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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 18, 2006 - Issue 1
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Original Articles

The role of stigma in reasons for HIV disclosure and non-disclosure to children

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Pages 60-65 | Published online: 21 Aug 2006

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (21)

Qian Wang, Zixin Wang, Xiaomeng Ma, Polin Chan, Joseph T. F. Lau & Phoenix K.H. Mo. (2022) Chinese mothers’ intent to disclose the HIV status to their children: the role of outcome expectations and self-efficacy. AIDS Care 34:1, pages 95-104.
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Ariel M. Domlyn, Yanping Jiang, Sayward Harrison, Shan Qiao & Xiaoming Li. (2020) Stigma and psychosocial wellbeing among children affected by parental HIV in China. AIDS Care 32:4, pages 500-507.
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S. Khan, A. Ion, A. Alyass, S. Greene, G. Kwaramba, S. Smith, A. Carvalhal, V.L. Kennedy, S. Walmsley & M. Loutfy$suffix/text()$suffix/text(). (2019) Loneliness and perceived social support in pregnancy and early postpartum of mothers living with HIV in Ontario, Canada. AIDS Care 31:3, pages 318-325.
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Allyson Ion, Anne C. Wagner, Saara Greene & Mona R. Loutfy. (2017) HIV-related stigma in pregnancy and early postpartum of mothers living with HIV in Ontario, Canada. AIDS Care 29:2, pages 137-144.
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Erin M. Fekete, Stacey L. Williams, Matthew D. Skinta & Leah M. Bogusch. (2016) Gender differences in disclosure concerns and HIV-related quality of life. AIDS Care 28:4, pages 450-454.
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Olga Gromadzka, E. Karina Santamaria, Jessica M. Benavides, Curtis Dolezal, Katherine S. Elkington, Cheng-Shiun Leu, Mary McKay, Elaine J. Abrams, Andrew Wiznia, Mahrukh Bamji & Claude Ann Mellins. (2015) Sexual Health Knowledge in a Sample of Perinatally HIV-Infected and Perinatally Exposed Uninfected Youth. Journal of HIV/AIDS & Social Services 14:3, pages 277-293.
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Sally Mason, Vickey Sultzman & Barbara Berger. (2014) “Like being in a cage”: stigma as experienced by adolescents whose mothers are living with HIV. Vulnerable Children and Youth Studies 9:4, pages 323-331.
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Grace C. John-Stewart, Grace Wariua, Kristin M. Beima-Sofie, Barbra A. Richardson, Carey Farquhar, Elizabeth Maleche-Obimbo, Dorothy Mbori-Ngacha & Dalton Wamalwa. (2013) Prevalence, perceptions, and correlates of pediatric HIV disclosure in an HIV treatment program in Kenya. AIDS Care 25:9, pages 1067-1076.
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KellyE. Tenzek, AnnaR. Herrman, AmyR. May, Benjamin Feiner & Mike Allen. (2013) Examining the Impact of Parental Disclosure of HIV on Children: A Meta-Analysis. Western Journal of Communication 77:3, pages 323-339.
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BeatriceJ. Krauss, Susan Letteney, AnniekJ. De Baets, Rachel Baggaley & F. Amolo Okero. (2013) Caregiver's HIV disclosure to children 12 years and under: A review and analysis of the evidence. AIDS Care 25:4, pages 415-429.
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Susan Letteney, Beatrice Krauss & Robert Kaplan. (2012) Examining HIV-Positive Parents' Disclosure to Their Children: A Biopsychosocial Approach. Social Work in Public Health 27:4, pages 345-360.
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Susan Letteney. (2012) Fathers with HIV Disease and Disclosure to Children: Reported Experiences and Unique Characteristics. Journal of Human Behavior in the Social Environment 22:1, pages 101-114.
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SarahE. Stutterheim, Iris Shiripinda, ArjanE.R. Bos, JohnB. Pryor, Marijn de Bruin, JeannineF.J.B. Nellen, Gerjo Kok, JanM. Prins & HermanP. Schaalma. (2011) HIV status disclosure among HIV-positive African and Afro-Caribbean people in the Netherlands. AIDS Care 23:2, pages 195-205.
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Tomás Campbell, Hannah Beer, Rebecca Wilkins, Ella Sherlock, Anna Merrett & Jayne Griffiths. (2010) “I look forward. I feel insecure but I am ok with it”. The experience of young HIV+ people attending transition preparation events: a qualitative investigation. AIDS Care 22:2, pages 263-269.
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Lynne Miller Franco, Bart Burkhalter, Arjan de Wagt, Larissa Jennings, Allison Gamble Kelley & Marie-Eve Hammink. (2009) Evidence base for children affected by HIV and AIDS in low prevalence and concentrated epidemic countries: applicability to programming guidance from high prevalence countries. AIDS Care 21:sup1, pages 49-59.
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Margarete Sandelowski, Julie Barroso & CorrineI. Voils. (2009) Gender, Race/Ethnicity, and Social Class in Research Reports on Stigma in HIV-Positive Women. Health Care for Women International 30:4, pages 273-288.
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Sara Liane Nam, Katherine Fielding, Ava Avalos, Tendani Gaolathe, Diana Dickinson & Paul Wenzel Geissler. (2009) Discussing matters of sexual health with children: what issues relating to disclosure of parental HIV status reveal. AIDS Care 21:3, pages 389-395.
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P. Solomon & S. Wilkins. (2008) Participation among women living with HIV: A rehabilitation perspective. AIDS Care 20:3, pages 292-296.
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C. Nöstlinger, G. Bartoli, V. Gordillo, D. Roberfroid & R. Colebunders. (2006) Children and adolescents living with HIV positive parents: Emotional and behavioural problems. Vulnerable Children and Youth Studies 1:1, pages 29-43.
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Articles from other publishers (41)

Mariam Davtyan, Deborah Kacanek, Jessica Lee, Claire Berman, Ellen G. Chadwick, Renee Smith, Liz Salomon & Toinette Frederick. (2023) The role of internalised HIV stigma in disclosure of maternal HIV serostatus to children perinatally HIV‐exposed but uninfected: a prospective study in the United States. Journal of the International AIDS Society 26:S4.
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Qian Wang, Kam Hei Hui, Ailing Wang, Xiaoyan Wang, He Sun, Stephanie Tsz Yung Lau, Changhe Wang & Phoenix Kit Han Mo. (2023) Chinese Mothers’ Intent to Disclose Their HIV Status to Their Children: The Role of Positive Outcome Expectations and Reward Responsiveness. International Journal of Public Health 68.
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Nurhayati, Abu Rokhmad, Tri bayu Purnama, Putra Apriadi Siregar, Reni Ria Armayani Hasibuan & Fitri Hayati. (2022) The Islamic Perspective on the Effect of Religiosity, Anxiety and Belief regarding COVID-19 on Undisclosed Status of COVID-19 in the Muslim Youth. Journal of Islamic Thought and Civilization 12:2, pages 164-178.
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Markus H. Schafer, Laura Upenieks & Julia DeMaria. (2020) Do Older Adults with HIV Have Distinctive Personal Networks? Stigma, Network Activation, and the Role of Disclosure in South Africa. AIDS and Behavior 25:5, pages 1560-1572.
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Bilkisu Nwankwo, JohnAlexander Oluchukwu & NafisatOhunene Usman. (2021) Disclosure of human immune deficiency virus status to infected children at a tertiary hospital in North-western Nigeria. Nigerian Journal of Medicine 30:5, pages 601.
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Phoenix K. H. Mo, Zixin Wang, Joseph T. F. Lau, Angela Y. C. Li & Qian Wang. (2019) Disclosure of maternal HIV infection to children among Chinese women with HIV: The application of the Theory of Planned Behaviour and the role of various norms. Health & Social Care in the Community 27:6, pages 1544-1554.
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Ellen Moseholm, Micheal D Fetters, Inka Aho, Åsa Mellgren, Isik S Johansen, Merete Storgaard, Gitte Pedersen, Terese L Katzenstein & Nina Weis. (2019) Study protocol: becoming and being a mother living with HIV - a multicentre longitudinal mixed methods study among pregnant women living with HIV, non-pregnant women living with HIV and pregnant women not living with HIV in a high-income setting (the 2B MOM study). BMJ Open 9:10, pages e027761.
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Qian Wang, Zixin Wang, Xiaomeng Ma, Yuan Fang, Phoenix K. H. Mo & Joseph T. F. Lau. (2019) Important Roles of Health Professionals in Maternal HIV Disclosure Among HIV-Infected Women in China. AIDS and Behavior 23:10, pages 2829-2836.
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Louise Dalton, Elizabeth Rapa, Sue Ziebland, Tamsen Rochat, Brenda Kelly, Lucy Hanington, Ruth Bland, Aisha Yousafzai, Alan Stein, Theresa Betancourt, Myra Bluebond-Langner, Catherine D'Souza, Mina Fazel, Kim Fredman-Stein, Emily Harrop, Daniel Hochhauser, Barbara Kolucki, Aoife C Lowney, Elena Netsi & Linda Richter. (2019) Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent. The Lancet 393:10176, pages 1164-1176.
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Roman Shrestha, Frederick L. Altice, Brian Sibilio & Michael M. Copenhaver. (2018) HIV Sero-Status Non-disclosure Among HIV-Infected Opioid-Dependent Individuals: The Roles of HIV-Related Stigma, Risk Behavior, and Social Support. Journal of Community Health 44:1, pages 112-120.
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Rajesh Meena, Alok Hemal & Shilpa Khanna Arora. (2018) Pediatric HIV Disclosure in Northern India: Evaluation of Its Prevalence, Perceptions amongst Caregivers, and Its Impact on CLHIV. AIDS Research and Treatment 2018, pages 1-7.
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Melissa Zeligman, W. Bryce Hagedorn & Sejal M. Barden. (2017) The Relationship Between Stigma and Trauma in Adults Living with HIV. Journal of Mental Health Counseling 39:1, pages 12-24.
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Rozan Abdulrahman, Emma Stuard, Mary E. Vachon, Cate Nicholas, Richard Neugebauer, Stefan H. F. Hagmann & Murli U. Purswani. (2016) Predictors of Disclosure of Maternal HIV Status by Caregivers to their Children in an Inner-City Community in the United States. AIDS and Behavior 21:1, pages 141-151.
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Linda Richter, Tawanda Makusha, Arnošt Komárek, Joseph Daniels & Tom Coates. (2015) Exploring the Impact of Childhood Abuse on HIV Social and Attitudinal Factors Among Adults With and Without this History in Sub-Saharan Africa: Findings from NIMH Project Accept (HPTN 043). AIDS and Behavior 20:4, pages 737-745.
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Melissa Zeligman, Sejal M. Barden & W. Bryce Hagedorn. (2016) Posttraumatic Growth and HIV: A Study on Associations of Stigma and Social Support. Journal of Counseling & Development 94:2, pages 141-149.
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Carole Ian McAteer, Nhan-Ai Thi Truong, Josephine Aluoch, Andrew Roland Deathe, Winstone M Nyandiko, Irene Marete & Rachel Christine Vreeman. (2016) A systematic review of measures of HIV/AIDS stigma in paediatric HIV-infected and HIV-affected populations. Journal of the International AIDS Society 19:1, pages 21204.
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Kinda Aljassem, Janet M. Raboud, Trevor A. Hart, Anita Benoit, DeSheng Su, Shari L. Margolese, Sean B. Rourke, Sergio Rueda, Ann Burchell, John Cairney, Paul Shuper & Mona R. Loutfy. (2014) Gender Differences in Severity and Correlates of Depression Symptoms in People Living with HIV in Ontario, Canada. Journal of the International Association of Providers of AIDS Care (JIAPAC) 15:1, pages 23-35.
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Oscar Labra & Anaïs Lacasse. (2015) Représentations sociales du VIH/sida chez les étudiants de niveau universitaire d’une région éloignée du Québec. Canadian Social Work Review 32:1-2, pages 167-186.
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Marija Pantelic, Lucie Cluver, Mark Boyes, Elona Toska, Caroline Kuo & Mosa Moshabela. (2014) Medical Pluralism Predicts Non-ART Use among Parents in Need of ART: A Community Survey in KwaZulu-Natal, South Africa. AIDS and Behavior 19:1, pages 137-144.
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Manjunatha S N, Revathi Devi M L, Arpitha Arpitha & Chandrakumar S G. (2014) HIV POSITIVE MOTHERS; ISSUES AND CONCERNS: A QUALITATIVE STUDY. Journal of Evolution of Medical and Dental Sciences 3:16, pages 4408-4417.
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Warunee Fongkaew, Nongkran Viseskul, Benjamas Suksatit, Saowaluck Settheekul, Ratanawadee Chontawan, Richard M. Grimes & Deanna E. Grimes. (2013) Verifying Quantitative Stigma and Medication Adherence Scales Using Qualitative Methods among Thai Youth Living with HIV/AIDS. Journal of the International Association of Providers of AIDS Care (JIAPAC) 13:1, pages 69-77.
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Ami R. Moore. (2012) Older People Living with HIV/AIDS (OPLWHA) in Lomẻ, Togo: Personal Networks and Disclosure of Serostatus. Ageing International 38:3, pages 218-232.
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Minrie Greeff. 2013. Stigma, Discrimination and Living with HIV/AIDS. Stigma, Discrimination and Living with HIV/AIDS 71 95 .
Ntombizodumo B Mkwanazi, Tamsen J Rochat, John Imrie & Ruth M Bland. (2012) Disclosure of maternal HIV status to children: considerations for research and practice in sub-Saharan Africa. Future Virology 7:12, pages 1159-1182.
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Y. Zhou, L. Zhang, X. Li & L. Kaljee. (2012) Do Chinese parents with HIV tell their children the truth? A qualitative preliminary study of parental HIV disclosure in China. Child: Care, Health and Development, pages no-no.
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Bo Wang, Xiaoming Li, Douglas Barnett, Guoxiang Zhao, Junfeng Zhao & Bonita Stanton. (2012) Risk and protective factors for depression symptoms among children affected by HIV/AIDS in rural China: A structural equation modeling analysis. Social Science & Medicine 74:9, pages 1435-1443.
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Sphiwe Madiba & Chidi Matlala. (2012) Disclosure of Parental HIV Positive Status: What, Why, When, and How Parents Tell Their Children in the Era of HAART in South Africa. World Journal of AIDS 02:03, pages 194-202.
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Cynthia D Fair & Shelley Walker. (2010) Pediatric HIV social workers. Qualitative Social Work 10:4, pages 415-433.
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Sybil G. Hosek, Diana Lemos, Gary W. Harper & Kyle Telander. (2011) Evaluating the Acceptability and Feasibility of Project ACCEPT: An Intervention for Youth Newly Diagnosed with HIV. AIDS Education and Prevention 23:2, pages 128-144.
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Anne C. Wagner, Trevor A. Hart, Saira Mohammed, Elena Ivanova, Joanna Wong & Mona R. Loutfy. (2010) Correlates of HIV stigma in HIV-positive women. Archives of Women's Mental Health 13:3, pages 207-214.
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Lara M.E. VazEugenia EngSuzanne MamanTomi TshikanduFrieda Behets. (2010) Telling Children They Have HIV: Lessons Learned from Findings of a Qualitative Study in Sub-Saharan Africa. AIDS Patient Care and STDs 24:4, pages 247-256.
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Adam Gonzalez, Carol T. Miller, Sondra E. Solomon, Janice Yanushka Bunn & Daniel G. Cassidy. (2008) Size Matters: Community Size, HIV Stigma, & Gender Differences. AIDS and Behavior 13:6, pages 1205-1212.
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Robin Ostrom Delaney, Julianne M. Serovich & Ji-Young Lim. (2009) Psychological Differences Between HIV-Positive Mothers Who Disclose to All, Some, or None of Their Biological Children. Journal of Marital and Family Therapy 35:2, pages 175-180.
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Pierre-André Michaud, Joan-Carles Suris, L. Ralph Thomas, Christian Kahlert, Christoph Rudin & Jean-Jacques Cheseaux. (2009) To Say or Not to Say: A Qualitative Study on the Disclosure of Their Condition by Human Immunodeficiency Virus–Positive Adolescents. Journal of Adolescent Health 44:4, pages 356-362.
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Tao Xu, Zhihua Yan, Song Duan, Changhe Wang, Keming Rou & Zunyou Wu. (2008) Psychosocial Well-being of Children in HIV/AIDS-Affected Families in Southwest China: A Qualitative Study. Journal of Child and Family Studies 18:1, pages 21-30.
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Margarete Sandelowski, Corrine I. Voils, Julie Barroso & Eun-Jeong Lee. (2008) “Distorted into clarity”: A methodological case study illustrating the paradox of systematic review. Research in Nursing & Health 31:5, pages 454-465.
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Ami Moore, Dorothy N. Kalanzi & Foster K. Amey. (2008) To disclose or not to disclose?. International Journal of Sociology and Social Policy 28:9/10, pages 351-364.
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Debra A. Murphy. (2008) HIV-positive Mothers' Disclosure of Their Serostatus to Their Young Children: A Review. Clinical Child Psychology and Psychiatry 13:1, pages 105-122.
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Tanya L. Tompkins. (2007) Disclosure of Maternal HIV Status to Children: To Tell or Not To Tell … That is the Question. Journal of Child and Family Studies 16:6, pages 773-788.
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Janice Yanushka Bunn, Sondra E. Solomon, Carol Miller & Rex Forehand. (2007) Measurement of Stigma in People with HIV: A Reexamination of the HIV Stigma Scale. AIDS Education and Prevention 19:3, pages 198-208.
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