and resilience in CHD: a new frontier for health disparities research. Cardiology in the Young 28:9, pages 1142-1150.
Crossref
Mary R. (Becky) Gregory, Paula M. Prouhet, Cynthia L. Russell & Brenda R. Pfannenstiel. (2018) Quality of Life for Parents of Children With Congenital Heart Defect. Journal of Cardiovascular Nursing 33:4, pages 363-371.
Crossref
박점미 & 신나연. (2018) Meaning of the Expectation of Childbirth on Primigravida Whose Fetus are Diagnosed with Congenital Heart Disease. JOURNAL OF THE KOREAN SOCIETY OF MATERNAL AND CHILD HEALTH 22:2, pages 77-87.
Crossref
Alun C. Jackson, Rosemary O. Higgins, Erica Frydenberg, Rachel P.-T. Liang & Barbara M. Murphy. (2018) Parent's Perspectives on How They Cope With the Impact on Their Family of a Child With Heart Disease. Journal of Pediatric Nursing 40, pages e9-e17.
Crossref
Claire V.A. van Hövell tot Westerflier, Inge Stegeman, Marvick S.M. Muradin, Adriana L. Smit & Corstiaan C. Breugem. (2018) Parental preferences for the first consultation for microtia. International Journal of Pediatric Otorhinolaryngology 106, pages 10-15.
Crossref
Daisuke Kobayashi, Daniel R. Turner, Thomas J. Forbes & Sanjeev Aggarwal. (2017) Parental anxiety among children undergoing cardiac catheterisation. Cardiology in the Young 28:2, pages 315-321.
Crossref
Valeska Stonawski, Laura Vollmer, Nicola Köhler-Jonas, Nicolas Rohleder, Yulia Golub, Ariawan Purbojo, Gunther H. Moll, Hartmut Heinrich, Robert A. Cesnjevar, Oliver Kratz & Anna Eichler. (2018) Long-term Associations of an Early Corrected Ventricular Septal Defect and Stress Systems of Child and Mother at Primary School Age. Frontiers in Pediatrics 5.
Crossref
Silvio Simeone, Gianluca Pucciarelli, Marco Perrone, Teresa Rea, Gianpaolo Gargiulo, Grazia Dell'Angelo, Assunta Guillari, Giuseppe Comentale, Gaetano Palma & Carlo Vosa. (2017) Comparative Analysis: Implementation of a Pre-operative Educational Intervention to Decrease Anxiety Among Parents of Children With Congenital Heart Disease. Journal of Pediatric Nursing 35, pages 144-148.
Crossref
J. Diffin, K. Spence, T. Naranian, N. Badawi & L. Johnston. (2016) Stress and distress in parents of neonates admitted to the neonatal intensive care unit for cardiac surgery. Early Human Development 103, pages 101-107.
Crossref
Kerry L. Gaskin, David J. Barron & Amanda Daniels. (2016) Parents’ preparedness for their infants’ discharge following first-stage cardiac surgery: development of a parental early warning tool. Cardiology in the Young 26:7, pages 1414-1424.
Crossref
Amy M. O'Connor, Jo Wray, Ryan S. Tomlinson, Amy Cassedy, Jeffrey P. Jacobs, Kathy J. Jenkins, Kate L. Brown, Rodney C. G. Franklin, Lynn Mahony, Kathleen Mussatto, Jane W. Newburger, Gil Wernovsky, Richard F. Ittenbach, Dennis Drotar & Bradley S. Marino. (2016) Impact of Surgical Complexity on Health‐Related Quality of Life in Congenital Heart Disease Surgical Survivors. Journal of the American Heart Association 5:7.
Crossref
Sarah Marokakis, Nadine A. Kasparian & Sean E. Kennedy. (2016) Prenatal counselling for congenital anomalies: a systematic review. Prenatal Diagnosis 36:7, pages 662-671.
Crossref
Elisabeth Bruce, Viveca Lindh & Karin Sundin. (2015) Support for Fathers of Children With Heart Defects. Clinical Nursing Research 25:3, pages 254-272.
Crossref
Claudia Woolf, Frank Muscara, Vicki A. Anderson & Maria C. McCarthy. (2015) Early Traumatic Stress Responses in Parents Following a Serious Illness in Their Child: A Systematic Review. Journal of Clinical Psychology in Medical Settings 23:1, pages 53-66.
Crossref
M. Brenner, S. M. Côté, M. Boivin & R. E. Tremblay. (2015) Severe congenital malformations, family functioning and parents' separation/divorce: a longitudinal study. Child: Care, Health and Development 42:1, pages 16-24.
Crossref
C. McCusker. 2016. Congenital Heart Disease and Neurodevelopment. Congenital Heart Disease and Neurodevelopment 173 186 .
N. Doherty & C. McCusker. 2016. Congenital Heart Disease and Neurodevelopment. Congenital Heart Disease and Neurodevelopment 133 148 .
N. Doherty & E. Utens. 2016. Congenital Heart Disease and Neurodevelopment. Congenital Heart Disease and Neurodevelopment 107 117 .
Holly Wei, Cecelia I. Roscigno, Cherissa C. Hanson & Kristen M. Swanson. (2015) Families of children with congenital heart disease: A literature review. Heart & Lung 44:6, pages 494-511.
Crossref
Mona I. Awaad & Khaled E. Darahim. (2015) Anxiety and depression in the caregivers of children with congenital heart disease. Middle East Current Psychiatry 22:4, pages 179-185.
Crossref
F. Muscara, M.C. McCarthy, C. Woolf, S.J.C. Hearps, K. Burke & V.A. Anderson. (2020) Early psychological reactions in parents of children with a life threatening illness within a pediatric hospital setting. European Psychiatry 30:5, pages 555-561.
Crossref
Alun C. Jackson, Erica Frydenberg, Rachel P.-T. Liang, Rosemary O. Higgins & Barbara M. Murphy. (2015) Familial Impact and Coping with Child Heart Disease: A Systematic Review. Pediatric Cardiology 36:4, pages 695-712.
Crossref
Simone J. Hearps, Maria C. McCarthy, Frank Muscara, Stephen J. C. Hearps, Kylie Burke, Bryn Jones & Vicki A. Anderson. (2013) Psychosocial risk in families of infants undergoing surgery for a serious congenital heart disease. Cardiology in the Young 24:4, pages 632-639.
Crossref
Elisabeth Bruce, Catrine Lilja & Karin Sundin. (2013) Mothers' lived experiences of support when living with young children with congenital heart defects. Journal for Specialists in Pediatric Nursing 19:1, pages 54-67.
Crossref
Janet Diffin, Michael D. Shields, Sharon Cruise & Linda Johnston. (2013) Parents' experiences of caring for their infant following surgery in the neonatal period: A literature review. Journal of Neonatal Nursing 19:5, pages 271-289.
Crossref
Ana M. LeonJoanna WallenbergShannon M. Holliker. (2018) The Impact of Child Congenital Heart Disease on Parents of Very Young Children: Considerations for Social Work Practice. Families in Society: The Journal of Contemporary Social Services 94:2, pages 129-135.
Crossref
Christopher G. McCusker, Nicola N. Doherty, Bernadette Molloy, Nichola Rooney, Connor Mulholland, Andrew Sands, Brian Craig, Moira Stewart & Frank Casey. (2012) A Randomized Controlled Trial of Interventions to Promote Adjustment in Children With Congenital Heart Disease Entering School and Their Families. Journal of Pediatric Psychology 37:10, pages 1089-1103.
Crossref
Josette E.H.M. Hoekstra‐Weebers, Barbara J. Wijnberg‐Williams, Jan P.C. Jaspers, Willem A. Kamps & Harry B.M. van de Wiel. (2011) Coping and its effect on psychological distress of parents of pediatric cancer patients: a longitudinal prospective study. Psycho-Oncology 21:8, pages 903-911.
Crossref
O. Solberg, M. T. Gronning Dale, H. Holmstrom, L. T. Eskedal, M. A. Landolt & M. E. Vollrath. (2012) Trajectories of Maternal Mental Health: A Prospective Study of Mothers of Infants With Congenital Heart Defects From Pregnancy to 36 Months Postpartum. Journal of Pediatric Psychology 37:6, pages 687-696.
Crossref
Ana Fonseca, Bárbara Nazaré & Maria Cristina Canavarro. (2012) Parental psychological distress and quality of life after a prenatal or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy infants. Disability and Health Journal 5:2, pages 67-74.
Crossref
Sharon Laing, Kaye Spence, Catherine McMahon, Judy Ungerer & Nadia Badawi. (2012) Challenges in conducting prospective research of developmentally directed care in surgical neonates: A case study. Early Human Development 88:3, pages 171-178.
Crossref
Kate Alexa Dengler, Valerie Wilson, Sarah Redshaw & Gabrielle Scarfe. (2012) Appreciation of a Child’s Journey: Implementation of a Cardiac Action Research Project. Nursing Research and Practice 2012, pages 1-7.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.