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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 24, 2012 - Issue 9
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ORIGINAL ARTICLES

Disclosure of diagnosis by parents and caregivers to children infected with HIV: Prevalence associated factors and perceived barriers in Addis Ababa, Ethiopia

Workeabeba Abebe Department of Pediatrics and Child Health, School of Medicine, College of Health Sciences, Addis Ababa University, Addis Ababa, EthiopiaCorrespondence[email protected]
&
Solomon Teferra Department of Pediatrics and Child Health, School of Medicine, College of Health Sciences, Addis Ababa University, Addis Ababa, Ethiopia
Pages 1097-1102 | Received 15 Dec 2010, Accepted 09 Jan 2012, Published online: 09 Feb 2012

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Robert Kairania, Washington Onyango-Ouma, Tom G Ondicho & Godfrey Kigozi. (2022) HIV status disclosure and antiretroviral therapy adherence among children in Masaka region, Uganda. African Journal of AIDS Research 21:3, pages 251-260.
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Mulatu Biru, Pia Lunqvist, Mitikie Molla, Degu Jerene & Inger Hallström. (2018) Hope for the Future But Fear the Risk of Stigma: Ethiopian Family Caregivers’ Lived Experience of Caring for Their HIV Positive Child Two Years After Starting Antiretroviral Treatment. Comprehensive Child and Adolescent Nursing 41:4, pages 293-309.
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Eveline Ndinelao Kalomo, Minli Liao, Fred Besthorn, Anna Panduleni Kauko Shilunga & Claudia Mbapaha. (2017) To tell or not to tell: Dimensions of disclosure to children with HIV in the Zambezi region of Northern Namibia. Journal of HIV/AIDS & Social Services 16:3, pages 250-268.
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Pamela M. Murnane, Stacy-Lee Sigamoney, Francoise Pinillos, Stephanie Shiau, Renate Strehlau, Faeezah Patel, Afaaf Liberty, Elaine J. Abrams, Stephen Arpadi, Ashraf Coovadia, Avy Violari & Louise Kuhn. (2017) Extent of disclosure: what perinatally HIV-infected children have been told about their own HIV status. AIDS Care 29:3, pages 378-386.
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Mulatu Biru, Pia Lundqvist, Mitikie Molla, Degu Jerene & Inger Hallström. (2015) Surviving Overwhelming Challenges: Family Caregivers’ Lived Experience of Caring for a Child Diagnosed with HIV and Enrolled in Antiretroviral Treatment in Ethiopia. Issues in Comprehensive Pediatric Nursing 38:4, pages 282-299.
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Chompoonoot Sirikum, Jiratchaya Sophonphan, Thongsuai Chuanjaroen, Sudrak Lakonphon, Amornrat Srimuan, Patcharaporn Chusut, Tanya C. Do, Wasana Prasitsuebsai, Thanyawee Puthanakit, Jintanat Ananworanich & Torsak Bunupuradah. (2014) HIV disclosure and its effect on treatment outcomes in perinatal HIV-infected Thai children. AIDS Care 26:9, pages 1144-1149.
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Grace C. John-Stewart, Grace Wariua, Kristin M. Beima-Sofie, Barbra A. Richardson, Carey Farquhar, Elizabeth Maleche-Obimbo, Dorothy Mbori-Ngacha & Dalton Wamalwa. (2013) Prevalence, perceptions, and correlates of pediatric HIV disclosure in an HIV treatment program in Kenya. AIDS Care 25:9, pages 1067-1076.
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Elizabeth Rapa, Jeffrey R Hanna, Teresa Pollard, Stephanie Santos-Paulo, Yasmin Gogay, Julia Ambler, Elizabeth Namukwaya, David Kavuma, Elizabeth Nabirye, Ruth Mary Kemigisha, Juliet Namyeso, Tracey Brand, Louise Walker, Beverley G Neethling, Julia Downing, Sue Ziebland, Alan Stein & Louise J Dalton. (2023) Exploring the experiences of healthcare professionals in South Africa and Uganda around communicating with children about life-threatening conditions: a workshop-based qualitative study to inform the adaptation of communication frameworks for use in these settings. BMJ Open 13:1, pages e064741.
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Getaneh Mulualem Belay, Fikadu Ambaw Yehualashet, Amare Wondim Ewunetie & Kendalem Asmare Atalell. (2022) Pediatrics HIV-positive status disclosure and its predictors in Ethiopia: a systematic review and meta-analysis. PeerJ 10, pages e13896.
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Tesfanesh Lemma, Mulualem Silesh, Birhan Tsegaw Taye, Kelem Desta, Tebabere Moltot Kitaw & Tiwabwork Tekalign. (2022) HIV Serostatus Disclosure and Its Predictors Among Children Living With HIV in Ethiopia: A Systematic Review and Meta-Analysis. Frontiers in Public Health 10.
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Alemitu Mequanint Bezabih, Kathrin Gerling, Workeabeba Abebe & Vero Vanden Abeele. (2022) The Challenge of (Non-)Disclosure: Exploring the Lived Experience of Ethiopian Adolescents with HIV and Their Attitudes Toward Technology. The Challenge of (Non-)Disclosure: Exploring the Lived Experience of Ethiopian Adolescents with HIV and Their Attitudes Toward Technology.
Katie Warburton, Lars Navér, Juliet Houghton & Kamila Fatikhova. (2022) Talking to children about their HIV diagnosis: a discussion rooted in different global perspectives. British Journal of Nursing 31:1, pages S4-S9.
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Behzad Imani, Shirdel Zandi, Salman khazaei & Mohamad Mirzaei. (2021) The lived experience of HIV-infected patients in the face of a positive diagnosis of the disease: a phenomenological study. AIDS Research and Therapy 18:1.
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Luiza Cremonese, Stela Maris de Mello Padoin & Cristiane Cardoso de Paula. (2021) Communication of HIV diagnosis in proper time: scoping review. Revista da Escola de Enfermagem da USP 55.
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Cebsile P. Dlamini & Mokgadi C. Matlakala. (2020) Disclosure of human immunodeficiency virus status to children: Pattern followed by parents and caregivers. African Journal of Primary Health Care & Family Medicine 12:1.
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Alemu Guta, Habtamu Abera Areri, Kirubel Anteab, Legesse Abera & Abdurezak Umer. (2020) HIV-positive status disclosure and associated factors among children in public health facilities in Dire Dawa, Eastern Ethiopia: A cross-sectional study. PLOS ONE 15:10, pages e0239767.
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Abdul-Razak Doat, Reza Negarandeh & Marzieh Hasanpour. (2019) Disclosure of HIV Status to Children in Sub-Saharan Africa: A Systematic Review. Medicina 55:8, pages 433.
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Talitha Crowley, Anita van der Merwe & Donald Skinner. (2019) Adolescent HIV Self-management. Journal of the Association of Nurses in AIDS Care 30:4, pages e7-e19.
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Sue Holden, Vanessa LZ Gordon-Dseagu, Gill Gordon, Nelson Chiziza, Pfiriaeli Kiwia, Daniel Magesa, Willbrord Manyama & Alice Welbourn. (2018) Building resilience to adverse childhood experiences: An assessment of the effects of the Stepping Stones with Children training programme on Tanzanian children affected by HIV and their caregivers . Health Education Journal 78:2, pages 124-137.
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Seth Appiah, Inge Kroidl, Michael Hoelscher, Olena Ivanova & Jonathan Dapaah. (2019) A Phenomenological Account of HIV Disclosure Experiences of Children and Adolescents from Northern and Southern Ghana. International Journal of Environmental Research and Public Health 16:4, pages 595.
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Bernadette Ngeno, Anthony Waruru, Irene Inwani, Lucy Nganga, Evelyn Ngugi Wangari, Abraham Katana, Anthony Gichangi, Ann Mwangi, Irene Mukui & George W. Rutherford. (2019) Disclosure and Clinical Outcomes Among Young Adolescents Living With HIV in Kenya. Journal of Adolescent Health 64:2, pages 242-249.
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Ana María Trejos-Herrera, Yolima Alarcón-Vásquez, Mariana Pino-Melgarejo & Moises Mebarak-Chams. (2019) Validación de una herramienta para revelar diagnóstico de VIH a niños y adolescentes. Revista de la Facultad de Medicina 67:1, pages 37-43.
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Bikila Lencha, Gemehu Ameya, Zanebe Minda, Feyissa Lamessa & Jiregna Darega. (2018) Human immunodeficiency virus infection disclosure status to infected school aged children and associated factors in bale zone, Southeast Ethiopia: cross sectional study. BMC Pediatrics 18:1.
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Justin C. Graves, Peter Elyanu, Christine J. Schellack, Barbara Asire, Margaret L. Prust, Marta R. Prescott, Esther Mirembe, Ivan Lukabwe, Betty Mirembe, Joshua Musinguzi & Sarah A. Moberley. (2018) Impact of a Family Clinic Day intervention on paediatric and adolescent appointment adherence and retention in antiretroviral therapy: A cluster randomized controlled trial in Uganda. PLOS ONE 13:3, pages e0192068.
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Sumiyo Okawa, Sylvia Mwanza-Kabaghe, Mwiya Mwiya, Kimiyo Kikuchi, Masamine Jimba, Chipepo Kankasa & Naoko Ishikawa. (2017) Adolescents’ Experiences and Their Suggestions for HIV Serostatus Disclosure in Zambia: A Mixed-Methods Study. Frontiers in Public Health 5.
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Kristin M. Beima-Sofie, Laura Brandt, Ndapewa Hamunime, Mark Shepard, James Uusiku, Grace C. John-Stewart & Gabrielle O'Malley. (2017) Pediatric HIV Disclosure Intervention Improves Knowledge and Clinical Outcomes in HIV-Infected Children in Namibia. JAIDS Journal of Acquired Immune Deficiency Syndromes 75:1, pages 18-26.
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Beatrice J. Krauss, Susan Letteney & Chioma N. Okoro. (2016) Why Tell Children: A Synthesis of the Global Literature on Reasons for Disclosing or Not Disclosing an HIV Diagnosis to Children 12 and under. Frontiers in Public Health 4.
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Oluyemisi Aderomilehin, Angella Hanciles-Amu & Oluwatobi Ohiole Ozoya. (2016) Perspectives and Practice of HIV Disclosure to Children and Adolescents by Health-Care Providers and Caregivers in sub-Saharan Africa: A Systematic Review. Frontiers in Public Health 4.
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Carl Britto, Kayur Mehta, Rwituja Thomas & Anita Shet. (2016) Prevalence and Correlates of HIV Disclosure Among Children and Adolescents in Low- and Middle-Income Countries: A Systematic Review. Journal of Developmental & Behavioral Pediatrics 37:6, pages 496-505.
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Bruna Pase Zanon, Cristiane Cardoso de Paula & Stela Maris de Mello Padoin. (2016) Revelação do diagnóstico de HIV para crianças e adolescentes: subsídios para prática assistencial. Revista Gaúcha de Enfermagem 37:spe.
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Crhis Netto de Brum, Cristiane Cardoso de Paula, Stela Maris de Mello Padoin & Samuel Spiegelberg Zuge. (2016) EXPERIENCE OF DIAGNOSIS DISCLOSURE FOR TEENAGERS WITH HIV. Texto & Contexto - Enfermagem 25:4.
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Sphiwe Madiba. (2016) Caregivers Lack of Disclosure Skills Delays Disclosure to Children with Perinatal HIV in Resource-Limited Communities: Multicenter Qualitative Data from South Africa and Botswana. Nursing Research and Practice 2016, pages 1-7.
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Mable Mweemba, Maurice M. Musheke, Charles Michelo, Hikabasa Halwiindi, Oliver Mweemba & Joseph M. Zulu. (2015) “When am I going to stop taking the drug?” Enablers, barriers and processes of disclosure of HIV status by caregivers to adolescents in a rural district in Zambia. BMC Public Health 15:1.
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John B. Jemmott III, G. Anita Heeren, Lulama Sidloyi, C. Show Marange, Joanne C. Tyler & Zolani Ngwane. (2013) Caregivers’ Intentions to Disclose HIV Diagnosis to Children Living with HIV in South Africa: A Theory-Based Approach. AIDS and Behavior 18:6, pages 1027-1036.
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B. Ryan Phelps, Saeed Ahmed, Anouk Amzel, Mamadou O. Diallo, Troy Jacobs, Scott E. Kellerman, Maria H. Kim, Nandita Sugandhi, Melanie Tam & Megan Wilson-Jones. (2013) Linkage, initiation and retention of children in the antiretroviral therapy cascade. AIDS 27:Supplement 2, pages S207-S213.
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Kathryn Cantrell, Nehali Patel, Belinda Mandrell & Shawna Grissom. (2013) Pediatric HIV Disclosure: A Process-Oriented Framework. AIDS Education and Prevention 25:4, pages 302-314.
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Lynne M Mofenson & Mark F Cotton. (2013) The challenges of success: adolescents with perinatal HIV infection. Journal of the International AIDS Society 16:1, pages 18650.
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Guanga David Meless, Hortense Aka-Dago-Akribi, Chantal Cacou, Tanoh François Eboua, Addi Edmond Aka, Aimé Maxime Oga, Belinda Bouah, Messou Eugène, Corinne Moh, Elise Arrivé, Marguerite Timité-Konan & Valériane Leroy. (2013) Notification of HIV status disclosure and its related factors in HIV-infected adolescents in 2009 in the Aconda program (CePReF, CHU Yopougon) in Abidjan, Côte d'Ivoire, The PRADO-CI Study. Journal of the International AIDS Society 16:1, pages 18569.
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