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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 30, 2018 - Issue sup1: METHODOLOGICAL Considerations
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Articles

Barriers to antiretroviral therapy adherence in developed countries: a qualitative synthesis to develop a conceptual framework for a new patient-reported outcome measure

Kim EnglerDepartment of Family Medicine, McGill University, Montreal, QC, Canada;Strategy for Patient-Oriented Research (SPOR) Mentorship Chair in Innovative Clinical Trials, Montreal, QC, Canada;Center for Outcomes Research & Evaluation, Research Institute, McGill University Health Centre (MUHC), Montreal, QC, CanadaCorrespondence[email protected]
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Andras LènàrtDepartment of Family Medicine, McGill University, Montreal, QC, Canada;Strategy for Patient-Oriented Research (SPOR) Mentorship Chair in Innovative Clinical Trials, Montreal, QC, Canada;Center for Outcomes Research & Evaluation, Research Institute, McGill University Health Centre (MUHC), Montreal, QC, CanadaView further author information
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David LessardDepartment of Family Medicine, McGill University, Montreal, QC, Canada;Strategy for Patient-Oriented Research (SPOR) Mentorship Chair in Innovative Clinical Trials, Montreal, QC, Canada;Center for Outcomes Research & Evaluation, Research Institute, McGill University Health Centre (MUHC), Montreal, QC, CanadaORCID Iconhttp://orcid.org/0000-0002-1151-3763View further author information
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Isabelle ToupinDepartment of Family Medicine, McGill University, Montreal, QC, Canada;Strategy for Patient-Oriented Research (SPOR) Mentorship Chair in Innovative Clinical Trials, Montreal, QC, Canada;Center for Outcomes Research & Evaluation, Research Institute, McGill University Health Centre (MUHC), Montreal, QC, CanadaView further author information
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Bertrand LebouchéDepartment of Family Medicine, McGill University, Montreal, QC, Canada;Strategy for Patient-Oriented Research (SPOR) Mentorship Chair in Innovative Clinical Trials, Montreal, QC, Canada;Center for Outcomes Research & Evaluation, Research Institute, McGill University Health Centre (MUHC), Montreal, QC, Canada;Chronic Viral Illness Service, Royal Victoria Hospital, MUHC, Montreal, QC, CanadaView further author information
Pages 17-28 | Received 27 Sep 2017, Accepted 20 Apr 2018, Published online: 02 May 2018

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Margo M. Wheatley, Katie M. White, Aaron D. Peterson, Jonathan Hanft, Darin Rowles, Thomas Blissett & Eva A. Enns. (2023) Barriers, opportunities, and potential costs of expanding HIV support services. AIDS Care 35:8, pages 1083-1090.
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Israel Abebrese Sefah, Frederick Mensah, Amanj Kurdi & Brian Godman. (2022) Barriers and facilitators of adherence to antiretroviral treatment at a public health facility in Ghana: a mixed method study. Hospital Practice 50:2, pages 110-117.
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Sarah E. Woolf-King, Alan Z. Sheinfil, Jeremy Ramos, Jacklyn D. Foley, Dezarie Moskal, Madison Firkey, David Kellen & Stephen A. Maisto. (2022) A conceptual model of alcohol use and adherence to antiretroviral therapy: systematic review and theoretical implications for mechanisms of action. Health Psychology Review 16:1, pages 104-133.
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Noble Ajuna, Brian Tumusiime, Joseph Amanya, Sharon Awori, Godfrey Z Rukundo & John Baptist Asiimwe. (2021) Social Networks and Barriers to ART Adherence Among Young Adults (18–24 years) Living with HIV at Selected Primary Health Facilities of South-Western Uganda: A Qualitative Study. HIV/AIDS - Research and Palliative Care 13, pages 939-958.
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Karolina Akinosoglou, Stefania Antonopoulou, Ioannis Katsarolis & Charalambos A. Gogos. (2021) Patient-reported outcomes in HIV clinical trials evaluating antiretroviral treatment: a systematic review. AIDS Care 33:9, pages 1118-1126.
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Maria Dyah Kurniasari, Andrian Dolfriandra Huruta, Hsiu Ting Tsai & Cheng-Wen Lee. (2021) Forecasting future HIV infection cases: evidence from Indonesia. Social Work in Public Health 36:1, pages 12-25.
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R. Freeman, M. Gwadz, K. Francis & E. Hoffeld. (2021) Forgetting to take HIV antiretroviral therapy: a qualitative exploration of medication adherence in the third decade of the HIV epidemic in the United States. SAHARA-J: Journal of Social Aspects of HIV/AIDS 18:1, pages 113-130.
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Cui Yang, Nandita Krishnan, Earl Kelley, Jaidence Dawkins, Omolola Akolo, Rashaunna Redd, Ayodeji Olawale, Commia Max-Browne, Luke Johnsen, Carl Latkin, Kathleen R. Page & Melissa Davey-Rothwell. (2020) Beyond HIV prevention: a qualitative study of patient-reported outcomes of PrEP among MSM patients in two public STD clinics in Baltimore. AIDS Care 32:2, pages 238-241.
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Articles from other publishers (14)

Kedar K. V. Mate, Kim Engler, David Lessard & Bertrand Lebouché. (2023) Barriers to adherence to antiretroviral therapy: identifying priority areas for people with HIV and healthcare professionals. International Journal of STD & AIDS, pages 095646242311693.
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Kim Engler, Serge Vicente, Kedar K. V. Mate, David Lessard, Sara Ahmed & Bertrand Lebouché. (2022) Content validation of a new measure of patient-reported barriers to antiretroviral therapy adherence, the I-Score: results from a Delphi study. Journal of Patient-Reported Outcomes 6:1.
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Anthony Marcellin, Valérie Martel-Laferrière, Anne-Geneviève Genest, Bertrand Lebouché & Suzanne Marcotte. (2022) Differences in Antiretroviral Adherence Behaviors, Treatment Success, and Eligibility for Long-Acting Injectable Treatment between Patients Who Acquired HIV in Childhood vs. Those Who Acquired It in Adolescence/Early Adulthood. Journal of Personalized Medicine 12:9, pages 1390.
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Nelsensius Klau Fauk, Lillian Mwanri, Karen Hawke & Paul Russell Ward. (2022) Traditional Human Immunodeficiency Virus treatment and family and social influence as barriers to accessing HIV care services in Belu, Indonesia. PLOS ONE 17:7, pages e0264462.
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Kim Engler, Serge Vicente, Yuanchao Ma, Tarek Hijal, Joseph Cox, Sara Ahmed, Marina Klein, Sofiane Achiche, Nitika Pant Pai, Alexandra de Pokomandy, Karine Lacombe & Bertrand Lebouché. (2021) Implementation of an electronic patient-reported measure of barriers to antiretroviral therapy adherence with the Opal patient portal: Protocol for a mixed method type 3 hybrid pilot study at a large Montreal HIV clinic. PLOS ONE 16:12, pages e0261006.
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Lynn Hendricks, Ingrid Eshun-Wilson & Anke Rohwer. (2021) A mega-aggregation framework synthesis of the barriers and facilitators to linkage, adherence to ART and retention in care among people living with HIV. Systematic Reviews 10:1.
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Kai Qi Elizabeth Peh, Yu Heng Kwan, Hendra Goh, Hasna Ramchandani, Jie Kie Phang, Zhui Ying Lim, Dionne Hui Fang Loh, Truls Østbye, Dan V. Blalock, Sungwon Yoon, Hayden Barry Bosworth, Lian Leng Low & Julian Thumboo. (2021) An Adaptable Framework for Factors Contributing to Medication Adherence: Results from a Systematic Review of 102 Conceptual Frameworks. Journal of General Internal Medicine 36:9, pages 2784-2795.
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Yinghui Sun, Yuewei Zhan, Hui Li, Tanwei Yuan, Yanxiao Gao, Bowen Liang, Anping Feng, Peiyang Li, Weiran Zheng, Thomas Fitzpatrick, Dan Wu, Xinyi Zhai & Huachun Zou. (2021) Stakeholder efforts to mitigate antiretroviral therapy interruption among people living with HIV during the COVID‐19 pandemic in China: a qualitative study. Journal of the International AIDS Society 24:9.
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Dominic Chu, Tibor Schuster, David Lessard, Kedar Mate, Kim Engler, Yuanchao Ma, Ayoub Abulkhir, Anish Arora, Stephanie Long, Alexandra de Pokomandy, Karine Lacombe, Hayette Rougier, Joseph Cox, Nadine Kronfli, Tarek Hijal, John Kildea, Jean-Pierre Routy, Jamil Asselah & Bertrand Lebouché. (2021) Acceptability of a Patient Portal (Opal) in HIV Clinical Care: A Feasibility Study. Journal of Personalized Medicine 11:2, pages 134.
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Anders Malthe Bach‐Mortensen & Ben Verboom. (2020) Barriers and facilitators systematic reviews in health: A methodological review and recommendations for reviewers. Research Synthesis Methods 11:6, pages 743-759.
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Meaghan Kall, Fabienne Marcellin, Richard Harding, Jeffrey V Lazarus & Patrizia Carrieri. (2020) Patient-reported outcomes to enhance person-centred HIV care. The Lancet HIV 7:1, pages e59-e68.
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Kim Engler, Isabelle Toupin, Serge Vicente, Sara Ahmed & Bertrand Lebouché. (2019) A review of HIV-specific patient-reported measures of perceived barriers to antiretroviral therapy adherence: what themes are they covering?. Journal of Patient-Reported Outcomes 3:1.
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Kim Engler, Sara Ahmed, David Lessard, Serge Vicente & Bertrand Lebouché. (2019) Assessing the Content Validity of a New Patient-Reported Measure of Barriers to Antiretroviral Therapy Adherence for Electronic Administration in Routine HIV Care: Proposal for a Web-Based Delphi Study. JMIR Research Protocols 8:8, pages e12836.
Crossref
David Lessard, Kim Engler, Isabelle Toupin, Jean‐Pierre Routy & Bertrand Lebouché. (2018) Evaluation of a project to engage patients in the development of a patient‐reported measure for HIV care (the I‐Score Study) . Health Expectations 22:2, pages 209-225.
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