Advanced search
Publication Cover
Critical Public Health Volume 30, 2020 - Issue 5
Submit an article Journal homepage
7,132
Views
9
CrossRef citations to date
0
Altmetric
Research Papers

Obstacles to use of patient expertise to improve care: a co-produced longitudinal study of the experiences of young people with sickle cell disease in non-specialist hospital settings

Sam Milesa Department of Public Health, Environments and Society, London School of Hygiene & Tropical Medicine, London, UKCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0003-0836-1209View further author information
ORCID Icon,
Alicia Renedoa Department of Public Health, Environments and Society, London School of Hygiene & Tropical Medicine, London, UKORCID Iconhttps://orcid.org/0000-0001-7159-1723View further author information
ORCID Icon,
Cherelle Augustineb Broken Silence Charitable Organisation, London, UKORCID Iconhttps://orcid.org/0000-0003-1200-6461View further author information
ORCID Icon,
Patrick Ojeerc London, UKORCID Iconhttps://orcid.org/0000-0003-0633-248XView further author information
ORCID Icon,
Nordia Willisb Broken Silence Charitable Organisation, London, UKORCID Iconhttps://orcid.org/0000-0002-7370-7870View further author information
ORCID Icon &
Cicely Marstona Department of Public Health, Environments and Society, London School of Hygiene & Tropical Medicine, London, UKORCID Iconhttps://orcid.org/0000-0002-5529-4646View further author information
ORCID Icon
Pages 544-554 | Received 21 Dec 2018, Accepted 26 Jul 2019, Published online: 03 Sep 2019

Citations (9)

Keep up to date with the latest research on this topic with citation updates for this article.

Subscribe to citation updates

Read on this site (2)

Sam Miles, Alicia Renedo & Cicely Marston. (2022) Reimagining authorship guidelines to promote equity in co-produced academic collaborations. Global Public Health 17:10, pages 2547-2559.
Read now
Rachel H. Scott, Clarissa Smith, Eleanor Formby, Alison Hadley, Lisa Hallgarten, Alice Hoyle, Cicely Marston, Alan McKee & Dimitrios Tourountsis. (2020) What and how: doing good research with young people, digital intimacies, and relationships and sex education. Sex Education 20:6, pages 675-691.
Read now

Articles from other publishers (7)

Emma France, Isabelle Uny, Ruth Turley, Katie Thomson, Jane Noyes, Abbie Jordan, Liz Forbat, Line Caes & Mayara Silveira Bianchim. (2023) A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments. Cochrane Database of Systematic Reviews 2023:10.
Crossref
Victoria A. Miller, Andrea Ibarra Toro, Elizabeth A. Friedrich, Morgan Snyder, Evelyn Stevens & Ettya R. Fremont. (2023) Adolescent, Parent, and Clinician Perspectives on Increasing Adolescent Involvement in Decision-Making During Clinic Visits. Journal of Pediatric Health Care.
Crossref
Carrie Janerka, Gavin D. Leslie & Fenella J. Gill. (2023) Development of patient-centred care in acute hospital settings: A meta-narrative review. International Journal of Nursing Studies 140, pages 104465.
Crossref
Anna M. Hood, Staja Q. Booker, Calia A. Morais, Burel R. Goodin, Janelle E. Letzen, Lisa C. Campbell, Ericka N. Merriwether, Edwin N. Aroke, Claudia M. Campbell, Vani A. Mathur & Mary R. Janevic. (2022) Confronting Racism in All Forms of Pain Research: A Shared Commitment for Engagement, Diversity, and Dissemination. The Journal of Pain 23:6, pages 913-928.
Crossref
Peter J Collins, Alicia Renedo & Cicely A Marston. (2020) Communicating and understanding pain: Limitations of pain scales for patients with sickle cell disorder and other painful conditions. Journal of Health Psychology 27:1, pages 103-118.
Crossref
Alicia Renedo, Sam Miles & Cicely Marston. (2019) Transitions to adulthood: self‐governance and disciplining in the making of patient citizens. Sociology of Health & Illness 42:3, pages 481-495.
Crossref
Alicia Renedo, Sam Miles, Subarna Chakravorty, Andrea Leigh, Paul Telfer, John O. Warner & Cicely Marston. (2019) Not being heard: barriers to high quality unplanned hospital care during young people’s transition to adult services – evidence from ‘this sickle cell life’ research. BMC Health Services Research 19:1.
Crossref

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.