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Original Articles

Preschoolers with autism spectrum disorders: the impact on families and the supports available to them

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Pages 115-128 | Published online: 11 Jan 2008

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (11)

Nilushini Kasilingam, Hannah Waddington & Larah Van Der Meer. (2021) Early Intervention for Children with Autism Spectrum Disorder in New Zealand: What Children Get and What Parents Want. International Journal of Disability, Development and Education 68:4, pages 521-537.
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Angela Sim, Sharmila Vaz, Reinie Cordier, Annette Joosten, Dave Parsons, Cally Smith & Torbjörn Falkmer. (2018) Factors associated with stress in families of children with autism spectrum disorder. Developmental Neurorehabilitation 21:3, pages 155-165.
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Louise D. Denne, Richard P. Hastings & Carl J. Hughes. (2018) Common approaches to intervention for the support and education of children with autism in the UK: an internet-based parent survey. International Journal of Developmental Disabilities 64:2, pages 105-112.
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Micaela Connolly & Irvine Gersch. (2016) Experiences of parents whose children with autism spectrum disorder (ASD) are starting primary school. Educational Psychology in Practice 32:3, pages 245-261.
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Ting-Yi Li & Jin-Ling Lo. (2016) The predictors of uncertainty in mothers of children with autism spectrum disorder. Children's Health Care 45:2, pages 147-164.
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Colette Gray & Joanne Donnelly. (2013) Unheard voices: the views of traveller and non-traveller mothers and children with ASD. International Journal of Early Years Education 21:4, pages 268-285.
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Roy McConkey & Sayyed Ali Samadi. (2013) The impact of mutual support on Iranian parents of children with an autism spectrum disorder: a longitudinal study. Disability and Rehabilitation 35:9, pages 775-784.
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Roy McConkey, Audrey Mullan & Jackie Addis. (2012) Promoting the social inclusion of children with autism spectrum disorders in community groups. Early Child Development and Care 182:7, pages 827-835.
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ChristopherE. Nealy, Lindsey O'Hare, JoelleD. Powers & DanielleC. Swick. (2012) The Impact of Autism Spectrum Disorders on the Family: A Qualitative Study of Mothers’ Perspectives. Journal of Family Social Work 15:3, pages 187-201.
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Roy McConkey, Sue MacLeod & Arlene Cassidy. (2011) The Keyhole® Rainbow Resource Kit: meeting the needs of parents of newly diagnosed preschoolers with ASD. Early Child Development and Care 181:3, pages 321-334.
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Kay Bradford. (2010) Brief Education About Autism Spectrum Disorders for Family Therapists. Journal of Family Psychotherapy 21:3, pages 161-179.
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Articles from other publishers (43)

Kristen T. MacKenzie, Mario J. Crown, Jessie B. Northrup, Elizabeth Rutenberg, Amy G. Hartman & Carla A. Mazefsky. (2024) Correlates of Impairment and Growth in Families of Young Autistic Children. Journal of Autism and Developmental Disorders.
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Gabriel Martínez-Rico, Cecilia Simón, Margarita Cañadas & Robin Mcwilliam. (2022) Support Networks and Family Empowerment in Early Intervention. International Journal of Environmental Research and Public Health 19:4, pages 2001.
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Emily R. Shamash & Jocelyn A. Hinman. (2021) Assessing Caregiver Stress and Coping at Time of Autism Spectrum Disorder Diagnosis. Early Childhood Education Journal 50:1, pages 97-106.
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Anjana Bhat. (2021) Analysis of the SPARK study COVID ‐19 parent survey: Early impact of the pandemic on access to services, child/parent mental health, and benefits of online services . Autism Research 14:11, pages 2454-2470.
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Sudha Srinivasan, Annalisa Ekbladh, Brian Freedman & Anjana Bhat. (2021) Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware. Autism Research 14:8, pages 1736-1758.
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Suzi J. Sapiets, Vasiliki Totsika & Richard P. Hastings. (2020) Factors influencing access to early intervention for families of children with developmental disabilities: A narrative review. Journal of Applied Research in Intellectual Disabilities 34:3, pages 695-711.
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Jessica L. Fuller & Elizabeth A. Fitter. (2020) Mindful Parenting: A Behavioral Tool for Parent Well-Being. Behavior Analysis in Practice 13:4, pages 767-771.
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Sahar Mohammed Taresh, Nor Aniza Ahmad, Samsilah Roslan & Aini Marina Ma’rof. (2020) Preschool Teachers’ Beliefs towards Children with Autism Spectrum Disorder (ASD) in Yemen. Children 7:10, pages 170.
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Avsar Ardic. (2020) Relationship between Parental Burnout Level and Perceived Social Support Levels of Parents of Children with Autism Spectrum Disorder. International Journal of Educational Methodology 6:3, pages 533-543.
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Yong-Hwee Nah. (2020) Pre-school teachers’ perceptions of challenging behaviours of students with autism spectrum disorder within inclusive settings. Advances in Autism 6:3, pages 205-214.
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Halil SAROL, İsmail AYDIN, İbrahim GÜMÜŞBOĞA, Hamdi Alper GÜNGÖRMÜŞ & Yusuf ALICI. (2020) OTİZMLİ ÇOCUĞA SAHİP EBEVEYN PERSPEKTİFİ İLE SERBEST ZAMAN VE FİZİKSEL AKTİVİTE. Ankara Üniversitesi Beden Eğitimi ve Spor Yüksekokulu SPORMETRE Beden Eğitimi ve Spor Bilimleri Dergisi 18:1, pages 144-155.
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Sahar Taresh, Nor Aniza Ahmad, Samsilah Roslan, Aini Marina Ma’rof & Sumaia Zaid. (2020) Pre-School Teachers’ Knowledge, Belief, Identification Skills, and Self-Efficacy in Identifying Autism Spectrum Disorder (ASD): A Conceptual Framework to Identify Children with ASD. Brain Sciences 10:3, pages 165.
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Marion Rutherford, Julie Baxter, Zoe Grayson, Lorna Johnston & Anne O’Hare. (2019) Visual supports at home and in the community for individuals with autism spectrum disorders: A scoping review. Autism 24:2, pages 447-469.
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Janice E. Kilburn & Cheri J. Shapiro. (2018) The Structure and Function of Social Networks of Mothers of Young Children With Disabilities. Topics in Early Childhood Special Education 39:4, pages 250-259.
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Bernadette Kirkpatrick, Shawn P. Gilroy & Geraldine Leader. (2019) Qualitative study on parents’ perspectives of the familial impact of living with a child with autism spectrum disorder who experiences insomnia. Sleep Medicine 62, pages 59-68.
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Hilal ÇELİK & Halil EKŞİ. (2018) Mothers’ Reflections of Ambiguous-Loss on Personal Family Functioning in Families with Autistic-ChildrenÇocuğu Otizm Tanısı Alan Annelerin Deneyimledikleri Belirsiz Kaybın Aile İşlevselliklerine Yansımaları. Ankara Üniversitesi Eğitim Bilimleri Fakültesi Özel Eğitim Dergisi 19:4, pages 723-745.
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David Lansing Cameron. (2018) Barriers to Parental Empowerment in the Context of Multidisciplinary Collaboration on Behalf of Preschool Children with Disabilities. Scandinavian Journal of Disability Research 20:1, pages 277-285.
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Cahit NURİ, Omaç RÜŞTİOĞLU & Ülkü PİŞKİN ABİDOĞLU. (2018) The Problems of The Families Who Have Autistic Children: A Qualitative ResearchOtizmli Çocuğu olan Ailelerin Yaşadığı Sorunlar: Niteliksel Bir Araştırma. Yaşam Becerileri Psikoloji Dergisi 2:3, pages 97-111.
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Eija Häyrynen, Kaarina Määttä, Tanja Äärelä & Satu Uusiautti. (2018) “There are not enough hours in a day to do everything”: Parents’ descriptions of everyday life with a child with severe physical disability. International Journal of Research Studies in Education 8:1.
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Alexandra M. Petrou, Abigail Soul, Beena Koshy, Helen McConachie & Jeremy R. Parr. (2018) The impact on the family of the co‐existing conditions of children with autism spectrum disorder. Autism Research 11:5, pages 776-787.
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Kristen N. Dovgan & Micah O. Mazurek. (2017) Differential Effects of Child Difficulties on Family Burdens across Diagnostic Groups. Journal of Child and Family Studies 27:3, pages 872-884.
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Rosa Vilaseca, Marta Gràcia, Francesc S. Beltran, Mariona Dalmau, Elisabeth Alomar, Ana Luisa Adam‐Alcocer & David Simó‐Pinatella. (2015) Needs and Supports of People with Intellectual Disability and Their Families in Catalonia. Journal of Applied Research in Intellectual Disabilities 30:1, pages 33-46.
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Phil Reed, Lucy Picton, Nicole Grainger & Lisa Osborne. (2016) Impact of Diagnostic Practices on the Self-Reported Health of Mothers of Recently Diagnosed Children with ASD. International Journal of Environmental Research and Public Health 13:9, pages 888.
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Yun-Ju Hsiao. (2016) Pathways to mental health-related quality of life for parents of children with autism spectrum disorder: roles of parental stress, children’s performance, medical support, and neighbor support. Research in Autism Spectrum Disorders 23, pages 122-130.
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Roma A. VasaMicah O. MazurekRajneesh MahajanAmanda E. BennettMaria Pilar BernalAlixandra A. Nozzolillo, L. Eugene Arnold & Daniel L. Coury. (2016) Assessment and Treatment of Anxiety in Youth With Autism Spectrum Disorders. Pediatrics 137:Supplement_2, pages S115-S123.
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Erica Salomone, Štěpánka Beranová, Frédérique Bonnet-Brilhault, Marlene Briciet Lauritsen, Magdalena Budisteanu, Jan Buitelaar, Ricardo Canal-Bedia, Gabriella Felhosi, Sue Fletcher-Watson, Christine Freitag, Joaquin Fuentes, Louise Gallagher, Patricia Garcia Primo, Fotinica Gliga, Marie Gomot, Jonathan Green, Mikael Heimann, Sigridur Loa Jónsdóttir, Anett Kaale, Rafal Kawa, Anneli Kylliainen, Sanne Lemcke, Silvana Markovska-Simoska, Peter B Marschik, Helen McConachie, Irma Moilanen, Filippo Muratori, Antonio Narzisi, Michele Noterdaeme, Guiomar Oliveira, Iris Oosterling, Mirjam Pijl, Nada Pop-Jordanova, Luise Poustka, Herbert Roeyers, Bernadette Rogé, Judith Sinzig, Astrid Vicente, Petra Warreyn & Tony Charman. (2015) Use of early intervention for young children with autism spectrum disorder across Europe. Autism 20:2, pages 233-249.
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Marie Robert, Line Leblanc & Thierry Boyer. (2014) When satisfaction is not directly related to the support services received: understanding parents' varied experiences with specialised services for children with developmental disabilities. British Journal of Learning Disabilities 43:3, pages 168-177.
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Michael Saini, Kevin P. Stoddart, Margaret Gibson, Rae Morris, Deborah Barrett, Barbara Muskat, David Nicholas, Glenn Rampton & Lonnie Zwaigenbaum. (2015) Couple relationships among parents of children and adolescents with Autism Spectrum Disorder: Findings from a scoping review of the literature. Research in Autism Spectrum Disorders 17, pages 142-157.
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Mélina Rivard, Anabel Lépine, Céline Mercier & Marjorie Morin. (2014) Quality Determinants of Services for Parents of Young Children with Autism Spectrum Disorders. Journal of Child and Family Studies 24:8, pages 2388-2397.
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Helen McConachie, Jeremy R Parr, Magdalena Glod, Jennifer Hanratty, Nuala Livingstone, Inalegwu P Oono, Shannon Robalino, Gillian Baird, Bryony Beresford, Tony Charman, Deborah Garland, Jonathan Green, Paul Gringras, Glenys Jones, James Law, Ann S Le Couteur, Geraldine Macdonald, Elaine M McColl, Christopher Morris, Jacqueline Rodgers, Emily Simonoff, Caroline B Terwee & Katrina Williams. (2015) Systematic review of tools to measure outcomes for young children with autism spectrum disorder. Health Technology Assessment 19:41, pages 1-506.
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Mickey Keenan, Karola Dillenburger, Hanns Rüdiger Röttgers, Katerina Dounavi, Sigríður Lóa Jónsdóttir, Paolo Moderato, Jacqueline J. A. M. Schenk, Javier Virués-Ortega, Lise Roll-Pettersson & Neil Martin. (2014) Autism and ABA: The Gulf Between North America and Europe. Review Journal of Autism and Developmental Disorders 2:2, pages 167-183.
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Sarah Carlon, Jennifer Stephenson & Mark Carter. (2014) Parent Reports of Treatments and Interventions Used With Children With Autism Spectrum Disorders (ASD): A Review of the Literature. Australasian Journal of Special Education 38:1, pages 63-90.
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Louise Burgoyne, Lisa Dowling, Anthony Fitzgerald, Micaela Connolly, John P Browne & Ivan J Perry. (2014) Parents’ perspectives on the value of assistance dogs for children with autism spectrum disorder: a cross-sectional study. BMJ Open 4:6, pages e004786.
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J. Xue, J. Ooh & I. Magiati. (2013) Family functioning in A sian families raising children with autism spectrum disorders: the role of capabilities and positive meanings . Journal of Intellectual Disability Research 58:5, pages 406-420.
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Laurie M. Jeans, Rosa Milagros Santos, Daniel J. Laxman, Brent A. McBride & W. Justin Dyer. (2013) Examining ECLS-B. Topics in Early Childhood Special Education 33:3, pages 162-171.
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Michelle Beer, Lynn Ward & Kathryn Moar. (2013) The Relationship Between Mindful Parenting and Distress in Parents of Children with an Autism Spectrum Disorder. Mindfulness 4:2, pages 102-112.
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Hilary K. Brown, Hélène Ouellette‐Kuntz, Duncan Hunter, Elizabeth Kelley & Virginie Cobigo. (2012) Unmet Needs of Families of School‐Aged Children with an Autism Spectrum Disorder. Journal of Applied Research in Intellectual Disabilities 25:6, pages 497-508.
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Moderator: Bill FergusonParticipants: Cay Anderson-HanleyMicah O. MazurekSarah ParsonsZachary Warren. (2012) Game Interventions for Autism Spectrum Disorder. Games for Health Journal 1:4, pages 248-253.
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Hilary K. Brown, Hélène Ouellette-Kuntz, Duncan Hunter, Elizabeth Kelley, Virginie Cobigo & Miu Lam. (2010) Beyond an Autism Diagnosis: Children’s Functional Independence and Parents’ Unmet Needs. Journal of Autism and Developmental Disorders 41:10, pages 1291-1302.
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Hilary K. Brown, Hélène Ouellette-Kuntz, Duncan Hunter & Elizabeth Kelley. (2010) Assessing need in school-aged children with an autism spectrum disorder. Research in Autism Spectrum Disorders 4:4, pages 539-547.
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Jaclyn R. MacFarlane & Tomoe Kanaya. (2009) What Does it Mean to be Autistic? Inter-state Variation in Special Education Criteria for Autism Services. Journal of Child and Family Studies 18:6, pages 662-669.
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Frances de L. Martínez-Pedraza & Alice S. Carter. (2009) Autism Spectrum Disorders in Young Children. Child and Adolescent Psychiatric Clinics of North America 18:3, pages 645-663.
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Roy McConkey, Maria Truesdale‐Kennedy & Arlene Cassidy. (2009) Mothers’ Recollections of Early Features of Autism Spectrum Disorders. Child and Adolescent Mental Health 14:1, pages 31-36.
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