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Original Articles

Does the covert nature of caring prohibit the development of effective services for young carers?

Pages 229-246 | Published online: 17 Jun 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (10)

Agnes Leu, Elena Guggiari, Daniel Phelps, Lennart Magnusson, Henk Herman Nap, Renske Hoefman, Feylyn Lewis, Sara Santini, Marco Socci, Licia Boccaletti, Valentina Hlebec, Tatjana Rakar, Tjaša Hudobivnik & Elizabeth Hanson. (2022) Cross-national Analysis of Legislation, Policy and Service Frameworks for Adolescent Young Carers in Europe. Journal of Youth Studies 25:9, pages 1215-1235.
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Gemma Gough & Anthea Gulliford. (2020) Resilience amongst young carers: investigating protective factors and benefit-finding as perceived by young carers. Educational Psychology in Practice 36:2, pages 149-169.
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Fitsum Areguy, Steven E. Mock, Andrea Breen, Tricia Van Rhijn, Kimberley Wilson & Donna S. Lero. (2019) Communal Orientation, Benefit-finding, and Coping among Young Carers. Child & Youth Services 40:4, pages 363-382.
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Yana Lakman & Heather Chalmers. (2019) Psychosocial comparison of carers and noncarers. Child & Youth Services 40:2, pages 200-219.
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Mikael Elf, Ingela Skärsäter & Barbro Krevers. (2011) ‘The web is not enough, it's a base’ – an explorative study of what needs a web-based support system for young carers must meet. Informatics for Health and Social Care 36:4, pages 206-219.
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HelenaD. Rose & Keren Cohen. (2010) The experiences of young carers: a meta-synthesis of qualitative findings. Journal of Youth Studies 13:4, pages 473-487.
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Helen Bolas, Anna Van Wersch & Darren Flynn. (2007) The well-being of young people who care for a dependent relative: An interpretative phenomenological analysis. Psychology & Health 22:7, pages 829-850.
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Articles from other publishers (36)

Pauline Justin, Géraldine Dorard & Aurélie Untas. (2023) Encountering young caregivers: Attitudes and practices of healthcare professionals caring for cancer patients. Psycho-Oncology 32:6, pages 913-922.
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Aurélie Untas, Christel Vioulac, Pauline Justin, Agnes Leu & Géraldine Dorard. (2022) Professionals’ Awareness of Young Carers in Schools: Results from a French Survey. International Journal of Environmental Research and Public Health 19:21, pages 14172.
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Géraldine Dorard, Christel Vioulac, Sasha Mathieu, Françoise Ellien, Amarantha Bourgeois & Aurélie Untas. (2022) Profiles of French young carers taking part in an arts and respite care program. Health & Social Care in the Community 30:5.
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Pauline Justin, Géraldine Dorard, Valentine Baudry & Aurélie Untas. (2022) Oncology healthcare professionals’ knowledge, attitudes, and practices regarding young carers. Patient Education and Counseling 105:7, pages 2524-2530.
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Jade Pilato, Géraldine Dorard, Basilie Chevrier, Agnes Leu & Aurélie Untas. (2022) Quality of Life of Adolescents Facing a Parental Illness: A Person-Oriented Approach. International Journal of Environmental Research and Public Health 19:13, pages 7892.
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Sara Margaret Gowen, Caroline Sarojini Hart, Permala Sehmar & Andrea Wigfield. (2021) ‘..It takes a lot of brain space’: Understanding young carers’ lives in England and the implications for policy and practice to reduce inappropriate and excessive care work. Children & Society 36:1, pages 118-136.
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Yana Berardini, Heather Chalmers & Heather Ramey. (2021) Unfolding What Self-Compassion Means in Young Carers’ Lives. Child and Adolescent Social Work Journal 38:5, pages 533-545.
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Pauline Justin, Kristopher Lamore, Géraldine Dorard & Aurélie Untas. (2021) Are there young carers in oncology? A systematic review. Psycho-Oncology 30:9, pages 1430-1441.
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Pauline Justin, Géraldine Dorard, Christel Vioulac, Agnes Leu & Aurélie Untas. (2021) What do French school staff know about young carers? A qualitative study about their perceptions. Psychology in the Schools 58:8, pages 1531-1544.
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Agnes Leu, Hannah Wepf, Joe Sempik, Martin Nagl‐Cupal, Saul Becker, Corinna Jung & Marianne Frech. (2020) Caring in mind? Professionals’ awareness of young carers and young adult carers in Switzerland. Health & Social Care in the Community 28:6, pages 2390-2398.
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E. Jarrige, G. Dorard & A. Untas. (2020) Revue de la littérature sur les jeunes aidants : qui sont-ils et comment les aider ?. Pratiques Psychologiques 26:3, pages 215-229.
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Stephen Joseph, Joe Sempik, Agnes Leu & Saul Becker. (2019) Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions. Adolescent Research Review 5:1, pages 77-89.
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Myra Hamilton & Gerry Redmond. (2019) Are Young Carers Less Engaged in School than Non-Carers? Evidence from a Representative Australian Study. Child Indicators Research 13:1, pages 33-49.
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Trevor Spratt, Marlene McGibbon & Gavin Davidson. (2018) Using Adverse Childhood Experience Scores to Better Understand the Needs of Young Carers. The British Journal of Social Work 48:8, pages 2346-2360.
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Agnes Leu, Marianne Frech & Corinna Jung. (2018) Young carers and young adult carers in Switzerland: Caring roles, ways into care and the meaning of communication. Health & Social Care in the Community 26:6, pages 925-934.
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Agnes Leu, Marianne Frech & Corinna Jung. (2018) “You don't look for it”-A study of Swiss professionals’ awareness of young carers and their support needs. Health & Social Care in the Community 26:4, pages e560-e570.
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Lauren C Cunningham, Ian M Shochet, Coral L Smith & Astrid Wurfl. (2017) A qualitative evaluation of an innovative resilience-building camp for young carers. Child & Family Social Work 22:2, pages 700-710.
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Anya Ahmed & Michaela RogersSue McAndrew & Tony Warne. 2017. Working with Marginalised Groups. Working with Marginalised Groups 37 51 .
Helen Lovell & Karen Cleaver. (2015) The needs of young carers and the role of the school nurse. British Journal of School Nursing 10:9, pages 441-445.
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Tony Cassidy, Melanie Giles & Marian McLaughlin. (2014) Benefit finding and resilience in child caregivers. British Journal of Health Psychology 19:3, pages 606-618.
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Jennifer Elkins, Jennifer Holt & Toni P. Miles. 2014. Disaster Preparedness for Seniors. Disaster Preparedness for Seniors 89 99 .
Dominik Sebstian Sieh, Johanna Maria Augusta Visser-Meily & Anne Marie Meijer. (2013) The Relationship between Parental Depressive Symptoms, Family Type, and Adolescent Functioning. PLoS ONE 8:11, pages e80699.
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Dominik Sebastian Sieh, Johanna Maria Augusta Visser-Meily & Anne Marie Meijer. (2012) Differential Outcomes of Adolescents with Chronically Ill and Healthy Parents. Journal of Child and Family Studies 22:2, pages 209-218.
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Danielle Kennan, Allyn Fives & John Canavan. (2011) Accessing a hard to reach population: reflections on research with young carers in Ireland. Child & Family Social Work 17:3, pages 275-283.
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Debbie Fallon, Tony Warne, Sue McAndrew & Hugh McLaughlin. (2012) An adult education: Learning and understanding what young service users and carers really, really want in terms of their mental well being. Nurse Education Today 32:2, pages 128-132.
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Ciara Smyth, Bettina Cass & Trish Hill. (2011) Children and young people as active agents in care-giving: Agency and constraint. Children and Youth Services Review 33:4, pages 509-514.
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Caroline Rosenthal GelmanChristine Greer. (2011) Young Children in Early-Onset Alzheimer’s Disease Families: Research Gaps and Emerging Service Needs. American Journal of Alzheimer's Disease & Other Dementiasr 26:1, pages 29-35.
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Kirsten Stalker & Lisa Curtice. 2011. Social Work and the Law in Scotland. Social Work and the Law in Scotland 152 166 .
Janet K. WilliamsLioness Ayres, Janet Specht, Kathleen Sparbel & Mary Lou Klimek. (2009) Caregiving by Teens for Family Members With Huntington Disease. Journal of Family Nursing 15:3, pages 273-294.
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Merrill Turpin, Christine Leech & Louisa Hackenberg. (2008) Living with Parental Multiple Sclerosis: Children's Experiences and Clinical Implications. Canadian Journal of Occupational Therapy 75:3, pages 149-156.
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Sabine Metzing & Wilfried Schnepp. 2008. Soziale Ungleichheit und Pflege. Soziale Ungleichheit und Pflege 315 341 .
K Forrest Keenan, Z Miedzybrodzka, E Van Teijlingen, L McKee & SA Simpson. (2007) Young people’s experiences of growing up in a family affected by Huntington’s disease. Clinical Genetics 71:2, pages 120-129.
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Kenneth I. Pakenham, Jessica Chiu, Samantha Bursnall & Toni Cannon. (2016) Relations between Social Support, Appraisal and Coping and Both Positive and Negative Outcomes in Young Carers. Journal of Health Psychology 12:1, pages 89-102.
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Kenneth I Pakenham & Samantha Bursnall. (2016) Relations between social support, appraisal and coping and both positive and negative outcomes for children of a parent with multiple sclerosis and comparisons with children of healthy parents. Clinical Rehabilitation 20:8, pages 709-723.
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Kenneth I. Pakenham, Samantha Bursnall, Jessica Chiu, Toni Cannon & Miwa Okochi. (2006) The psychosocial impact of caregiving on young people who have a parent with an illness or disability: Comparisons between young caregivers and noncaregivers.. Rehabilitation Psychology 51:2, pages 113-126.
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Bettina Cass, Clara Smith, Trish Hill, Megan Blaxland & Myra Hamilton. (2009) Young Carers in Australia:Understanding the Advantages and Disadvantages of Their Care Giving. SSRN Electronic Journal.
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