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Forum: Original Article

Measuring outcomes in aphasia research: A review of current practice and an agenda for standardisation

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Weisong V. Lai, R.Y.L Tay & S.J. Rickard Liow. (2022) Dyadic conversation training in Mandarin for bilinguals with aphasia and their communication partners. Aphasiology 36:9, pages 1096-1126.
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Catherine Mason & Lyndsey Nickels. (2022) Are single-word picture naming assessments a valid measure of word retrieval in connected speech?. International Journal of Speech-Language Pathology 24:1, pages 97-109.
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W. J. Doedens & L. Meteyard. (2020) Measures of functional, real-world communication for aphasia: a critical review. Aphasiology 34:4, pages 492-514.
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Marian C. Brady, Myzoon Ali, Kathryn VandenBerg, Linda J. Williams, Louise R. Williams, Masahiro Abo, Frank Becker, Audrey Bowen, Caitlin Brandenburg, Caterina Breitenstein, Stefanie Bruehl, David A. Copland, Tamara B. Cranfill, Marie di Pietro-Bachmann, Pamela Enderby, Joanne Fillingham, Federica Lucia Galli, Marialuisa Gandolfi, Bertrand Glize, Erin Godecke, Neil Hawkins, Katerina Hilari, Jacqueline Hinckley, Simon Horton, David Howard, Petra Jaecks, Elizabeth Jefferies, Luis M. T. Jesus, Maria Kambanaros, Eun Kyoung Kang, Eman M. Khedr, Anthony Pak-Hin Kong, Tarja Kukkonen, Marina Laganaro, Matthew A. Lambon Ralph, Ann Charlotte Laska, Béatrice Leemann, Alexander P. Leff, Roxele R. Lima, Antje Lorenz, Brian MacWhinney, Rebecca Shisler Marshall, Flavia Mattioli, İlknur Maviş, Marcus Meinzer, Reza Nilipour, Enrique Noé, Nam-Jong Paik, Rebecca Palmer, Ilias Papathanasiou, Brigida F. Patricio, Isabel Pavão Martins, Cathy Price, Tatjana Prizl Jakovac, Elizabeth Rochon, Miranda L. Rose, Charlotte Rosso, Ilona Rubi-Fessen, Marina B. Ruiter, Claerwen Snell, Benjamin Stahl, Jerzy P. Szaflarski, Shirley A. Thomas, Mieke van de Sandt-Koenderman, Ineke van der Meulen, Evy Visch-Brink, Linda Worrall & Heather Harris Wright. (2020) RELEASE: a protocol for a systematic review based, individual participant data, meta- and network meta-analysis, of complex speech-language therapy interventions for stroke-related aphasia. Aphasiology 34:2, pages 137-157.
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Jessica D. Richardson & Sarah Grace Hudspeth Dalton. (2020) Main concepts for two picture description tasks: an addition to Richardson and Dalton, 2016. Aphasiology 34:1, pages 119-136.
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Elise Elbourn, Belinda Kenny, Emma Power, Cynthia Honan, Skye McDonald, Robyn Tate, Audrey Holland, Brian MacWhinney & Leanne Togher. (2019) Discourse recovery after severe traumatic brain injury: exploring the first year. Brain Injury 33:2, pages 143-159.
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Sue Franklin, Dearbhla Harhen, Michelle Hayes, Sasha Demos Mc Manus & Alex Pollock. (2018) Top 10 research priorities relating to aphasia following stroke. Aphasiology 32:11, pages 1388-1395.
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C. Saldert, L. R. Jensen, M. Blom Johansson & N. Simmons-Mackie. (2018) Complexity in measuring outcomes after communication partner training: alignment between goals of intervention and methods of evaluation. Aphasiology 32:10, pages 1167-1193.
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Swathi Kiran, Leora R. Cherney, Aura Kagan, Katarina L. Haley, Sharon M Antonucci, Myrna Schwartz, Audrey L Holland & Nina Simmons-Mackie. (2018) Aphasia assessments: a survey of clinical and research settings. Aphasiology 32:sup1, pages 47-49.
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Aimee Dietz & Mary Boyle. (2018) Discourse measurement in aphasia: consensus and caveats. Aphasiology 32:4, pages 487-492.
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Sarah J Wallace, Linda E Worrall, Tanya Rose & Guylaine Le Dorze. (2018) Discourse measurement in aphasia research: have we reached the tipping point? A core outcome set … or greater standardisation of discourse measures?. Aphasiology 32:4, pages 479-482.
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Aimee Dietz & Mary Boyle. (2018) Discourse measurement in aphasia research: have we reached the tipping point?. Aphasiology 32:4, pages 459-464.
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Laura L. Pitts, Rosalind Hurwitz, Jaime B. Lee, Julia Carpenter & Leora R. Cherney. (2018) Validity, reliability and sensitivity of the NORLA-6: Naming and oral reading for language in aphasia 6-point scale. International Journal of Speech-Language Pathology 20:2, pages 274-283.
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Michelle C. Attard, Yasmine Loupis, Leanne Togher & Miranda L. Rose. (2018) The efficacy of an inter-disciplinary community aphasia group for living well with aphasia. Aphasiology 32:2, pages 105-138.
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Caitlin Pike, Alta Kritzinger & Bhavani Pillay. (2017) Social participation in working-age adults with aphasia: an updated systematic review. Topics in Stroke Rehabilitation 24:8, pages 627-639.
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Sarah J. Wallace, Linda Worrall, Tanya Rose, Guylaine Le Dorze, Madeline Cruice, Jytte Isaksen, Anthony Pak Hin Kong, Nina Simmons-Mackie, Nerina Scarinci & Christine Alary Gauvreau. (2017) Which outcomes are most important to people with aphasia and their families? an international nominal group technique study framed within the ICF. Disability and Rehabilitation 39:14, pages 1364-1379.
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Sarah J. Wallace, Linda Worrall, Tanya Rose & Guylaine Le Dorze. (2017) Which treatment outcomes are most important to aphasia clinicians and managers? An international e-Delphi consensus study. Aphasiology 31:6, pages 643-673.
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Lisa H. Milman$suffix/text()$suffix/text(). (2015) Cognitive interventions for Primary Progressive Aphasia: Promising initial results highlight the need for more systematic research targeting impairment, function, and quality of life. Evidence-Based Communication Assessment and Intervention 9:4, pages 127-133.
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William D. Hula, Gerasimos Fergadiotis & Patrick J. Doyle. (2014) A core outcome set for aphasia treatment research: Obstacles, risks, and benefits. Aphasiology 28:11, pages 1396-1399.
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Brian MacWhinney. (2014) Challenges facing COS development for aphasia. Aphasiology 28:11, pages 1393-1395.
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Marian C. Brady, Myzoon Ali, Chrysovalantis Fyndanis, Maria Kambanaros, Kleanthes K. Grohmann, Anne-Charlotte Laska, Carlos Hernández-Sacristán & Spyridoula Varlokosta. (2014) Time for a step change? Improving the efficiency, relevance, reliability, validity and transparency of aphasia rehabilitation research through core outcome measures, a common data set and improved reporting criteria. Aphasiology 28:11, pages 1385-1392.
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Lisa H. Milman$suffix/text()$suffix/text(). (2014) Therapy for auditory processing impairment in aphasia: More data revealed, more questions to ask. Evidence-Based Communication Assessment and Intervention 8:4, pages 163-170.
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Articles from other publishers (20)

W.J. Doedens & L. Meteyard. (2022) What is Functional Communication? A Theoretical Framework for Real-World Communication Applied to Aphasia Rehabilitation. Neuropsychology Review 32:4, pages 937-973.
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Jessica D. Veldhuizen, Marieke J. Schuurmans, Misja C. Mikkers & Nienke Bleijenberg. (2022) Exploring nurse‐sensitive patient outcomes in Dutch district nursing care: A survey study. Health & Social Care in the Community 30:6.
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Sarah E. Wallace, Janet Patterson, Mary Purdy, Kelly Knollman-Porter & Patrick Coppens. (2022) Auditory Comprehension Interventions for People With Aphasia: A Scoping Review. American Journal of Speech-Language Pathology 31:5S, pages 2404-2420.
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Carla Tierney-Hendricks, Megan E. Schliep & Sofia Vallila-Rohter. (2022) Using an Implementation Framework to Survey Outcome Measurement and Treatment Practices in Aphasia. American Journal of Speech-Language Pathology 31:3, pages 1133-1162.
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Lauren Bislick, Aimee Dietz, E. Susan Duncan, Pilar Garza, Rachel Gleason, Dana Harley, Greg Kersey, Terri Kersey, Chitrali R. Mamlekar, Michael J. McCarthy, Vicki Noe, Deanna Rushlow, J. Chase Rushlow & Stephanie Van Allan. (2022) Finding “Zen” in Aphasia: The Benefits of Yoga as Described by Key Stakeholders. American Journal of Speech-Language Pathology 31:1, pages 133-147.
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Louisa B. Suting & Jennifer Mozeiko. (2021) Analysis of Real-World Language Use in a Person With Wernicke's Aphasia. Perspectives of the ASHA Special Interest Groups 6:3, pages 553-565.
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Catherine Mason, Lyndsey Nickels & Belinda McDonald. (2020) An Exploration of the Impact of Group Treatment for Aphasia on Connected Speech. Journal of the International Neuropsychological Society 26:1, pages 72-85.
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Marion C. Leaman & Lisa A. Edmonds. (2019) Revisiting the Correct Information Unit: Measuring Informativeness in Unstructured Conversations in People With Aphasia. American Journal of Speech-Language Pathology 28:3, pages 1099-1114.
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Natalie Gilmore, Michaela Dwyer & Swathi Kiran. (2019) Benchmarks of Significant Change After Aphasia Rehabilitation. Archives of Physical Medicine and Rehabilitation 100:6, pages 1131-1139.e87.
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Sarah J Wallace, Linda Worrall, Tanya Rose, Guylaine Le Dorze, Caterina Breitenstein, Katerina Hilari, Edna Babbitt, Arpita Bose, Marian Brady, Leora R. Cherney, David Copland, Madeline Cruice, Pam Enderby, Deborah Hersh, Tami Howe, Helen Kelly, Swathi Kiran, Ann-Charlotte Laska, Jane Marshall, Marjorie Nicholas, Janet Patterson, Gill Pearl, Elizabeth Rochon, Miranda Rose, Karen Sage, Steven Small & Janet Webster. (2018) A core outcome set for aphasia treatment research: The ROMA consensus statement. International Journal of Stroke 14:2, pages 180-185.
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Madeleine Pritchard, Katerina Hilari, Naomi Cocks & Lucy Dipper. (2018) Psychometric properties of discourse measures in aphasia: acceptability, reliability, and validity. International Journal of Language & Communication Disorders 53:6, pages 1078-1093.
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Gert Kwakkel, Natasha A. Lannin, Karen Borschmann, Coralie English, Myzoon Ali, Leonid Churilov, Gustavo Saposnik, Carolee Winstein, Erwin E. H. van Wegen, Steven L. Wolf, John W. Krakauer & Julie Bernhardt. (2017) Standardized Measurement of Sensorimotor Recovery in Stroke Trials: Consensus-Based Core Recommendations from the Stroke Recovery and Rehabilitation Roundtable. Neurorehabilitation and Neural Repair 31:9, pages 784-792.
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Gert Kwakkel, Natasha A Lannin, Karen Borschmann, Coralie English, Myzoon Ali, Leonid Churilov, Gustavo Saposnik, Carolee Winstein, Erwin EH van Wegen, Steven L Wolf, John W Krakauer & Julie Bernhardt. (2017) Standardized measurement of sensorimotor recovery in stroke trials: Consensus-based core recommendations from the Stroke Recovery and Rehabilitation Roundtable. International Journal of Stroke 12:5, pages 451-461.
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Femke Nouwens, Lonneke ML de Lau, Evy G Visch-Brink, WME (Mieke) van de Sandt-Koenderman, Hester F Lingsma, Sylvia Goosen, Dineke MJ Blom, Peter J Koudstaal & Diederik WJ Dippel. (2017) Efficacy of early cognitive-linguistic treatment for aphasia due to stroke: A randomised controlled trial (Rotterdam Aphasia Therapy Study-3). European Stroke Journal 2:2, pages 126-136.
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Sarah J. Wallace, Linda Worrall, Tanya Rose & Guylaine Le Dorze. (2016) Core Outcomes in Aphasia Treatment Research: An e-Delphi Consensus Study of International Aphasia Researchers. American Journal of Speech-Language Pathology 25:4S.
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Nina Simmons-Mackie, Anastasia Raymer & Leora R. Cherney. (2016) Communication Partner Training in Aphasia: An Updated Systematic Review. Archives of Physical Medicine and Rehabilitation 97:12, pages 2202-2221.e8.
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Karen Borschmann & Elizabeth A Lynch. (2016) Understanding patients' rehabilitation requirements after stroke—are we there yet?. International Journal of Therapy and Rehabilitation 23:Sup11, pages S534-S535.
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Jane Marshall, Tracey Booth, Niamh Devane, Julia Galliers, Helen Greenwood, Katerina Hilari, Richard Talbot, Stephanie Wilson & Celia Woolf. (2016) Evaluating the Benefits of Aphasia Intervention Delivered in Virtual Reality: Results of a Quasi-Randomised Study. PLOS ONE 11:8, pages e0160381.
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Linda Worrall & Sarah Wallace. (2015) The ICF, Relationship-Centred Care and Research Outcome Measurement: Carol Frattali's Impact on Aphasia Research. Perspectives on Neurophysiology and Neurogenic Speech and Language Disorders 25:3, pages 107-113.
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Katerina Hilari, Madeline Cruice, Riva Sorin-Peters & Linda Worrall. (2015) Quality of Life in Aphasia: State of the Art. Folia Phoniatrica et Logopaedica 67:3, pages 114-118.
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