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Journal of Aging & Social Policy Volume 36, 2024 - Issue 4: Special Issue: Advances in Family Caregiving Policy
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Special Issue Articles

Improving Transitions in Care for Patients and Family Caregivers Living in Rural and Underserved Areas: The Caregiver Advise, Record, Enable (CARE) Act

Joan M. Griffina Professor, Health Services Research, Division of Health Care Delivery Research (HCDR) and Kern Center for the Science of Health Care Delivery, Mayo Clinic, Rochester, Minnesota, USACorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0001-8120-3229View further author information
, PhDORCID Icon,
Brystana G. Kaufmanb Assistant Professor, Population Health Sciences, Duke University, Durham, North Carolina, USAView further author information
, PhD,
Lauren Bangerterc Principal Research Scientist, OptumLabs, Minneapolis, Minnesota, USAView further author information
, PhD,
Diane E. Hollandd Principal Health Services Analyst, Kern Center for the Science of Health Care Delivery Research, Mayo Clinic, Rochester, Minnesota, USAView further author information
, PhD, RN,
Catherine E. Vanderboomd Principal Health Services Analyst, Kern Center for the Science of Health Care Delivery Research, Mayo Clinic, Rochester, Minnesota, USAView further author information
, PhD, RN,
Cory Ingrame Assistant Professor, Department of Community Internal Medicine Geriatrics, and Palliative Care Mayo ClinicRochesterMinnesotaUSAView further author information
, MD,
Ellen M. Wildf Research Interventionist, Department of Quantitative Health Science, Mayo Clinic, Rochester, Minnesota, USAView further author information
, RN, CHPN,
Ann Marie Dosed Principal Health Services Analyst, Kern Center for the Science of Health Care Delivery Research, Mayo Clinic, Rochester, Minnesota, USAView further author information
, PhD, RN,
Carole Stilesf Research Interventionist, Department of Quantitative Health Science, Mayo Clinic, Rochester, Minnesota, USAView further author information
, MSW &
Virginia H. Thompsong Palliative Care Pharmacist, Department of Pharmacy, Mayo Clinic, Rochester, Minnesota, USAView further author information
, RPh show all
Pages 581-588 | Received 14 Jul 2021, Accepted 15 Nov 2021, Published online: 13 Feb 2022

Citations (14)

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Read on this site (3)

Pamela Nadash. (2024) The State of Family Caregiving Policy. Journal of Aging & Social Policy 36:4, pages 479-489.
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Rebecca M. Goodwin, Rebecca L. Utz, Catherine E. Elmore, Katherine A. Ornstein, Djin L. Tay, Lee Ellington, Ken R. Smith & Caroline E. Stephens. (2024) Leveraging Existing Datasets to Advance Family Caregiving Research: Opportunities to Measure What Matters. Journal of Aging & Social Policy 36:4, pages 562-580.
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Erin E. Kent, Sue Deaton & Emmaline Keesee. North Carolina Caregiver Listening Study: Caregiver Experiences and Perspectives on Services and Supports in an Aging U.S. State. Journal of Gerontological Social Work 0:0, pages 1-24.
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Articles from other publishers (11)

Allison M. Gustavson, Molly J. Horstman, Jodie A. Cogswell, Diane E. Holland, Catherine E. Vanderboom, Jay Mandrekar, William S. Harmsen, Brystana G. Kaufman, Cory Ingram & Joan M. Griffin. (2024) Caregiver recruitment strategies for interventions designed to optimize transitions from hospital to home: lessons from a randomized trial. Trials 25:1.
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Brystana G. Kaufman, Ro W. Huang, Diane E. Holland, Catherine E. Vanderboom, Cory Ingram, Ellen M. Wild, Ann Marie Dose, Carole Stiles, Allison M. Gustavson, Jay Mandrekar, Courtney H. Van Houtven & Joan M. Griffin. (2024) Healthcare use and out‐of‐pocket costs for rural family caregivers and care recipients in a randomized controlled trial. Journal of the American Geriatrics Society.
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Reed W.R. Bratches, Noah Z. Freundlich, J. Nicholas Odom, A. James O’Malley & Paul J. Barr. (2024) Communicating visit information to family caregivers: How does method matter? A national survey. Palliative and Supportive Care, pages 1-8.
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Kristin Litzelman, Xuesong Han, Jingxuan Zhao, Zhiyuan Zheng & K. Robin Yabroff. (2023) Employment and workdays lost among spouses of cancer survivors: Intersection with gender across cancer treatment status. Cancer 130:5, pages 816-826.
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Chandylen L Nightingale, Anna C Snavely, Laurie E McLouth, Emily V Dressler, Erin E Kent, Christian S Adonizio, Suzanne C Danhauer, Rachel Cannady, Judith O Hopkins, Heather Kehn, Kathryn E Weaver & Katherine R Sterba. (2024) Processes for identifying caregivers and screening for caregiver and patient distress in community oncology: results from WF-1803CD. JNCI: Journal of the National Cancer Institute 116:2, pages 324-333.
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Reed W R Bratches, Jaclyn A Wall, Frank Puga, Giovanna Pilonieta, Rita Jablonski, Marie Bakitas, David S Geldmacher & J Nicholas Odom. (2023) Patient Portal Use Among Family Caregivers of Individuals With Dementia and Cancer: Regression Analysis From the National Study of Caregiving. JMIR Aging 6, pages e44166-e44166.
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Kelley A. Jones, Amy G. Clark, Melissa A. Greiner, Emma Sandoe, Abhigya Giri, Bradley G. Hammill, Courtney H. Van Houtven, Aparna Higgins & Brystana Kaufman. (2023) Linking Medicare-Medicaid Claims for Patient-Centered Outcomes Research Among Dual-Eligible Beneficiaries. Medical Care 61:12, pages S131-S138.
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Muhammad Abbas, Amanda Jane Reich, Yihan Wang, Frances Y. Hu, Evan Bollens‐Lund, Amy S. Kelley & Zara Cooper. (2023) The burden of pre‐admission pain, depression, and caregiving on palliative care needs for seriously ill trauma patients. Journal of the American Geriatrics Society 71:7, pages 2229-2238.
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Kristin Litzelman, Ashley Berghoff, Jen Stevens & Kris Kwekkeboom. (2023) Predictors of psychoneurological symptoms in cancer caregivers over time: Role of caregiving burden, stress, and patient symptoms. Supportive Care in Cancer 31:5.
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Courtney R. Lee, Elizabeth Taggert, Norma B. Coe & Paula Chatterjee. (2023) Patient Experience at US Hospitals Following the Caregiver Advise, Record, Enable (CARE) Act. JAMA Network Open 6:5, pages e2311253.
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Joan M. Griffin, Catherine E. Vanderboom, Allison M. Gustavson, Brystana G. Kaufman, Cory Ingram, Ellen Wild, Ann Marie Dose, Jay Mandrekar & Diane E. Holland. (2022) A Methodological Approach for Documenting Multi-Component Interventions Targeting Family Caregivers. Journal of Applied Gerontology 42:3, pages 487-492.
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