Advanced search
Publication Cover
Journal of Mental Health Volume 9, 2000 - Issue 5
Submit an article Journal homepage
617
Views
49
CrossRef citations to date
0
Altmetric
Research Article

Involving people who have dementia in the evaluation of services: A review

Rik Cheston, Mike Bender, Sue Byatt Avon and Western Wiltshire Mental Healthcare NHS Trust, Charter House, Seymour Road, Trowbridge, Wiltshire, UK
Pages 471-479 | Published online: 06 Jul 2009

Citations (49)

Keep up to date with the latest research on this topic with citation updates for this article.

Subscribe to citation updates

Read on this site (4)

Jeanette C. Prorok, Maria Hussain, Salinda Horgan & Dallas P. Seitz. (2017) ‘I shouldn't have had to push and fight’: health care experiences of persons with dementia and their caregivers in primary care. Aging & Mental Health 21:8, pages 797-804.
Read now
Henglien Lisa Chen. (2012) Cross-national qualitative research into the long-term care of older people: some reflections on method and methodology. European Journal of Social Work 15:4, pages 449-466.
Read now
Carolyn Popham & Martin Orrell. (2012) What matters for people with dementia in care homes?. Aging & Mental Health 16:2, pages 181-188.
Read now
Rosalind Willis, Jeni Chan, Joanna Murray, David Matthews & Sube Banerjee. (2009) People with dementia and their family carers' satisfaction with a memory service: A qualitative evaluation generating quality indicators for dementia care. Journal of Mental Health 18:1, pages 26-37.
Read now

Articles from other publishers (45)

Boah Kim, Andrew Wister, Eireann O’dea, Barbara A Mitchell, Lun Li & Laura Kadowaki. (2023) Roles and experiences of informal caregivers of older adults in community and healthcare system navigation: a scoping review. BMJ Open 13:12, pages e077641.
Crossref
H Yemm, E Peel & D Brooker. (2023) “I guess you can interpret it in a number of ways like kind of a milder or the mildest form of dementia?”: Multi-stakeholder perceptions of cognitive impairment. Dementia 22:8, pages 1799-1818.
Crossref
Rachel Collins, Anna Hunt, Catherine Quinn, Anthony Martyr, Claire Pentecost & Linda Clare. (2022) Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: Findings from the IDEAL programme. Dementia 21:4, pages 1135-1153.
Crossref
Elaine C. Wiersma, Charlotte L. Clarke & Bill Heibein. 2022. Handbook of Social Inclusion. Handbook of Social Inclusion 527 548 .
Jessica Ashbourne, Veronique Boscart, Samantha Meyer, Catherine E. Tong & Paul Stolee. (2021) Health care transitions for persons living with dementia and their caregivers. BMC Geriatrics 21:1.
Crossref
G. Ottoboni, I. Chirico, P. Povolná, V. Dostálová, I. Holmerová, N. Janssen, F. Dassen, M. de Vugt, Ma.C. Sánchez-Gómez, F. García-Peñalvo, M.A. Franco-Martin & R. Chattat. (2021) Psychosocial care in dementia in European higher education: Evidence from the SiDECar (“Skills in DEmentia Care”) project. Nurse Education Today 103, pages 104977.
Crossref
Fuchsia Howard, Sarah Crowe, Scott Beck & Gregory Haljan. (2021) Attending to Methodological Challenges in Qualitative Research to Foster Participation of Individuals with Chronic Critical Illness and Communication Impairments. Global Qualitative Nursing Research 8, pages 233339362110000.
Crossref
Elaine C. Wiersma, Charlotte L. Clarke & Bill Heibein. 2020. Handbook of Social Inclusion. Handbook of Social Inclusion 1 22 .
Katherine Brookfield, Iain Scott, Anthea Tinker & Catharine Ward Thompson. (2020) Perspectives on “Novel” Techniques for Designing Age-Friendly Homes and Neighborhoods with Older Adults. International Journal of Environmental Research and Public Health 17:5, pages 1800.
Crossref
Danielle Jones, Ray Wilkinson, Clare Jackson & Paul Drew. (2019) Variation and Interactional Non-Standardization in Neuropsychological Tests: The Case of the Addenbrooke’s Cognitive Examination. Qualitative Health Research 30:3, pages 458-470.
Crossref
Jahanara Miah, Piers Dawes, Iracema Leroi, Suzanne Parsons & Bella Starling. (2018) A protocol to evaluate the impact of involvement of older people with dementia and age-related hearing and/or vision impairment in a multi-site European research study. Research Involvement and Engagement 4:1.
Crossref
Annie Austin. (2018) Living Well with Dementia Together: Affiliation as a Fertile Functioning. Public Health Ethics 11:2, pages 139-150.
Crossref
Claire Morrisby, Annette Joosten & Marina Ciccarelli. (2017) Do services meet the needs of people with dementia and carers living in the community? A scoping review of the international literature. International Psychogeriatrics 30:1, pages 5-14.
Crossref
Emma Rivett. (2017) Research involving people with dementia: a literature review. Working with Older People 21:2, pages 107-114.
Crossref
Sarah E Keyes, Charlotte L Clarke, Heather Wilkinson, Eva Joanna Alexjuk, Jane Wilcockson, Louise Robinson, Joanna Reynolds, Siobhan McClelland, Lynne Corner & Mima Cattan. (2014) “We’re all thrown in the same boat … ”: A qualitative analysis of peer support in dementia care. Dementia 15:4, pages 560-577.
Crossref
Jocelyne Kenny, Ian Asquith, Reinhard Guss, Elizabeth Field, Lewis Slade, Alexandra Bone, Keith Oliver, Mark Jones, Chris Ryan, Melvyn Brooks & Chris Norris. (2016) Facilitating an evolving service user involvement group for people with dementia: what can we learn?. The Journal of Mental Health Training, Education and Practice 11:2, pages 81-90.
Crossref
Hazel Thornton & Rosslyn Offord. (2015) Non-pharmacological management of sexual behaviours that challenge in dementia. Reviews in Clinical Gerontology 25:3, pages 194-201.
Crossref
Milena von Kutzleben & Birgit Panke-Kochinke. 2015. Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease. Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease 159 182 .
Beatrice Godwin. (2014) Colour consultation with dementia home residents and staff. Quality in Ageing and Older Adults 15:2, pages 102-119.
Crossref
Faith Martin, Andrew Turner, Louise M Wallace, Kubra Choudhry & Nicola Bradbury. (2012) Perceived barriers to self-management for people with dementia in the early stages. Dementia 12:4, pages 481-493.
Crossref
Sophie HodgeEmily Doncaster, Esme Moniz-Cook, Nitin Purandare & Martin Orrell. (2013) Two sides of the same coin? Patients’ and carers’ views of UK memory services. Aging Health 9:3, pages 275-280.
Crossref
Ann K Helgesen, Maria Larsson & Elsy Athlin. (2012) How do relatives of persons with dementia experience their role in the patient participation process in special care units?. Journal of Clinical Nursing 22:11-12, pages 1672-1681.
Crossref
Elizabeth Morrow, Annette Boaz, Sally Brearley & Fiona Ross. 2011. Handbook of Service User Involvement in Nursing and Healthcare Research. Handbook of Service User Involvement in Nursing and Healthcare Research 106 119 .
Hanna-Mari PesonenAnne M Remes & Arja Isola. (2011) Ethical aspects of researching subjective experiences in early-stage dementia. Nursing Ethics 18:5, pages 651-661.
Crossref
Angela van BaalenAd J.J.M. VingerhoetsHerman J. SixmaJacomine de Lange. (2010) How to evaluate quality of care from the perspective of people with dementia: An overview of the literature. Dementia 10:1, pages 112-137.
Crossref
Joan MurphyCindy M. GrayTheo van AchterbergSally WykeSylvia Cox. (2010) The effectiveness of the Talking Mats framework in helping people with dementia to express their views on well-being. Dementia 9:4, pages 454-472.
Crossref
Ann Karin Helgesen, Maria Larsson & Elsy Athlin. (2010) ‘Patient participation’ in everyday activities in special care units for persons with dementia in Norwegian nursing homes. International Journal of Older People Nursing 5:2, pages 169-178.
Crossref
Jacqueline Perkins, Helen Bartlett, Catherine Travers & Jacquie Rand. (2008) Dog-assisted therapy for older people with dementia: A review. Australasian Journal on Ageing 27:4, pages 177-182.
Crossref
Ann McDonald & Becky Heath. (2008) Developing services for people with dementia: Findings from research in a rural area. Quality in Ageing and Older Adults 9:4, pages 9-18.
Crossref
Clive Baldwin. (2008) Narrative(,) citizenship and dementia: The personal and the political. Journal of Aging Studies 22:3, pages 222-228.
Crossref
Stephen A. Webb. (2008) Modelling Service User Participation in Social Care. Journal of Social Work 8:3, pages 269-290.
Crossref
Suzanne M. Cahill, Matthew Gibb, Irene Bruce, Mary Headon & Mary Drury. (2008) `I was worried coming in because I don't really know why it was arranged'. Dementia 7:2, pages 175-189.
Crossref
Joan Murphy, Cindy Gray & Sylvia Cox. (2007) The use of Talking Mats to improve communication and quality of care for people with dementia. Housing, Care and Support 10:3, pages 21-28.
Crossref
Kevin Hope, Dave Pulsford, Rachel Thompson, Andrea Capstick & Tony Heyward. (2007) Hearing the voice of people with dementia in professional education. Nurse Education Today 27:8, pages 821-824.
Crossref
Maria Lorentzon & Karen Bryan. (2007) Respect for the person with dementia: fostering greater user involvement in service planning. Quality in Ageing and Older Adults 8:1, pages 23-30.
Crossref
Paul Duckett & Rebekah Pratt. (2016) The emancipation of visually impaired people in social science research practice. British Journal of Visual Impairment 25:1, pages 5-20.
Crossref
Vicki Lloyd, Amanda Gatherer & Sunny Kalsy. (2016) Conducting Qualitative Interview Research With People With Expressive Language Difficulties. Qualitative Health Research 16:10, pages 1386-1404.
Crossref
K.L. Blackstock, A. Innes, S. Cox, A. Smith & A. Mason. (2006) Living with dementia in rural and remote Scotland: Diverse experiences of people with dementia and their carers. Journal of Rural Studies 22:2, pages 161-176.
Crossref
A. Innes, K. Blackstock, A. Mason, A. Smith & S. Cox. (2005) Dementia care provision in rural Scotland: service users' and carers' experiences. Health and Social Care in the Community 13:4, pages 354-365.
Crossref
J. GRAHAM, I. DENOUAL & D. CAIRNS. (2005) Happy with your care?. Journal of Psychiatric and Mental Health Nursing 12:2, pages 173-178.
Crossref
John Keady & Phyllis Braudy Harris. (2016) Editorial. Dementia 4:1, pages 5-6.
Crossref
Jan Dewing & Emma Pritchard. 2004. Practice Development in Nursing. Practice Development in Nursing 177 196 .
Victoria TraynorEmma PritchardJan Dewing. (2016) Illustrating the Importance of Including the Views and Experiences of Users and Carers in Evaluating the Effectiveness of Drug Treatments for Dementia. Dementia 3:2, pages 145-159.
Crossref
Caroline CantleyKay Steven. (2016) ‘Feeling the Way’. Dementia 3:2, pages 127-143.
Crossref
Thomas Hansen, Trond Hatling, Eli Lidal & Torleif Ruud. (2002) Discrepancies between patients and professionals in the assessment of patient needs: a quantitative study of Norwegian mental health care. Journal of Advanced Nursing 39:6, pages 554-562.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.