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Original Articles

Who Shall Decide? The Relevance of Theory and Research to Decision-making by People with an Intellectual Disability

Pages 361-375 | Published online: 23 Feb 2007

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (11)

Øyvind Ibrahim Marøy Snipstad. (2019) Democracy or fellowship and participation with peers: what constitutes one’s choice to self-segregate?. European Journal of Special Needs Education 34:3, pages 355-368.
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Jo Watson. (2019) The Role of Speech-Language Pathology in Supporting Legal Capacity. Journal of Clinical Practice in Speech-Language Pathology 21:1, pages 25-28.
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Lucy Knox, Jacinta M. Douglas & Christine Bigby. (2017) “I’ve never been a yes person”: Decision-making participation and self-conceptualization after severe traumatic brain injury. Disability and Rehabilitation 39:22, pages 2250-2260.
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Aila Järvikoski, Jouni Puumalainen & Kristiina Härkäpää. (2015) Client participation in medical rehabilitation for adults with severe disabilities. Scandinavian Journal of Disability Research 17:3, pages 240-257.
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Michelle Browning, Christine Bigby & Jacinta Douglas. (2014) Supported Decision Making: Understanding How its Conceptual Link to Legal Capacity is Influencing the Development of Practice. Research and Practice in Intellectual and Developmental Disabilities 1:1, pages 34-45.
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Anna P. Nieboer, Jane M. Cramm, Birgitha van der Meij & Robbert Huijsman. (2011) Choice processes and satisfaction with care according to parents of children and young adults with intellectual disability in the Netherlands. Journal of Intellectual & Developmental Disability 36:2, pages 127-136.
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W.M.L. Finlay, C. Walton & C. Antaki. (2008) Promoting choice and control in residential services for people with learning disabilities. Disability & Society 23:4, pages 349-360.
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Adrian F. Ashman & Janene Suttie. (1995) Changing existing services for older people with an intellectual disability. Australia and New Zealand Journal of Developmental Disabilities 20:3, pages 189-204.
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Articles from other publishers (44)

Nivedita Ashok, Daniel Hughes & Sarah Yardley. (2023) Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta-ethnography. Palliative Medicine 37:8, pages 1047-1062.
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Vitaly Vladimirovich Popov. (2023) INTERSUJECTIVITY AND INTENTIALITY IN THE SYSTEM OF SUBJECTIVE TIME OF AN INDIVIDUAL WITH LIMITED POSSIBILITIES IN AN INCLUSIVE SOCIETY. INTERSUJECTIVITY AND INTENTIALITY IN THE SYSTEM OF SUBJECTIVE TIME OF AN INDIVIDUAL WITH LIMITED POSSIBILITIES IN AN INCLUSIVE SOCIETY.
Vitaly Popov, Oksana Muzyka & Oksana Kholina. (2023) Intersubjectivity levels in organising everyday social life of individuals with disabilities. E3S Web of Conferences 420, pages 06001.
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Vitaly V. Popov, Oksana A. Muzika & Oksana A. Kholina. 2023. Complex Social Systems in Dynamic Environments. Complex Social Systems in Dynamic Environments 29 37 .
Hille Voss, April Loxton, Julie Anderson & Joanne Watson. (2021) “It was one of those complicated cases”: health practitioners’ perspectives and practices of providing end-of-life care for people with profound intellectual and multiple disability. BMC Palliative Care 20:1.
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Clément Gazza. (2020) L’organisation des activités physiques et sportives à l’Association des Paralysés de France : entre offre d’activités et autodétermination. Staps n° 130:4, pages 43-59.
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Clément Gazza, Anne Marcellini & Nathalie Le Roux. (2020) La participation sociale à l’association des paralysés de France : participation aux activités ou participation aux décisions ?. Alter 14:4, pages 265-285.
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Kristel Vlot-van Anrooij, J Naaldenberg, T I M Hilgenkamp, L Vaandrager, K van der Velden & G L Leusink. (2020) Towards healthy settings for people with intellectual disabilities. Health Promotion International 35:4, pages 661-670.
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Lorraine Smith. 2020. Sexual Crime and Intellectual Functioning. Sexual Crime and Intellectual Functioning 29 57 .
Mary-Ann O’Donovan, Philip McCallion, Darren McCausland & Mary McCarron. 2020. Choice, Preference, and Disability. Choice, Preference, and Disability 303 315 .
M.‐A. O'Donovan, E. Byrne, P. McCallion & M. McCarron. (2017) Measuring choice for adults with an intellectual disability – a factor analysis of the adapted daily choice inventory scale. Journal of Intellectual Disability Research 61:5, pages 471-487.
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Liz Brosnan & Eilionóir Flynn. (2017) Freedom to negotiate: a proposal extricating ‘capacity’ from ‘consent’. International Journal of Law in Context 13:1, pages 58-76.
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Val Williams & Sue Porter. (2015) The Meaning of ‘choice and control’ for People with Intellectual Disabilities who are Planning their Social Care and Support. Journal of Applied Research in Intellectual Disabilities 30:1, pages 97-108.
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Rhiann Jamieson, Kate Theodore & Roman Raczka. (2015) Becoming a mother. Journal of Intellectual Disabilities 20:4, pages 313-328.
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Joanne Watson. (2016) Assumptions of Decision-Making Capacity: The Role Supporter Attitudes Play in the Realisation of Article 12 for People with Severe or Profound Intellectual Disability. Laws 5:1, pages 6.
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Dianne Winkler, Libby Callaway, Sue Sloan & Nadine Holgate. (2016) Everyday Choice Making: Outcomes of Young People with Acquired Brain Injury After Moving from Residential Aged Care to Community-Based Supported Accommodation. Brain Impairment 16:3, pages 221-235.
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Julian Goodwin, Victoria Mason, Val Williams & Ruth Townsley. (2015) Easy Information about research: getting the message out to people with learning disabilities. British Journal of Learning Disabilities 43:2, pages 93-99.
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Val Williams, Lisa Ponting & Kerrie Ford. (2015) A platform for change?. British Journal of Learning Disabilities 43:2, pages 106-113.
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Elizabeth Rushbrooke, Craig D. Murray & Samantha Townsend. (2014) What difficulties are experienced by caregivers in relation to the sexuality of people with intellectual disabilities? A qualitative meta-synthesis. Research in Developmental Disabilities 35:4, pages 871-886.
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Maria T. Timberlake, Walter N. Leutz, Marji Erickson Warfield & Giuseppina Chiri. (2013) “In the Driver’s Seat”: Parent Perceptions of Choice in a Participant-Directed Medicaid Waiver Program for Young Children with Autism. Journal of Autism and Developmental Disorders 44:4, pages 903-914.
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Stefanie Rubbert, Radha Bisnauth & Liz Offen. (2012) Establishing a body awareness group for adults with learning disabilities. British Journal of Learning Disabilities 42:1, pages 43-49.
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A. Hollomotz. (2012) Are We Valuing People's Choices Now? Restrictions to Mundane Choices Made by Adults with Learning Difficulties. British Journal of Social Work 44:2, pages 234-251.
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Lee bok sil. (2013) The Effects of Individual Character and Environmental Character of Adults with Intellectual Disability on Self-Determination - Focusing on Mediating Effect of Opportunity -. Korean Journal of Social Welfare 65:2, pages 5-28.
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Wendy Mitchell. (2012) Parents' accounts: Factors considered when deciding how far to involve their son/daughter with learning disabilities in choice-making. Children and Youth Services Review 34:8, pages 1560-1569.
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Val Williams. 2011. Disability and Discourse. Disability and Discourse 239 250 .
Morag Ferguson, Dominic Jarrett & Melody Terras. (2011) Inclusion and healthcare choices: the experiences of adults with learning disabilities. British Journal of Learning Disabilities 39:1, pages 73-83.
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Lynn Hannon & Julie CliftLynn Hannon & Julie Clift. 2010. General Hospital Care for People with Learning Disabilities. General Hospital Care for People with Learning Disabilities 85 126 .
W. Mick L. Finlay, Charles Antaki & Chris Walton. (2008) A manifesto for the use of video in service improvement and staff development in residential services for people with learning disabilities. British Journal of Learning Disabilities 36:4, pages 227-231.
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C. Antaki, W. Finlay, C. Walton & L. Pate. (2008) Offering choices to people with intellectual disabilities: an interactional study. Journal of Intellectual Disability Research 52:12, pages 1165-1175.
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Treena JingreeW.M.L. Finlay. (2008) 'You can't do it ... it's theory rather than practice': staff use of the practice/principle rhetorical device in talk on empowering people with learning disabilities. Discourse & Society 19:6, pages 705-726.
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W. M. L. Finlay, Charles Antaki & Chris Walton. (2007) Saying no to the staff: an analysis of refusals in a home for people with severe communication difficulties. Sociology of Health & Illness 30:1, pages 55-75.
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W. M. L. Finlay, C. Antaki & C. Walton. (2007) On Not Being Noticed: Intellectual Disabilities and the Nonvocal Register. Intellectual and Developmental Disabilities 45:4, pages 227-245.
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Charles AntakiChris WaltonW.M.L. Finlay. (2016) How proposing an activity to a person with an intellectual disability can imply a limited identity. Discourse & Society 18:4, pages 393-410.
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Lois Cameron & Joan Murphy. (2006) Obtaining consent to participate in research: the issues involved in including people with a range of learning and communication disabilities. British Journal of Learning Disabilities 35:2, pages 113-120.
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Catherine M. Smyth & Dorothy Bell. (2006) From biscuits to boyfriends: the ramifications of choice for people with learning disabilities. British Journal of Learning Disabilities 34:4, pages 227-236.
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Linda Dye, Steve Hendy, Dougal Julian Hare & Mark Burton. (2004) Capacity to consent to participate in research – a recontextualization. British Journal of Learning Disabilities 32:3, pages 144-150.
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Linda Dye, Dougal Hare & Steve Hendy. (2003) Factors Impacting on the Capacity to Consent in People with Learning Disabilities. Tizard Learning Disability Review 8:3, pages 11-20.
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John Harris. (2003) Time to make up your mind: why choosing is difficult. British Journal of Learning Disabilities 31:1, pages 3-8.
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Diane M. BrowderWendy M. Wood, David W. Test, Meagan Karvonen & Bob Algozzine. (2016) Reviewing Resources on Self-Determination. Remedial and Special Education 22:4, pages 233-244.
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Carl Edmonds & Anthony Collins. (2009) Using Social and Educational Approaches to Enable a Man with Learning Disabilities to Develop his Sexual Identity and Orientation. British Journal of Learning Disabilities 27:4, pages 127-131.
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Kirsten Stalker & Philip Harris. (2010) The Exercise of Choice by Adults with Intellectual Disabilities: A Literature Review. Journal of Applied Research in Intellectual Disabilities 11:1, pages 60-76.
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David N Weisstub & Julio Arboleda-Flórez. (2016) Ethical Research with the Developmentally Disabled. The Canadian Journal of Psychiatry 42:5, pages 492-496.
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Deanna J. Sands & Beth Doll. (2016) Fostering Self-Determination is a Developmental Task. The Journal of Special Education 30:1, pages 58-76.
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David Hagner & Joseph Marrone. (2016) Empowerment Issues in Services to Individuals With Disabilities. Journal of Disability Policy Studies 6:2, pages 17-36.
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