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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 29, 2017 - Issue 3
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Articles

Extent of disclosure: what perinatally HIV-infected children have been told about their own HIV status

Pamela M. MurnaneGertrude H. Sergievsky Center, College of Physicians and Surgeons, Columbia University, New York, NY, USAView further author information
,
Stacy-Lee SigamoneyPerinatal HIV Research Unit, Chris Hani Baragwanath Hospital, University of the Witwatersrand, Johannesburg, South AfricaView further author information
,
Francoise PinillosEmpilweni Services and Research Unit, Rahima Moosa Mother and Child Hospital, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South AfricaView further author information
,
Stephanie ShiauGertrude H. Sergievsky Center, College of Physicians and Surgeons, Columbia University, New York, NY, USA;Department of Epidemiology, Mailman School of Public Health, Columbia University, New York, NY, USAView further author information
,
Renate StrehlauEmpilweni Services and Research Unit, Rahima Moosa Mother and Child Hospital, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South AfricaView further author information
,
Faeezah PatelEmpilweni Services and Research Unit, Rahima Moosa Mother and Child Hospital, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South AfricaView further author information
,
Afaaf LibertyPerinatal HIV Research Unit, Chris Hani Baragwanath Hospital, University of the Witwatersrand, Johannesburg, South AfricaView further author information
,
Elaine J. AbramsDepartment of Epidemiology, Mailman School of Public Health, Columbia University, New York, NY, USA;ICAP, Mailman School of Public Health, Columbia University, New York, NY, USA;Department of Pediatrics, College of Physicians and Surgeons, Columbia University, New York, NY, USAView further author information
,
Stephen ArpadiGertrude H. Sergievsky Center, College of Physicians and Surgeons, Columbia University, New York, NY, USA;Department of Epidemiology, Mailman School of Public Health, Columbia University, New York, NY, USA;ICAP, Mailman School of Public Health, Columbia University, New York, NY, USA;Department of Pediatrics, College of Physicians and Surgeons, Columbia University, New York, NY, USAView further author information
,
Ashraf CoovadiaEmpilweni Services and Research Unit, Rahima Moosa Mother and Child Hospital, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South AfricaView further author information
,
Avy ViolariPerinatal HIV Research Unit, Chris Hani Baragwanath Hospital, University of the Witwatersrand, Johannesburg, South AfricaView further author information
&
Louise KuhnGertrude H. Sergievsky Center, College of Physicians and Surgeons, Columbia University, New York, NY, USA;Department of Epidemiology, Mailman School of Public Health, Columbia University, New York, NY, USACorrespondence[email protected]
View further author information
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Pages 378-386 | Received 21 Mar 2016, Accepted 09 Aug 2016, Published online: 29 Aug 2016

Citations (23)

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Harriet Opondo, Natalya Ann Lindo, Hailey B. Morris & Huan Chen. (2023) Counsellors’ experiences of HIV status disclosure to children living with HIV in Uganda. British Journal of Guidance & Counselling 51:6, pages 883-898.
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Paul Ouedraogo, Lolita Kanzyemo, Rossana Razza, Virginio Pietra, Eric Belemsobgom & Richard Fabian Schumacher. (2023) Transition of adolescents living with HIV from pediatric to adult care, a retrospective 12-year Single Center Study from the Sahel Region in West-Africa. AIDS Care 0:0, pages 1-7.
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Melody Wu, Stephanie Shiau, Renate Strehlau, Afaaf Liberty, Faeezah Patel, Megan Burke, Pamela M. Murnane, Avy Violari, Michael T. Yin, Elaine J. Abrams, Louise Kuhn & Stephen Arpadi. (2023) Disclosure to South African children about their own HIV status over time. AIDS Care 35:3, pages 334-340.
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Kate Cockcroft & Nafisa Cassimjee. (2020) HIV/AIDS in South African schools: Neuropsychological and psychoeducational implications. International Journal of School & Educational Psychology 8:4, pages 269-278.
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Mulatu Biru, Pia Lunqvist, Mitikie Molla, Degu Jerene & Inger Hallström. (2018) Hope for the Future But Fear the Risk of Stigma: Ethiopian Family Caregivers’ Lived Experience of Caring for Their HIV Positive Child Two Years After Starting Antiretroviral Treatment. Comprehensive Child and Adolescent Nursing 41:4, pages 293-309.
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William CW Wong, Eleanor Holroyd, Heidi YH Miu, Claire S Wong, Yanping Zhao & Jianbo Zhang. (2017) Secrets, shame and guilt: HIV disclosure in rural Chinese families from the perspective of caregivers. Vulnerable Children and Youth Studies 12:4, pages 292-303.
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Articles from other publishers (17)

Louise Kuhn, Tian Wang, Fan Li, Renate Strehlau, Nicole H. Tobin, Avy Violari, Sarah Brooker, Faeezah Patel, Afaaf Liberty, Stephanie Shiau, Stephen M. Arpadi, Sunil Wadhwa, Michael T. Yin, Shuang Wang, Caroline T. TiemessenGrace M. Aldrovandi. (2023) Microbiota in the oral cavity of school-age children with HIV who started antiretroviral therapy at young ages in South Africa. AIDS 37:10, pages 1583-1591.
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Bahram Armoon, Marie-Josée Fleury, Peter Higgs, Amir-Hossien Bayat, Azadeh Bayani, Rasool Mohammadi & Elaheh Ahounbar. (2022) Prevalence, socio-demographics and service use determinants associated with disclosure of HIV/AIDS status to infected children: a systematic review and meta-analysis by 1985–2021. Archives of Public Health 80:1.
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Celeste Joyce, Candice Ramsammy, Lisa Galvin, Given Leshabane, Afaaf Liberty, Kennedy Otwombe, Janice Buckley, Minja Milovanovic & Avy Violari. (2022) Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations. PLOS ONE 17:11, pages e0277202.
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Faustin Nd. Kitetele, Gilbert M. Lelo, Cathy E. Akele, Patricia V. M. Lelo, Eric M. Mafuta, Thorkild Tylleskär & Espérance Kashala-Abotnes. (2022) “The Peer Educator Is the Game-Changer of My Life”: Perceptions of Adolescents Living with HIV in DR Congo on Involving Peer Educators in the Process of HIV Disclosure. Children 9:8, pages 1239.
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Candice W. Ramsammy, Lisa Galvin, Celeste Joyce, Given Leshabane, Janice Buckley, Kennedy Otwombe, Afaaf Liberty & Avy Violari. (2022) Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa. Frontiers in Pediatrics 10.
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Janice Buckley, Kennedy OtwombeCeleste Joyce, Given LeshabaneLisa Galvin, Candice Ramsammy, Moshoko Emily LebotsaAfaaf LibertyAvy Violari. (2022) Impact of Disclosure over Time on the Emotional Well-Being of Children with Perinatally Acquired HIV Infection in South Africa. Journal of Developmental & Behavioral Pediatrics 43:3, pages e188-e196.
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Érika Eberline Pacheco dos Santos, Aline Cammarano Ribeiro, Stela Maris de Mello Padoin, Maria Clara da Silva Valadão & Cristiane Cardoso de Paula. (2021) Comunicação do diagnóstico de infecção pelo HIV: experiência de jovens. Revista Bioética 29:4, pages 867-879.
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Luiza Cremonese, Stela Maris de Mello Padoin & Cristiane Cardoso de Paula. (2021) Communication of HIV diagnosis in proper time: scoping review. Revista da Escola de Enfermagem da USP 55.
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Mmathale Molokwane & Sphiwe Madiba. (2021) Truth, Deception, and Coercion; Communication Strategies Used by Caregivers of Children with Perinatally Acquired HIV During the Pre-Disclosure and Post-Disclosure Period in Rural Communities in South Africa. Global Pediatric Health 8, pages 2333794X2110222.
Crossref
Stephanie Shiau, Henry Evans, Renate Strehlau, Yanhan Shen, Megan Burke, Afaaf Liberty, Ashraf Coovadia, Elaine J. Abrams, Michael T. Yin, Avy Violari, Louise Kuhn & Stephen M. Arpadi. (2020) Behavioral Functioning and Quality of Life in South African Children Living with HIV on Antiretroviral Therapy. The Journal of Pediatrics 227, pages 308-313.e2.
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Chipo Mutambo, Kemist Shumba & Khumbulani W. Hlongwana. (2020) Post-training and mentorship experiences of KidzAlive-trained healthcare workers at primary healthcare facilities in KwaZulu-Natal, South Africa. African Journal of Primary Health Care & Family Medicine 12:1.
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Faeezah Patel, Cara Thurman, Afaaf Liberty, Megan Burke, Renate Strehlau, Stephanie Shiau, Ashraf Coovadia, Elaine J. Abrams, Avy Violari & Louise Kuhn. (2020) Negative Diagnostic PCR Tests in School-Aged, HIV-Infected Children on Antiretroviral Therapy Since Early Life in Johannesburg, South Africa. JAIDS Journal of Acquired Immune Deficiency Syndromes 83:4, pages 381-389.
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Jane N. Mutanga, Simon Mutembo, Amara E. Ezeamama, Xiao Song, Robert C. Fubisha, Kunda Mutesu-Kapembwa, Derrick Sialondwe, Brenda Simuchembu, Jelita Chinyonga, Philip E. Thuma & Christopher C. Whalen. (2019) Predictors of loss to follow-up among children on long-term antiretroviral therapy in Zambia (2003–2015). BMC Public Health 19:1.
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Sabine L. van Elsland, Remco P.H. Peters, Cornelis Grobbelaar, Patiswa Ketelo, Maarten O. Kok, Mark F. Cotton & A. Marceline van Furth. (2019) Disclosure of human immunodeficiency virus status to children in South Africa: A comprehensive analysis. Southern African Journal of HIV Medicine 20:1.
Crossref
Abdul-Razak Doat, Reza Negarandeh & Marzieh Hasanpour. (2019) Disclosure of HIV Status to Children in Sub-Saharan Africa: A Systematic Review. Medicina 55:8, pages 433.
Crossref
Avy Violari, Mark F. Cotton, Louise Kuhn, Diana B. Schramm, Maria Paximadis, Shayne Loubser, Sharon Shalekoff, Bianca Da Costa Dias, Kennedy Otwombe, Afaaf Liberty, James McIntyre, Abdel Babiker, Diana Gibb & Caroline T. Tiemessen. (2019) A child with perinatal HIV infection and long-term sustained virological control following antiretroviral treatment cessation. Nature Communications 10:1.
Crossref
Stella Namukwaya, Sara Paparini, Janet Seeley & Sarah Bernays. (2017) “How Do We Start? And How Will They React?” Disclosing to Young People with Perinatally Acquired HIV in Uganda. Frontiers in Public Health 5.
Crossref

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