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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 19, 2007 - Issue 6
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Original Articles

Paediatric HIV/AIDS disclosure: towards a developmental and process-oriented approach

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Pages 811-816 | Published online: 14 Jun 2007

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (14)

Eve S. Puffer, Amy Finnegan, Katie Schenk, Lisa Langhaug, Simbarashe Rusakaniko, Yujung Choi, Simbarashe Mahaso, Ryan Simmons & Eric P. Green. (2023) Comparing fears about paediatric HIV disclosure to the lived experiences of parents and guardians: a prospective cohort study. Psychology & Health 38:12, pages 1587-1605.
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Sylvie Mbebe, Stephan Rabie & Bronwyne J Coetzee. (2023) Factors influencing the transition from paediatric to adult HIV care in the Western Cape, South Africa: perspectives of health care providers. African Journal of AIDS Research 22:3, pages 175-184.
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Megan S McHenry, Edith Apondi, Carole I McAteer, Winstone M Nyandiko, Lydia J Fischer, Ananda R Ombitsa, Josephine Aluoch, Michael L Scanlon & Rachel C Vreeman. (2018) Tablet-based disclosure counselling for HIV-infected children, adolescents, and their caregivers: a pilot study. African Journal of AIDS Research 17:3, pages 249-258.
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Haochu Li, Xiaoming Li, Lai Sze Tso, Shan Qiao, Eleanor Holroyd, Yuejiao Zhou & Zhiyong Shen. (2016) HIV-negative children’s experiences and opinions towards parental HIV disclosure: a qualitative study in China. Vulnerable Children and Youth Studies 11:2, pages 173-179.
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Xiaoming Li, Shan Qiao, John de Wit & Lorraine Sherr. (2015) What's in the telling? Understanding social, psychological and clinical aspects of HIV disclosure. AIDS Care 27:sup1, pages 1-5.
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Chompoonoot Sirikum, Jiratchaya Sophonphan, Thongsuai Chuanjaroen, Sudrak Lakonphon, Amornrat Srimuan, Patcharaporn Chusut, Tanya C. Do, Wasana Prasitsuebsai, Thanyawee Puthanakit, Jintanat Ananworanich & Torsak Bunupuradah. (2014) HIV disclosure and its effect on treatment outcomes in perinatal HIV-infected Thai children. AIDS Care 26:9, pages 1144-1149.
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Godfrey E. Siu, Sabrina Bakeera-Kitaka, Caitlin E. Kennedy, Aggrey Dhabangi & Andrew Kambugu. (2012) HIV serostatus disclosure and lived experiences of adolescents at the Transition Clinic of the Infectious Diseases Clinic in Kampala, Uganda: A qualitative study. AIDS Care 24:5, pages 606-611.
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G. Anita Heeren, JohnB. Jemmott$suffix/text()$suffix/text(), Lulama Sidloyi, Zolani Ngwane & JoanneC. Tyler. (2012) Disclosure of HIV diagnosis to HIV-infected children in South Africa: Focus groups for intervention development. Vulnerable Children and Youth Studies 7:1, pages 47-54.
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Judith Chew, Ang Lee Beng & Sylvia Mun. (2012) Parental Concerns About Disclosure of a Child's HIV/AIDS Status in Singapore. Social Work in Health Care 51:1, pages 5-21.
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G. Anita Heeren. (2011) Changing methods of disclosure. Literature review of disclosure to children with terminal illnesses, including HIV. Innovation: The European Journal of Social Science Research 24:1-2, pages 199-208.
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Adriana Cadilla, Nadia Qureshi & Daniel C Johnson. (2010) Pediatric antiretroviral therapy. Expert Review of Anti-infective Therapy 8:12, pages 1381-1402.
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Tomás Campbell, Hannah Beer, Rebecca Wilkins, Ella Sherlock, Anna Merrett & Jayne Griffiths. (2010) “I look forward. I feel insecure but I am ok with it”. The experience of young HIV+ people attending transition preparation events: a qualitative investigation. AIDS Care 22:2, pages 263-269.
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Articles from other publishers (62)

Veronika ShabanovaLeonard Emuren, Geliang GanSampson AntwiLorna RennerKofi AmissahJonas Tettey KusahMargaret Lartey, Nancy R. ReynoldsElijah Paintsil. (2023) Pediatric HIV Disclosure Intervention Improves Immunologic Outcome at 48 Weeks: The Sankofa Trial Experience. JAIDS Journal of Acquired Immune Deficiency Syndromes 94:4, pages 371-380.
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Amos Buh, Raywat Deonandan, James Gomes, Alison Krentel, Olanrewaju Oladimeji & Sanni Yaya. (2023) Barriers and facilitators to ART adherence among ART non-adherence people living with HIV in Cameroon: A qualitative phenomenological study. PLOS ONE 18:9, pages e0291487.
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Md. Mominur Rahman, Fahadul Islam, Md. Saidur Rahaman, Nazneen Ahmeda Sultana, Nahian Fyrose Fahim & Muniruddin Ahmed. (2021) Studies on the prevalence of HIV/AIDS in Bangladesh including other developing countries. Advances in Traditional Medicine 23:3, pages 647-658.
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Bahram Armoon, Marie-Josée Fleury, Peter Higgs, Amir-Hossien Bayat, Azadeh Bayani, Rasool Mohammadi & Elaheh Ahounbar. (2022) Prevalence, socio-demographics and service use determinants associated with disclosure of HIV/AIDS status to infected children: a systematic review and meta-analysis by 1985–2021. Archives of Public Health 80:1.
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Julian W. März. (2022) What does the best interests principle of the convention on the rights of the child mean for paediatric healthcare?. European Journal of Pediatrics 181:11, pages 3805-3816.
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Brian C. Zanoni, Moherndran Archary, Tamarra Subramony, Thobekile Sibaya, Christina Psaros & Jessica E. Haberer. (2020) Disclosure, Social Support, and Mental Health are Modifiable Factors Affecting Engagement in Care of Perinatally-HIV Infected Adolescents: A Qualitative Dyadic Analysis. AIDS and Behavior 25:1, pages 237-248.
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Henna Budhwani, Lori Mills, Lauren E. B. Marefka, Sequoya Eady, Van T. Nghiem & Tina Simpson. (2020) Preliminary study on HIV status disclosure to perinatal infected children: retrospective analysis of administrative records from a pediatric HIV clinic in the southern United States. BMC Research Notes 13:1.
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Oghenebrume Wariri, Ayomikun Ajani, Mercy Poksireni Raymond, Asabe Iliya, Olatoke Lukman, Emmanuel Okpo & Elon Isaac. (2020) “What will my child think of me if he hears I gave him HIV?”: a sequential, explanatory, mixed-methods approach on the predictors and experience of caregivers on disclosure of HIV status to infected children in Gombe, Northeast Nigeria. BMC Public Health 20:1.
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Krisna Yetti, Linlin Lindayani & Mei-Chih Huang. (2020) Children HIV disclosure: Should the children know their HIV status prior treatment and what are the information have to be told?. Clinical Ethics 15:3, pages 162-166.
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Elijah Paintsil, Tassos C. Kyriakides, Sampson Antwi, Lorna Renner, Justin S. Nichols, Kofi Amissah, Jonas T. Kusah, Amina Alhassan, Irene P. Ofori, Ann C. Catlin, Geliang Gan, Margaret Lartey & Nancy R. Reynolds. (2020) Clinic-Based Pediatric Disclosure Intervention Trial Improves Pediatric HIV Status Disclosure in Ghana. JAIDS Journal of Acquired Immune Deficiency Syndromes 84:1, pages 122-131.
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Yan Zhao, Willa Dong & Zhongfu Liu. 2020. HIV/AIDS in China. HIV/AIDS in China 291 312 .
Qian Wang, Zixin Wang, Xiaomeng Ma, Yuan Fang, Phoenix K. H. Mo & Joseph T. F. Lau. (2019) Important Roles of Health Professionals in Maternal HIV Disclosure Among HIV-Infected Women in China. AIDS and Behavior 23:10, pages 2829-2836.
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Ana María Trejos-Herrera, Yolima Alarcón-Vásquez, Mariana Pino-Melgarejo & Moises Mebarak-Chams. (2019) Validación de una herramienta para revelar diagnóstico de VIH a niños y adolescentes. Revista de la Facultad de Medicina 67:1, pages 37-43.
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Fatch W. Kalembo, Garth E. Kendall, Mohammed Ali & Angela F. Chimwaza. (2018) Healthcare workers’ perspectives and practices regarding the disclosure of HIV status to children in Malawi: a cross-sectional study. BMC Health Services Research 18:1.
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Anna Hayfron-Benjamin, Dorcas Obiri-Yeboah, Stephen Ayisi-Addo, Peter Mate Siakwa & Sylvia Mupepi. (2018) HIV diagnosis disclosure to infected children and adolescents; challenges of family caregivers in the Central Region of Ghana. BMC Pediatrics 18:1.
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Mary Bachman DeSilva, Nicole Penwill, Lora Sabin, Allen L. Gifford, Zhong Li, Zhang Fujie, Mu Weiwei, Li Yongzhen, Lu Hongyan, Zeng Xuemei, Yiyao Barnoon, Christopher J. Gill & Rachael Bonawitz. (2018) We don't dare to tell her … we don't know where to begin: Disclosure experiences and challenges among adolescents living with HIV and their caregivers in China. International Journal of Pediatrics and Adolescent Medicine 5:1, pages 5-12.
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Amira Noori Baker, Angela Marie Bayer, Lenka Kolevic, Lizzete Najarro, Rolando Mario Viani & Jaime Gerardo Deville. (2018) Child, Caregiver, and Health Care Provider Perspectives and Experiences Regarding Disclosure of HIV Status to Perinatally Infected Children in Lima, Peru. Journal of the International Association of Providers of AIDS Care (JIAPAC) 17, pages 232595741775225.
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Julia V. RamosBlandina T. MmbagaElizabeth L. TurnerLeonia L. RugalabamuSevera LuhangaColeen K. CunninghamDorothy E. Dow. (2018) Modality of Primary HIV Disclosure and Association with Mental Health, Stigma, and Antiretroviral Therapy Adherence in Tanzanian Youth Living with HIV. AIDS Patient Care and STDs 32:1, pages 31-37.
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Georgina Silva-Suárez, Silvia E. Rabionet & Carmen D. Zorrilla. (2017) HIV normalization message and its implication on the lives of perinatally HIV-infected youth in Puerto Rico. Journal of Pharmaceutical Health Services Research 8:4, pages 241-246.
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Kristin M. Beima-Sofie, Laura Brandt, Ndapewa Hamunime, Mark Shepard, James Uusiku, Grace C. John-Stewart & Gabrielle O'Malley. (2017) Pediatric HIV Disclosure Intervention Improves Knowledge and Clinical Outcomes in HIV-Infected Children in Namibia. JAIDS Journal of Acquired Immune Deficiency Syndromes 75:1, pages 18-26.
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Tamsen J. Rochat, Joanie Mitchell, Anina M. Lubbe, Alan Stein, Mark Tomlinson & Ruth M. Bland. (2017) Communication about HIV and death: Maternal reports of primary school-aged children's questions after maternal HIV disclosure in rural South Africa. Social Science & Medicine 172, pages 124-134.
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Rozan Abdulrahman, Emma Stuard, Mary E. Vachon, Cate Nicholas, Richard Neugebauer, Stefan H. F. Hagmann & Murli U. Purswani. (2016) Predictors of Disclosure of Maternal HIV Status by Caregivers to their Children in an Inner-City Community in the United States. AIDS and Behavior 21:1, pages 141-151.
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Daniel H. de VriesLuca KoppenAdolfo Mejia LopezReina Foppen. (2016) The Vicious Cycle of Stigma and Disclosure in “Self-Management”: A Study Among the Dutch HIV Population. AIDS Education and Prevention 28:6, pages 485-498.
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Oluyemisi Aderomilehin, Angella Hanciles-Amu & Oluwatobi Ohiole Ozoya. (2016) Perspectives and Practice of HIV Disclosure to Children and Adolescents by Health-Care Providers and Caregivers in sub-Saharan Africa: A Systematic Review. Frontiers in Public Health 4.
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Heidi van Rooyen, Zaynab Essack, Tamsen Rochat, Daniel Wight, Lucia Knight, Ruth Bland & Connie Celum. (2016) Taking HIV Testing to Families: Designing a Family-Based Intervention to Facilitate HIV Testing, Disclosure, and Intergenerational Communication. Frontiers in Public Health 4.
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Carl BrittoKayur MehtaRwituja ThomasAnita Shet. (2016) Prevalence and Correlates of HIV Disclosure Among Children and Adolescents in Low- and Middle-Income Countries: A Systematic Review. Journal of Developmental & Behavioral Pediatrics 37:6, pages 496-505.
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Tomás Campbell & Jayne Griffiths. 2016. Children and Young People Living with HIV/AIDS. Children and Young People Living with HIV/AIDS 399 420 .
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Daniel Nyogea, Sally Mtenga, Lars Henning, Fabian C Franzeck, Tracy R Glass, Emilio Letang, Marcel Tanner & Eveline Geubbels. (2015) Determinants of antiretroviral adherence among HIV positive children and teenagers in rural Tanzania: a mixed methods study. BMC Infectious Diseases 15:1.
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Eric Gyamfi, Paul Okyere, Emmanuel Appiah-Brempong, Rose Odotei Adjei & Kofi Akohene Mensah. (2015) Benefits of Disclosure of HIV Status to Infected Children and Adolescents: Perceptions of Caregivers and Health Care Providers. Journal of the Association of Nurses in AIDS Care 26:6, pages 770-780.
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Jennifer Watermeyer. (2015) ‘Are we allowed to disclose?’: a healthcare team's experiences of talking with children and adolescents about their HIV status. Health Expectations 18:4, pages 590-600.
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Claire Penn. (2015) ‘Too much for one day’: a case study of disclosure in the paediatric HIV/AIDS clinic. Health Expectations 18:4, pages 578-589.
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Nancy R. Reynolds, Angela Ofori-Atta, Margaret Lartey, Lorna Renner, Sampson Antwi, Anthony Enimil, Ann Christine Catlin, Sumudinie Fernando, Tassos C. Kyriakides & Elijah Paintsil. (2015) SANKOFA. AIDS 29:Supplement 1, pages S35-S45.
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Lucie D. Cluver, Rebecca J. Hodes, Elona Toska, Khameer K. Kidia, F. Mark Orkin, Lorraine Sherr & Franziska Meinck. (2015) ‘HIV is like a tsotsi. ARVs are your guns’. AIDS 29:Supplement 1, pages S57-S65.
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Laura Brandt, Kristin Beima-Sofie, Ndapewa Hamunime, Mark Shepard, Larissa Ferris, Paulina Ingo, Grace John-Stewart & Gabrielle O’Malley. (2015) Growing-up just like everyone else. AIDS 29:Supplement 1, pages S81-S89.
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Jane M. Simoni, Joyce P. Yang, Cheng-Shi Shiu, Wei-ti Chen, Wadiya Udell, Meijuan Bao, Lin Zhang & Hongzhou Lu. (2015) Nurse-delivered counselling intervention for parental HIV disclosure. AIDS 29:Supplement 1, pages S99-S107.
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Gabrielle O'Malley, Kristin Beima-Sofie, Larissa Feris, Mark Shepard-Perry, Ndapewa Hamunime, Grace John-Stewart, Francina Kaindjee-Tjituka & Laura Brandt. (2015) “If I Take My Medicine, I Will Be Strong. JAIDS Journal of Acquired Immune Deficiency Syndromes 68:1, pages e1-e7.
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Elizabeth D. Lowenthal, Haruna B. Jibril, Mmapula L. Sechele, Keofentse Mathuba, Ontibile Tshume & Gabriel M. Anabwani. (2014) Disclosure of HIV status to HIV-infected children in a large African treatment center: Lessons learned in Botswana. Children and Youth Services Review 45, pages 143-149.
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John B. Jemmott III, G. Anita Heeren, Lulama Sidloyi, C. Show Marange, Joanne C. Tyler & Zolani Ngwane. (2013) Caregivers’ Intentions to Disclose HIV Diagnosis to Children Living with HIV in South Africa: A Theory-Based Approach. AIDS and Behavior 18:6, pages 1027-1036.
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