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Original Articles

”I Don’t Believe in Leading a Life of My Own, I Lead His Life”: A Qualitative Investigation of Difficulties Experienced by Informal Caregivers of Stroke Survivors Experiencing Depressive and Anxious Symptoms

, PhD, , PhD, , PhD & , PhD

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Read on this site (7)

Sutanuka Bhattacharjya, Isabelle Linares, Jeanne Langan, Wenyao Xu, Heamchand Subryan & Lora Anne Cavuoto. (2023) Engaging in a home-based exercise program: a mixed-methods approach to identify motivators and barriers for individuals with stroke. Assistive Technology 35:6, pages 487-496.
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Ayesha Qureshi, Nicola Swain, Daniela Aldabe & Leigh Hale. (2023) Exploring challenges affecting resilience in carers of stroke survivors: a qualitative descriptive study. Disability and Rehabilitation 45:22, pages 3696-3704.
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Ana Moura, Patrícia Magalhães, Sofia Castanheira Pais & Elisabete Alves. (2023) Adaptation Processes of Survivors and Informal Caregivers after Stroke: A Scoping Review through the Lens of Educational Sciences. American Journal of Health Education 54:4, pages 305-316.
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Natsumi Iwasaki, Brooke Ryan, Linda Worrall, Miranda Rose & Caroline Baker. (2023) Experiences of mood changes and preferences for management within stepped psychological care from the perspective of spouses of people with aphasia. Aphasiology 37:2, pages 330-361.
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Anna-Henrikje Seidlein & Sabine Salloch. (2020) Who Cares About Care? Family Members as Moral Actors in Treatment Decision Making. The American Journal of Bioethics 20:6, pages 80-82.
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Daniela Rohde, Eva Gaynor, Margaret Large, Orla Conway, Kathleen Bennett, David J Williams, Elizabeth Callaly, Eamon Dolan & Anne Hickey. (2019) Stroke survivor cognitive decline and psychological wellbeing of family caregivers five years post-stroke: a cross-sectional analysis. Topics in Stroke Rehabilitation 26:3, pages 180-186.
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Jennifer Moye. (2018) Anxiety, Physical Functioning, and Integrated Care in Older Adults. Clinical Gerontologist 41:4, pages 269-270.
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Articles from other publishers (15)

Gabriella T. Ponzini, Brenna Kirk, Sarah E. Segear, Elizabeth A. Claydon, Elizabeth B. Engler-Chiurazzi & Shari A. Steinman. (2022) Addressing Uncertainty in Informal Familial Caregivers of Stroke Survivors: A Systematic Meta-Ethnography. International Journal of Environmental Research and Public Health 19:17, pages 11116.
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Milica Petrovic, Silvia Bonanno, Marta Landoni, Chiara Ionio, Mariët Hagedoorn & Andrea Gaggioli. (2022) Using the Transformative Storytelling Technique to Generate Empowering Narratives for Informal Caregivers: Semistructured Interviews, Thematic Analysis, and Method Demonstration. JMIR Formative Research 6:8, pages e36405.
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Shuanglan Lin, Chunli Wang, Qiumei Wang, Shiqi Xie, Qiang Tu, Hui Zhang, Mingqian Peng, Jianrong Zhou & Julie Redfern. (2022) The experience of stroke survivors and caregivers during hospital-to-home transitional care: A qualitative longitudinal study. International Journal of Nursing Studies 130, pages 104213.
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Michelle Semonella, Gerhard Andersson, Rachel Dekel, Giada Pietrabissa & Noa Vilchinsky. (2022) Making a Virtue Out of Necessity: COVID-19 as a Catalyst for Applying Internet-Based Psychological Interventions for Informal Caregivers. Frontiers in Psychology 13.
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Muhammad Iqbal Haji Mukhti, Mohd Ismail Ibrahim, Tengku Alina Tengku Ismail, Iliatha Papachristou Nadal, Sureshkumar Kamalakannan, Sanjay Kinra & Kamarul Imran Musa. (2022) Family Caregivers’ Experiences and Coping Strategies in Managing Stroke Patients during the COVID-19 Pandemic: A Qualitative Exploration Study. International Journal of Environmental Research and Public Health 19:2, pages 942.
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Gianluca Pucciarelli, Karen S. LyonsAntonello PetrizzoRossella AmbroscaSilvio SimeoneRosaria AlvaroChristopher S. Lee & Ercole Vellone. (2022) Protective Role of Caregiver Preparedness on the Relationship Between Depression and Quality of Life in Stroke Dyads. Stroke 53:1, pages 145-153.
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Alejandro Garcia‐Rudolph, Joan Sauri, Alberto Garcia‐Molina, Blanca Cegarra, Eloy Opisso, Josep Maria Tormos, Dietmar Frey, Vince Istvan Madai & Montserrat Bernabeu. (2021) The impact of coronavirus disease 2019 on emotional and behavioral stress of informal family caregivers of individuals with stroke or traumatic brain injury at chronic phase living in a Mediterranean setting. Brain and Behavior 12:1.
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Shilpa Tyagi, Nan Luo, Chuen Seng Tan, Kelvin Bryan Tan, Boon Yeow Tan, Edward Menon, N. Venketasubramanian, Wei Chin Loh, Shu Hui Fan, Kenneth Lam Thuan Yang, Audrey Swee Ling Chan, Aysha Farwin, Zunairah Binti Lukman & Gerald Choon-Huat Koh. (2021) Support system diversity among family caregivers of stroke survivors: a qualitative study exploring Asian perspectives. BMC Geriatrics 21:1.
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Lily YW Ho, Claudia KY Lai & Shamay SM Ng. (2021) Testing the psychometric properties of the Chinese version of the Neurological Fatigue Index-Stroke. Clinical Rehabilitation 35:9, pages 1329-1340.
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Elsje Scheffler & Robert Mash. (2020) Figuring it out by yourself: Perceptions of home-based care of stroke survivors, family caregivers and community health workers in a low-resourced setting, South Africa. African Journal of Primary Health Care & Family Medicine 12:1.
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Anna‐Henrikje Seidlein, Maresa Buchholz, Sabine Salloch & Ines Buchholz. (2020) Adequacy of care provision in long‐term home nursing arrangements: A triangulation of three perspectives. Nursing Open 7:5, pages 1634-1642.
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Paul Farrand, Joanne Woodford, Chelsea Coumoundouros & Frida Svedin. (2020) Supported cognitive-behavioural therapy self-help versus treatment-as-usual for depressed informal caregivers of stroke survivors (CEDArS): feasibility randomised controlled trial . The Cognitive Behaviour Therapist 13.
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Anna Panzeri, Silvia Rossi Ferrario & Giulio Vidotto. (2019) Interventions for Psychological Health of Stroke Caregivers: A Systematic Review. Frontiers in Psychology 10.
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Sue Caton, Emma-Reetta Koivunen & Callum Allison. (2019) Internet use for family carers of people with intellectual disabilities: A literature review and thematic synthesis. Journal of Intellectual Disabilities 23:3, pages 446-468.
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Qi Lu, Jan Mårtensson, Yue Zhao & Linda Johansson. (2019) Living on the edge: Family caregivers' experiences of caring for post-stroke family members in China: A qualitative study. International Journal of Nursing Studies 94, pages 1-8.
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