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Articles

In their own words: developing the Parent Experiences Questionnaire following neonatal brain injury using participatory design

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Pages 1386-1396 | Received 17 Jan 2018, Accepted 28 Jun 2018, Published online: 17 Jul 2018

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Read on this site (8)

Tricia S. Williams, Brittany Burek, Angela Deotto, Meghan K. Ford, Rivka Green & Shari L. Wade. (2022) Pandemic Perils and Promise: Implementation of a Virtual Parenting Intervention during COVID-19 among Children with Early Neurological Conditions. Developmental Neurorehabilitation 25:8, pages 505-517.
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Tricia S. Williams, Angela Deotto, Samantha D. Roberts, Meghan K. Ford, Naddley Désiré & Sarah Cunningham. (2022) COVID-19 mental health impact among children with early brain injury and associated conditions. Child Neuropsychology 28:5, pages 627-648.
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Samantha D. Roberts, Vanna Kazazian, Meghan K. Ford, Davide Marini, Steven P. Miller, Vann Chau, Michael Seed, Linh G. Ly, Tricia S. Williams & Renee Sananes. (2021) The association between parent stress, coping and mental health, and neurodevelopmental outcomes of infants with congenital heart disease. The Clinical Neuropsychologist 35:5, pages 948-972.
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Shruti S. Vyas, Meghan K. Ford, Emily W. Y. Tam, Robyn Westmacott, Renee Sananes, Ranit Beck & Tricia S. Williams. (2021) Intervention experiences among children with congenital and neonatal conditions impacting brain development: patterns of service utilization, barriers and future directions. The Clinical Neuropsychologist 35:5, pages 1009-1029.
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Ashley Danguecan, Amr I. El Shahed, Emily Somerset, Chun-Po Steve Fan, Linh G. Ly & Tricia Williams. (2021) Towards a biopsychosocial understanding of neurodevelopmental outcomes in children with hypoxic-ischemic encephalopathy: A mixed-methods study. The Clinical Neuropsychologist 35:5, pages 925-947.
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Brittany Burek, Meghan K. Ford, Marie Hooper, Rivka Green, Sara Ahola Kohut, Brendan F. Andrade, Monidipa Ravi, Renee Sananes, Mary Desrocher, Steven P. Miller, Shari L. Wade & Tricia S. Williams. (2021) Transdiagnostic feasibility trial of internet-based parenting intervention to reduce child behavioural difficulties associated with congenital and neonatal neurodevelopmental risk: introducing I-InTERACT-North. The Clinical Neuropsychologist 35:5, pages 1030-1052.
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Rachel K. Peterson, Tricia Williams, Nomazulu Dlamini & Robyn Westmacott. (2021) Parent experiences and developmental outcomes following neonatal stroke. The Clinical Neuropsychologist 35:5, pages 973-987.
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Articles from other publishers (10)

Angela Deotto, Giulia F Fabiano, Beryl Y T Chung, Shari L Wade, Evdokia Anagnostou, Jennifer Crosbie, Elizabeth Kelley, Rob Nicolson, Brendan F Andrade, Steven P Miller & Tricia S Williams. (2023) Stepping up to COVID-19: A Clinical Trial of a Telepsychology Positive Parenting Program Targeting Behavior Problems in Children With Neurological Risk. Journal of Pediatric Psychology 48:6, pages 523-536.
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Meghan K. Ford, Samantha D. Roberts, Brendan F. Andrade, Mary Desrocher, Shari L. Wade, Sara Ahola Kohut & Tricia S. Williams. (2022) Building I-INTERACT-North: Participatory Action Research Design of an Online Transdiagnostic Parent–Child Interaction Therapy Program to Optimize Congenital and Neurodevelopmental Risk. Journal of Clinical Psychology in Medical Settings 30:1, pages 204-215.
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Bronwyn Lamond, Samantha D Roberts, Steven P Miller, Shari L Wade & Tricia S Williams. (2022) Psychosocial Intervention Outcomes for Children with Congenital and Neonatal Conditions: Systematic Review. Journal of Pediatric Psychology 47:9, pages 1003-1018.
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Nadine A. Kasparian, Anjali Sadhwani, Renee Sananes, Elizabeth Blumenfeld, Jennifer L. Butcher, Adam R. Cassidy, Stephany M. Cox, Joslyn Kenowitz, Thomas A. Miller, Jacqueline H. Sanz, Kelly R. Wolfe & Dawn Ilardi. (2022) Telehealth services for cardiac neurodevelopmental care during the COVID-19 pandemic: a site survey from the Cardiac Neurodevelopmental Outcome Collaborative. Cardiology in the Young, pages 1-8.
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Dainelys Garcia, Gabriela M Rodríguez, Nicole E Lorenzo, Jennifer Coto, Angela Blizzard, Alina Farias, Nicholas David W Smith, John Kuluz & Daniel M Bagner. (2021) Intensive Parent–Child Interaction Therapy for Children with Traumatic Brain Injury: Feasibility Study. Journal of Pediatric Psychology 46:7, pages 844-855.
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Cindy Leal Martins, Stéphane Chabrier & Joel Fluss. (2021) Recognition, identification, and diagnosis announcement of neonatal arterial ischemic stroke: A combined exploratory quantitative and qualitative study on parents’ lived experiences. Archives de Pédiatrie 28:4, pages 285-290.
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Noha Gomaa & Steven P Miller. (2021) Intraventricular haemorrhage in preterm children: viewing longer term with a wider lens. Archives of Disease in Childhood - Fetal and Neonatal Edition 106:1, pages 2-3.
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Kyla P McDonald, Jennifer Connolly, Samantha D Roberts, Meghan K Ford, Robyn Westmacott, Nomazulu Dlamini, Emily W Y Tam & Tricia Williams. (2020) The Response to Stress Questionnaire for Parents Following Neonatal Brain Injury. Journal of Pediatric Psychology 45:9, pages 1005-1015.
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Tricia S Williams, Kyla P McDonald, Samantha D Roberts, Vann Chau, Mike Seed, Steven P Miller & Renee Sananes. (2019) From Diagnoses to Ongoing Journey: Parent Experiences Following Congenital Heart Disease Diagnoses. Journal of Pediatric Psychology 44:8, pages 924-936.
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Dalit Cayam-Rand & Steven P. Miller. (2018) Commentary on “The long-term effect of perinatal asphyxia on hippocampal volumes”. Pediatric Research 85:1, pages 9-10.
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