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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 16, 2004 - Issue 3
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Original Articles

Transition from paediatric to adult services: experiences of HIV-positive adolescents

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Pages 305-314 | Published online: 27 Sep 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (13)

Sylvie Mbebe, Stephan Rabie & Bronwyne J Coetzee. (2023) Factors influencing the transition from paediatric to adult HIV care in the Western Cape, South Africa: perspectives of health care providers. African Journal of AIDS Research 22:3, pages 175-184.
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Adaeze C Ayuk, Vivian O Onukwuli, Ijeoma N Obumneme-Anyim, Joy N Eze, Uzoamaka C Akubuilo, Ngozi R Mbanefo, Kenechukwu K Iloh, Osita U Ezenwosu, Israel O Odetunde, Henrietta U Okafor, Ifeoma J Emodi & Tagbo Oguonu. (2020) Pre-Transition Readiness in Adolescents and Young Adults with Four Chronic Medical Conditions in South East Nigeria – An African Perspective to Adolescent Transition. Adolescent Health, Medicine and Therapeutics 11, pages 29-38.
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Patrick Ryscavage, Thomas Macharia, Devang Patel, Robyn Palmeiro & Vicki Tepper. (2016) Linkage to and retention in care following healthcare transition from pediatric to adult HIV care. AIDS Care 28:5, pages 561-565.
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Kiersten Kronschnabel, Ana Puga & Lisa Eaton. (2016) Preparing to transition from pediatric to adult HIV-related care: qualitative assessment and model development. Vulnerable Children and Youth Studies 11:2, pages 146-159.
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Mylène Fernet, Normand Lapointe, Joseph J. Lévy, Johanne Samson, Joanne Otis, Kimberly Wong, Guylaine Morin, Jocelyne Thériault & Germain Trottier. (2015) The Importance of Meanings of Antiretroviral Treatment and Care Providers for Adherence and Transitioning to Adult Services Among Youth With Perinatally Acquired HIV Infection. Journal of HIV/AIDS & Social Services 14:3, pages 257-276.
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Cynthia D. Fair, Kristen Sullivan & Amy Gatto. (2010) Best practices in transitioning youth with HIV: Perspectives of pediatric and adult infectious disease care providers. Psychology, Health & Medicine 15:5, pages 515-527.
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Tomás Campbell, Hannah Beer, Rebecca Wilkins, Ella Sherlock, Anna Merrett & Jayne Griffiths. (2010) “I look forward. I feel insecure but I am ok with it”. The experience of young HIV+ people attending transition preparation events: a qualitative investigation. AIDS Care 22:2, pages 263-269.
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Tara Vijayan, AndreaL. Benin, Krystn Wagner, Sostena Romano & WarrenA. Andiman. (2009) We never thought this would happen: transitioning care of adolescents with perinatally acquired HIV infection from pediatrics to internal medicine. AIDS Care 21:10, pages 1222-1229.
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Monica Christianson, Ann Lalos & Eva.E. Johansson. (2008) The Law of Communicable Diseases Act and disclosure to sexual partners among HIV-positive youth. Vulnerable Children and Youth Studies 3:3, pages 234-242.
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Lori Wiener, Haven Battles, Celia Ryder & Melissa Zobel. (2007) Transition from a Pediatric HIV Intramural Clinical Research Program to Adolescent and Adult Community-Based Care Services. Social Work in Health Care 46:1, pages 1-19.
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Articles from other publishers (58)

Katherine South, Christine DeForge, Carol Anne Celona, Arlene Smaldone & Maureen George. (2023) Navigating liminal spaces together: a qualitative metasynthesis of youth and parent experiences of healthcare transition. Journal of Transition Medicine 5:1.
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Ramatu Agambire, Gugu G. Mchunu & Joanne R. Naidoo. (2022) Adolescent on the bridge: Transitioning adolescents living with HIV to an adult clinic, in Ghana, to go or not to go?. PLOS ONE 17:9, pages e0273999.
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Judith Kose, Appolinaire Tiam, Stephen Siamba, Cosima Lenz, Elizabeth Okoth, Theresa Wolters, David van de Vijver & Natella Rakhmanina. (2022) Clinical outcomes among adolescents living with HIV in Kenya following initiation on antiretroviral treatment. PLOS Global Public Health 2:2, pages e0000094.
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Tiarney D. Ritchwood, Vincenzo Malo, Cameron Jones, Isha W. Metzger, Millicent Atujuna, Rebecca Marcus, Donaldson F. Conserve, Lara Handler & Linda-Gail Bekker. (2020) Healthcare retention and clinical outcomes among adolescents living with HIV after transition from pediatric to adult care: a systematic review. BMC Public Health 20:1.
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Grazia Isabella Continisio, Andrea Lo Vecchio, Francesca Wanda Basile, Carla Russo, Maria Rosaria Cotugno, Giulia Palmiero, Cinzia Storace, Carmela Mango, Alfredo Guarino & Eugenia Bruzzese. (2020) The Transition of Care From Pediatric to Adult Health-Care Services of Vertically HIV-Infected Adolescents: A Pilot Study. Frontiers in Pediatrics 8.
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Emily Willis & Janet E McDonagh. (2020) Shifting the mindset—adolescent and young adult rheumatology in transition. The Lancet Rheumatology 2:4, pages e236-e244.
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Victoria Logan Kennedy, Kaitlyn Luisa Mellor, Jason Brophy, Ari Bitnun, Ariane Alimenti, Fatima Kakkar, Carmen Helen Logie, Kath Webster, Karène Proulx-Boucher, Erin Ding, Shahab Jabbari, Angela Kaida, Alexandra de Pokomandy & Mona Loutfy. (2020) Transition from Pediatric to Adult HIV Care for Young Women Living with HIV. Journal of the International Association of Providers of AIDS Care (JIAPAC) 19, pages 232595822090357.
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Clare Smith, Nick Bosanquet, Julia Riley & Jonathan Koffman. (2019) Loss, transition and trust: perspectives of terminally ill patients and their oncologists when transferring care from the hospital into the community at the end of life. BMJ Supportive & Palliative Care 9:3, pages 346-355.
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Aparna Mukherjee & Rakesh Lodha. (2019) Coming of Age: Young Adults with Perinatally Acquired HIV Infection. The Indian Journal of Pediatrics 86:3, pages 214-215.
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Graham Toth, Gitau Mburu, Sovannary Tuot, Vohith Khol, Chanrith Ngin, Pheak Chhoun & Siyan Yi. (2018) Social-support needs among adolescents living with HIV in transition from pediatric to adult care in Cambodia: findings from a cross-sectional study. AIDS Research and Therapy 15:1.
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Siyan Yi, Sovannary Tuot, Khuondyla Pal, Vohith Khol, Say Sok, Pheak Chhoun, Laura Ferguson & Gitau Mburu. (2018) Characteristics of adolescents living with HIV receiving care and treatment services in antiretroviral therapy clinics in Cambodia: descriptive findings from a cross-sectional study. BMC Health Services Research 18:1.
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David Allen, Nerina Scarinci & Louise Hickson. (2018) The Nature of Patient- and Family-Centred Care for Young Adults Living with Chronic Disease and their Family Members: A Systematic Review. International Journal of Integrated Care 18:2.
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Diane M Straub & Amanda E Tanner. (2018) Health-care transition from adolescent to adult services for young people with HIV. The Lancet Child & Adolescent Health 2:3, pages 214-222.
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Phung Khanh Lam, Sarah Fidler & Caroline Foster. (2017) A review of transition experiences in perinatally and behaviourally acquired HIV-1 infection; same, same but different?. Journal of the International AIDS Society 20, pages 21506.
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Rangsima Lolekha, Vitharon Boon-yasidhi, Yossawadee Na-Nakorn, Boonying Manaboriboon, Warunee Punpanich Vandepitte, Michael Martin, Jariya Tarugsa, Wipada Nuchanard, Pimsiri Leowsrisook, Ketwadee Lapphra, Piyarat Suntarattiwong, Vorapathu Thaineua & Kulkanya Chokephaibulkit. (2017) The Happy Teen programme: a holistic outpatient clinic-based approach to prepare HIV-infected youth for the transition from paediatric to adult medical care services in Thailand. Journal of the International AIDS Society 20, pages 21500.
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Vicki Tepper, Stefanie Zaner & Patrick Ryscavage. (2017) HIV healthcare transition outcomes among youth in North America and Europe: a review. Journal of the International AIDS Society 20, pages 21490.
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Mary Ellen Acree. (2017) Transition of Care for Youth with HIV. Pediatric Annals 46:5.
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Ilse Hofmeester, Astrid E. Brinker, Martijn G. Steffens, Zwaan Mulder, Jan Willem van Capelle, Wout F.J. Feitz & Marco H. Blanker. (2017) Reference values for frequency volume chart and uroflowmetry parameters in adolescent and adult enuresis patients. Neurourology and Urodynamics 36:2, pages 463-468.
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Rhona Hubbard, Sally Connolly, Linda Towers, Keith Bradbury, Susan Fidment, Dermot Gleeson & Elaine McFarlane. (2016) Evaluation of liver transition services for young people at a UK paediatric hospital. Gastrointestinal Nursing 14:Sup10, pages S16-S23.
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Fatima Kakkar, Dimitri Van der Linden, Silvie Valois, Francois Maurice, Marion Onnorouille, Normand Lapointe, Hugo Soudeyns & Valerie Lamarre. (2016) Health outcomes and the transition experience of HIV-infected adolescents after transfer to adult care in Québec, Canada. BMC Pediatrics 16:1.
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J. Wright, L. Elwell, J. E. McDonagh, D. A. Kelly & J. Wray. (2016) ?Are these adult doctors gonna know me?? Experiences of transition for young people with a liver transplant. Pediatric Transplantation 20:7, pages 912-920.
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Duncan Churchill, Laura Waters, Nadia Ahmed, Brian Angus, Marta Boffito, Mark Bower, David Dunn, Simon Edwards, Carol Emerson, Sarah Fidler, Martin Fisher, Rob Horne, Saye Khoo, Clifford Leen, Nicola Mackie, Neal Marshall, Fernando Monteiro, Mark Nelson, Chloe Orkin, Adrian Palfreeman, Sarah Pett, Andrew Phillips, Frank Post, Anton Pozniak, Iain Reeves, Caroline Sabin, Roy Trevelion, John Walsh, Ed Wilkins, Ian Williams & Alan Winston. (2016) British HIV Association guidelines for the treatment of HIV-1-positive adults with antiretroviral therapy 2015. HIV Medicine 17, pages s2-s104.
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Corry Azzopardi, Robyn Salter, Stephanie Savage, Jason Brophy, Ari Bitnun & Stanley Read. 2016. Children and Young People Living with HIV/AIDS. Children and Young People Living with HIV/AIDS 379 398 .
Marianne Samyn & Anna Hames. 2016. Textbook of Pediatric Gastroenterology, Hepatology and Nutrition. Textbook of Pediatric Gastroenterology, Hepatology and Nutrition 887 896 .
Albert C. Hergenroeder, Constance M. Wiemann & Mitchell B. Cohen. (2015) Current Issues in Transitioning from Pediatric to Adult-Based Care for Youth with Chronic Health Care Needs. The Journal of Pediatrics 167:6, pages 1196-1201.
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L. Reale & M. Bonati. (2015) Mental disorders and transition to adult mental health services: A scoping review. European Psychiatry 30:8, pages 932-942.
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Cynthia D. Fair, Becca Goldstein & Rachel Dizney. (2015) Congruence of Transition Perspectives Between Adolescents With Perinatally-Acquired HIV and Their Guardians: An Exploratory Qualitative Study. Journal of Pediatric Nursing 30:5, pages 684-690.
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Sophia A Hussen, Ann Chahroudi, Ashley Boylan, Andres F Camacho-Gonzalez, Stephanie Hackett & Rana Chakraborty. (2014) Transition of youth living with HIV from pediatric to adult-oriented healthcare: a review of the literature. Future Virology 9:10, pages 921-929.
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Christoph Rutishauser, Susan M. Sawyer & Anne-Emmanuelle Ambresin. (2014) Transition of young people with chronic conditions: a cross-sectional study of patient perceptions before and after transfer from pediatric to adult health care. European Journal of Pediatrics 173:8, pages 1067-1074.
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Christy NewmanAsha PerssonAngela MillerElena Cama. (2014) Bridging Worlds, Breaking Rules: Clinician Perspectives on Transitioning Young People with Perinatally Acquired HIV Into Adult Care in a Low Prevalence Setting. AIDS Patient Care and STDs 28:7, pages 381-393.
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Niraj Sharma, Elizabeth Willen, Ana Garcia & Tanvi S. Sharma. (2014) Attitudes Toward Transitioning in Youth With Perinatally Acquired HIV and Their Family Caregivers. Journal of the Association of Nurses in AIDS Care 25:2, pages 168-175.
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Liv Fegran, Elisabeth O.C. Hall, Lisbeth Uhrenfeldt, Hanne Aagaard & Mette Spliid Ludvigsen. (2014) Adolescents’ and young adults’ transition experiences when transferring from paediatric to adult care: A qualitative metasynthesis. International Journal of Nursing Studies 51:1, pages 123-135.
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Allan F Colver, Hannah Merrick, Mark Deverill, Ann Le Couteur, Jeremy Parr, Mark S Pearce, Tim Rapley, Luke Vale, Rose Watson & Helen McConachie. (2013) Study protocol: longitudinal study of the transition of young people with complex health needs from child to adult health services. BMC Public Health 13:1.
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Mathieu Kuchenbuch, Nicole Chemaly, Catherine Chiron, Olivier Dulac & Rima Nabbout. (2013) Transition and transfer from pediatric to adult health care in epilepsy: A families' survey on Dravet syndrome. Epilepsy & Behavior 29:1, pages 161-165.
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A. L. Agwu, J. A. Fleishman, R. Rutstein, P. T. Korthuis & K. Gebo. (2013) Changes in Advanced Immunosuppression and Detectable HIV Viremia Among Perinatally HIV-Infected Youth in the Multisite United States HIV Research Network. Journal of the Pediatric Infectious Diseases Society 2:3, pages 215-223.
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Mark A. Applebaum, Erica F. Lawson & Emily von Scheven. (2013) Perception of transition readiness and preferences for use of technology in transition programs: teens’ ideas for the future. International Journal of Adolescent Medicine and Health 25:2, pages 119-125.
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G. Vaudre, H. Sylvain, P. Delmas, C. Dollfus & G. Leverger. (2012) Cons?quences et v?cu de la transition en m?decine d?adultes des jeunes vivant avec le virus de l?immunod?ficience humaine (VIH). Archives de P?diatrie 19:8, pages 786-793.
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Douglas Bruce & Gary W. Harper. (2011) Future Life Goals of HIV-Positive Gay and Bisexual Male Emerging Adults. Journal of Adolescent Research 27:4, pages 449-470.
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Cynthia D. FairKristen SullivanRachel DizneyAvra Stackpole. (2012) “It's Like Losing a Part of My Family”: Transition Expectations of Adolescents Living with Perinatally Acquired HIV and Their Guardians. AIDS Patient Care and STDs 26:7, pages 423-429.
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Allison L. Agwu, George K. Siberry, Jonathan Ellen, John A. Fleishman, Richard Rutstein, Aditya H. Gaur, P. Todd Korthuis, Robert Warford, Stephen A. Spector & Kelly A. Gebo. (2012) Predictors of Highly Active Antiretroviral Therapy Utilization for Behaviorally HIV-1–Infected Youth: Impact of Adult Versus Pediatric Clinical Care Site. Journal of Adolescent Health 50:5, pages 471-477.
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Kristen Piering, Ronen Arnon, Tamir A. Miloh, Sander Florman, Nanda Kerkar & Rachel A. Annunziato. (2011) Developmental and disease‐related influences on self‐management acquisition among pediatric liver transplant recipients. Pediatric Transplantation 15:8, pages 819-826.
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L. A. Schwartz, L. K. Tuchman, W. L. Hobbie & J. P. Ginsberg. (2011) A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions. Child: Care, Health and Development 37:6, pages 883-895.
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Nadia DowshenLawrence D'Angelo. (2011) Health Care Transition for Youth Living With HIV/AIDS. Pediatrics 128:4, pages 762-771.
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Hannah BundockSarah FidlerSimon ClarkeDeborah Jane Holmes-WalkerKaye FarrellSusan McDonaldGareth Tudor-WilliamsCaroline Foster. (2011) Crossing the Divide: Transition Care Services for Young People with HIV—Their Views. AIDS Patient Care and STDs 25:8, pages 465-473.
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Christoph Rutishauser, Christina Akré & Joan-Carles Surìs. (2010) Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents. European Journal of Pediatrics 170:7, pages 865-871.
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Tziona Lugasi, Marie Achille & Moire Stevenson. (2011) Patients' Perspective on Factors That Facilitate Transition From Child-centered to Adult-centered Health Care: A Theory Integrated Metasummary of Quantitative and Qualitative Studies. Journal of Adolescent Health 48:5, pages 429-440.
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L. S. Wiener, B.-A. Kohrt, H. B. Battles & M. Pao. (2009) The HIV Experience: Youth Identified Barriers for Transitioning from Pediatric to Adult Care. Journal of Pediatric Psychology 36:2, pages 141-154.
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J. M. Valenzuela, C. L. Buchanan, J. Radcliffe, C. Ambrose, L. A. Hawkins, M. Tanney & B. J. Rudy. (2009) Transition to Adult Services among Behaviorally Infected Adolescents with HIV--A Qualitative Study. Journal of Pediatric Psychology 36:2, pages 134-140.
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Donna Maturo, Alexis Powell, Hanna Major-Wilson, Kenia Sanchez, Joseph P. De Santis & Lawrence B. Friedman. (2011) Development of a Protocol for Transitioning Adolescents With HIV Infection to Adult Care. Journal of Pediatric Health Care 25:1, pages 16-23.
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Janet E McDonagh. (2008) Getting it right for young people: developing adolescent rheumatology services. Future Rheumatology 3:2, pages 133-141.
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James T. Lane, Agnes Ferguson, Joyce Hall, Maxine McElligott, Marilyn Miller, Pascale H. Lane & Elizabeth Pfeffer. (2007) Glycemic control over 3 years in a young adult clinic for patients with type 1 diabetes. Diabetes Research and Clinical Practice 78:3, pages 385-391.
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