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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 18, 2006 - Issue 8
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Original Articles

Growing up: Perspectives of children, families and service providers regarding the needs of older children with perinatally-acquired HIV

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Pages 1050-1053 | Published online: 18 Jan 2007

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (16)

Eliana Galano, Egberto Ribeiro Turato, Regina Célia Succi, Heloisa Helena de Souza Marques, Marinella Della Negra, Mariliza Henrique da Silva, Fabiana Bononi do Carmo, Aida de Fátima Barbosa Gouvea, Philippe Delmas, José Côté & Daisy Maria Machado. (2017) Costs and benefits of secrecy: the dilemma experienced by adolescents seropositive for HIV. AIDS Care 29:3, pages 394-398.
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Asha Persson, Christy E. Newman & Angela Miller. (2017) Caring for ‘underground’ kids: qualitative interviews with clinicians about key issues for young people growing up with perinatally acquired HIV in Australia. International Journal of Adolescence and Youth 22:1, pages 1-15.
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Clare Greenhalgh, Michael Evangeli, Graham Frize, Caroline Foster & Sarah Fidler. (2016) Intimate relationships in young adults with perinatally acquired HIV: a qualitative study of strategies used to manage HIV disclosure.. AIDS Care 28:3, pages 283-288.
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Mylène Fernet, Karène Proulx-Boucher, Martin Blais, Carl Rodrigue, Normand Lapointe, Joanne Otis, Johanne Samson & Caroline Racicot. (2016) Talking about sex in HIV-affected families: perspectives of HIV-infected mothers and their children from a mixed-methods study. Vulnerable Children and Youth Studies 11:1, pages 47-59.
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Mylène Fernet, Normand Lapointe, Joseph J. Lévy, Johanne Samson, Joanne Otis, Kimberly Wong, Guylaine Morin, Jocelyne Thériault & Germain Trottier. (2015) The Importance of Meanings of Antiretroviral Treatment and Care Providers for Adherence and Transitioning to Adult Services Among Youth With Perinatally Acquired HIV Infection. Journal of HIV/AIDS & Social Services 14:3, pages 257-276.
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Clare Greenhalgh, Michael Evangeli, Graham Frize, Caroline Foster & Sarah Fidler. (2013) Intimate relationships in young adults with perinatally acquired HIV: Partner considerations. AIDS Care 25:4, pages 447-450.
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Sally Robinson & Kathryn Summers. (2012) An evaluation of the educational support for teachers who teach children with life-limiting illness in schools. Pastoral Care in Education 30:3, pages 191-207.
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ClaudeA. Mellins, KatherineS. Elkington, Cheng-Shiun Leu, E. Karina Santamaria, Curtis Dolezal, Andrew Wiznia, Mahrukh Bamji, MaryM. Mckay & ElaineJ. Abrams. (2012) Prevalence and change in psychiatric disorders among perinatally HIV-infected and HIV-exposed youth. AIDS Care 24:8, pages 953-962.
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Elizabeth Lowenthal, Kathy Lawler, Nurit Harari, Lesedi Moamogwe, Japhter Masunge, Motshodi Masedi, Bolefela Matome, Esther Seloilwe, Michael Jellinek, Michael Murphy & Robert Gross. (2011) Validation of the Pediatric Symptom Checklist in HIV-infected Batswana. Journal of Child & Adolescent Mental Health 23:1, pages 17-28.
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Mylène Fernet, Kimberly Wong, Marie-Eve Richard, Joanne Otis, JosephJ. Lévy, Normand Lapointe, Johanne Samson, Guylaine Morin, Jocelyne Thériault & Germain Trottier. (2011) Romantic relationships and sexual activities of the first generation of youth living with HIV since birth. AIDS Care 23:4, pages 393-400.
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R.J. Li, H.B. Jaspan, V. O'Brien, H. Rabie, M.F. Cotton & N. Nattrass. (2010) Positive futures: a qualitative study on the needs of adolescents on antiretroviral therapy in South Africa. AIDS Care 22:6, pages 751-758.
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Tomás Campbell, Hannah Beer, Rebecca Wilkins, Ella Sherlock, Anna Merrett & Jayne Griffiths. (2010) “I look forward. I feel insecure but I am ok with it”. The experience of young HIV+ people attending transition preparation events: a qualitative investigation. AIDS Care 22:2, pages 263-269.
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Tara Vijayan, AndreaL. Benin, Krystn Wagner, Sostena Romano & WarrenA. Andiman. (2009) We never thought this would happen: transitioning care of adolescents with perinatally acquired HIV infection from pediatrics to internal medicine. AIDS Care 21:10, pages 1222-1229.
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Articles from other publishers (38)

Abbie Robinson, Aoife Cooney, Catherine Fassbender & David P McGovern. (2023) Examining the Relationship Between HIV-Related Stigma and the Health and Wellbeing of Children and Adolescents Living with HIV: A Systematic Review. AIDS and Behavior 27:9, pages 3133-3149.
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A.M. ter Haar, A. Fieten, M. Van den Hof, A. Malekzadeh, E.T.M. Laan, K.J. Oostrom & D. Pajkrt. (2022) Sexual Development in Perinatally HIV-Infected Young People: A Systematic Review and Explorative Study. Sexual Medicine 10:6, pages 100578-100578.
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Valentina Vargas, Milagros Wong, Carly A. Rodriguez, Hugo Sanchez, Jerome Galea, Alicia Ramos, Liz Senador, Lenka Kolevic, Eduardo Matos, Eduardo Sanchez, Renato A. Errea, Karen Ramos, Catherine Beckhorn, Andrew Lindeborg, Carlos Benites, Leonid Lecca, Sonya Shin & Molly F. Franke. (2022) Community-based accompaniment for adolescents transitioning to adult HIV care in urban Peru: a pilot study. AIDS and Behavior 26:12, pages 3991-4003.
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Caleb R.S. McEntire, Kathryn T. Fong, Dan Tong Jia, Ellen R. Cooper, Anna M. Cervantes-Arslanian, Farrah J. Mateen, Pria Anand & Kiran T. Thakur. (2021) Central nervous system disease with JC virus infection in adults with congenital HIV. AIDS 35:2, pages 235-244.
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Carly A. Rodriguez, Emiliano Valle, Jerome Galea, Milagros Wong, Lenka Kolevic, Maribel Muñoz, Leonid Lecca & Molly F. Franke. (2019) Understanding health-related behavior among adolescents living with HIV in Lima, Peru. BMC Pediatrics 19:1.
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Richard Stephen Mpango, Eugene Kinyanda, Godfrey Zari Rukundo, Jonathan Levin, Kenneth D. Gadow & Vikram Patel. (2017) Prevalence and correlates for ADHD and relation with social and academic functioning among children and adolescents with HIV/AIDS in Uganda. BMC Psychiatry 17:1.
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M. Mutumba, K. S. Elkington, J. A. Bauermeister, A. Bucek, C. Dolezal, C. S. Leu & C. A. Mellins. (2016) Changes in Substance Use Symptoms Across Adolescence in Youth Perinatally Infected with HIV. AIDS and Behavior 21:4, pages 1117-1128.
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Mylène Fernet, Karène Proulx-Boucher, Nadine Trocmé & Marie-Chantal Cacou. 2017. Le développement sexuel et psychosocial de l'enfant et de l'adolescent. Le développement sexuel et psychosocial de l'enfant et de l'adolescent 255 291 .
Asha Persson, Christy E. Newman, Myra Hamilton, Joanne Bryant, Jack Wallace & kylie valentine. (2017) Families Living with Blood-Borne Viruses: The Case for Extending the Concept of “Serodiscordance”. Interdisciplinary Perspectives on Infectious Diseases 2017, pages 1-10.
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Oluyemisi Aderomilehin, Angella Hanciles-Amu & Oluwatobi Ohiole Ozoya. (2016) Perspectives and Practice of HIV Disclosure to Children and Adolescents by Health-Care Providers and Caregivers in sub-Saharan Africa: A Systematic Review. Frontiers in Public Health 4.
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Eliana Galano, Egberto Ribeiro Turato, Philippe Delmas, José Côté, Aida de Fátima Thomé Barbosa Gouvea, Regina Célia de Menezes Succi & Daisy Maria Machado. (2016) Experiences of adolescents seropositive for HIV/AIDS: a qualitative study. Revista Paulista de Pediatria (English Edition) 34:2, pages 171-177.
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Eliana Galano, Egberto Ribeiro Turato, Philippe Delmas, José Côté, Aida de Fátima Thomé Barbosa Gouvea, Regina Célia de Menezes Succi & Daisy Maria Machado. (2016) Vivências dos adolescentes soropositivos para HIV/Aids: estudo qualitativo. Revista Paulista de Pediatria 34:2, pages 171-177.
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Asha Persson, Christy E. Newman & Angela Miller. 2016. Children and Young People Living with HIV/AIDS. Children and Young People Living with HIV/AIDS 107 124 .
Corry Azzopardi, Robyn Salter, Stephanie Savage, Jason Brophy, Ari Bitnun & Stanley Read. 2016. Children and Young People Living with HIV/AIDS. Children and Young People Living with HIV/AIDS 379 398 .
Pranee Liamputtong. 2016. Children and Young People Living with HIV/AIDS. Children and Young People Living with HIV/AIDS 1 20 .
Linda-Gail Bekker & Sybil Hosek. (2015) HIV and adolescents: focus on young key populations. Journal of the International AIDS Society 18, pages 20076.
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Massy Mutumba & Gary W Harper. (2015) Mental health and support among young key populations: an ecological approach to understanding and intervention. Journal of the International AIDS Society 18:2S1.
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Marnie Vujovic, Helen Struthers, Saranne Meyersfeld, Kgethi Dlamini & Nhlanhla Mabizela. (2014) Addressing the sexual and reproductive health needs of young adolescents living with HIV in South Africa. Children and Youth Services Review 45, pages 122-128.
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Brendan Maughan-Brown & Nicholas Spaull. (2014) HIV-Related Discrimination among Grade Six Students in Nine Southern African Countries. PLoS ONE 9:8, pages e102981.
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Christy NewmanAsha PerssonAngela MillerElena Cama. (2014) Bridging Worlds, Breaking Rules: Clinician Perspectives on Transitioning Young People with Perinatally Acquired HIV Into Adult Care in a Low Prevalence Setting. AIDS Patient Care and STDs 28:7, pages 381-393.
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R Fish, A Judd, E Jungmann, C O'Leary & C Foster. (2014) Mortality in perinatally HIV-infected young people in England following transition to adult care: an HIV Young Persons Network (HYPNet) audit. HIV Medicine 15:4, pages 239-244.
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Rena Greifinger, Gemima St. Louis, Julie Lunstead, Neha Malik & Martha Vibbert. (2013) Participant observation at a youth HIV conference. Qualitative Social Work 13:2, pages 237-254.
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Niraj Sharma, Elizabeth Willen, Ana Garcia & Tanvi S. Sharma. (2014) Attitudes Toward Transitioning in Youth With Perinatally Acquired HIV and Their Family Caregivers. Journal of the Association of Nurses in AIDS Care 25:2, pages 168-175.
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Lise‐Lott Rydström, Britt‐Marie Ygge, Björn Tingberg, Lars Navèr & Lars E. Eriksson. (2012) Experiences of young adults growing up with innate or early acquired HIV infection – a qualitative study . Journal of Advanced Nursing 69:6, pages 1357-1365.
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Claude A Mellins & Kathleen M Malee. (2013) Understanding the mental health of youth living with perinatal HIV infection: lessons learned and current challenges. Journal of the International AIDS Society 16:1, pages 18593.
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Jemma Hogwood, Tomás Campbell & Stephen Butler. (2012) I wish I could tell you but I can’t: Adolescents with perinatally acquired HIV and their dilemmas around self-disclosure. Clinical Child Psychology and Psychiatry 18:1, pages 44-60.
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Cynthia D. Fair, Linda Connor, Jamie Albright, Emily Wise & Kathleen Jones. (2012) “I’m positive, I have something to say”: Assessing the impact of a creative writing group for adolescents living with HIV. The Arts in Psychotherapy 39:5, pages 383-389.
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Cynthia D. FairKristen SullivanRachel DizneyAvra Stackpole. (2012) “It's Like Losing a Part of My Family”: Transition Expectations of Adolescents Living with Perinatally Acquired HIV and Their Guardians. AIDS Patient Care and STDs 26:7, pages 423-429.
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Katherine S. ElkingtonJosé A. BauermeisterReuben N. RobbinsOlga GromadzkaElaine J. AbramsAndrew WizniaMahrukh BamjiClaude A. Mellins. (2012) Individual and Contextual Factors of Sexual Risk Behavior in Youth Perinatally Infected with HIV. AIDS Patient Care and STDs 26:7, pages 411-422.
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Asha Persson & Christy Newman. (2012) When HIV-Positive Children Grow Up. Qualitative Health Research 22:5, pages 656-667.
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Jeanne B. Repetto, Susan Chauncey Horky, Angela Miney, John Reiss, Arwa Saidi, Lisa Wolcott, Pablo Saldana & Jennifer M. Jaress. (2012) Expanding Transition to Address the Needs of Students With Invisible Chronic Illness. Career Development and Transition for Exceptional Individuals 35:1, pages 4-13.
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Karène Proulx-Boucher, Martin Blais, Mylène Fernet, Marie-Ève Richard, Joanne Otis, Joseph Josy Lévy, Johanne Samson, Normand Lapointe, Guylaine Morin, Jocelyne Thériault & Germain Trottier. (2011) Silence et divulgation dans des familles d'adolescents vivant avec le VIH depuis la naissance : une exploration qualitative. Paediatrics & Child Health 16:7, pages 404-408.
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Hannah BundockSarah FidlerSimon ClarkeDeborah Jane Holmes-WalkerKaye FarrellSusan McDonaldGareth Tudor-WilliamsCaroline Foster. (2011) Crossing the Divide: Transition Care Services for Young People with HIV—Their Views. AIDS Patient Care and STDs 25:8, pages 465-473.
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Linda J Koenig, Sherri L Pals, Sulachni Chandwani, Krystal Hodge, Susan Abramowitz, William Barnes & Lawrence D'Angelo. (2010) Sexual Transmission Risk Behavior of Adolescents With HIV Acquired Perinatally or Through Risky Behaviors. JAIDS Journal of Acquired Immune Deficiency Syndromes 55:3, pages 380-390.
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Sara Lowe, Rashida A. Ferrand, Rachael Morris-Jones, Jon Salisbury, Nicholas Mangeya, Munyaradzi Dimairo, Robert F. Miller & Elizabeth L. Corbett. (2010) Skin Disease Among Human Immunodeficiency Virus-Infected Adolescents in Zimbabwe. Pediatric Infectious Disease Journal 29:4, pages 346-351.
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Katherine S. Elkington, Jose A. Bauermeister, Elizabeth Brackis-Cott, Curtis Dolezal & Claude A. Mellins. (2009) Substance Use and Sexual Risk Behaviors in Perinatally Human Immunodeficiency Virus-Exposed Youth: Roles of Caregivers, Peers and HIV Status. Journal of Adolescent Health 45:2, pages 133-141.
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Harriet Birungi, John F. Mugisha, Francis Obare & Juliana K. Nyombi. (2009) Sexual Behavior and Desires Among Adolescents Perinatally Infected with Human Immunodeficiency Virus in Uganda: Implications for Programming. Journal of Adolescent Health 44:2, pages 184-187.
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Caroline Foster, Anne Waelbrouck & Alexandra Peltier. (2007) Adolescents and HIV infection. Current Opinion in HIV and AIDS 2:5, pages 431-436.
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