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Review

Some service user perspectives on the diagnosis of Borderline Personality Disorder

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Pages 255-269 | Published online: 06 Jul 2009

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Maria Haarmans, Elizabeth Perkins & Lorna Jellicoe-Jones. (2021) “It’s Us Doing It!” The Power of Participatory Action Research in Prison: A Contradiction in Terms? – Phase 1. International Journal of Forensic Mental Health 20:3, pages 238-252.
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S Veysey. (2014) People with a borderline personality disorder diagnosis describe discriminatory experiences. Kōtuitui: New Zealand Journal of Social Sciences Online 9:1, pages 20-35.
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Ciara StilesRachel BatchelorAndrew GumleyRuchika Gajwani. (2023) Experiences of Stigma and Discrimination in Borderline Personality Disorder: A Systematic Review and Qualitative Meta-Synthesis. Journal of Personality Disorders 37:2, pages 177-194.
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Gemma Vickers, Helen Combes & Jennie Lonsdale. (2022) Mental health professionals’ views of the borderline personality disorder diagnosis for children and young people: a Q-methodological study. The Journal of Mental Health Training, Education and Practice 18:1, pages 1-13.
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Anna Sterna & Marcin Moskalewicz. (2023) “As If There Are Two of Us”: The Battle of Borderline Personality Disorder Diagnosis in Lived Time. Psychopathology 56:4, pages 239-250.
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Rose Papadopoullos, Paul Fisher, Adrian Leddy, Sarah Maxwell & Jo Hodgekins. (2022) Diagnosis and dilemma: Clinician experiences of the use of ‘borderline personality disorder’ diagnosis in children and adolescents. Personality and Mental Health 16:4, pages 300-308.
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Pauline Klein, A. Kate Fairweather & Sharon Lawn. (2022) Structural stigma and its impact on healthcare for borderline personality disorder: a scoping review. International Journal of Mental Health Systems 16:1.
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Stephanie Fagan, Suzanne Hodge & Charlotte Morris. (2021) Experiences of Compassion in Adults With a Diagnosis of Borderline Personality Disorder: An Interpretative Phenomenological Analysis. Psychological Reports 125:3, pages 1326-1347.
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Brin F. S. Grenyer, Michelle L. Townsend, Kate Lewis & Nicholas Day. (2022) To love and work: A longitudinal study of everyday life factors in recovery from borderline personality disorder. Personality and Mental Health 16:2, pages 138-154.
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Karen McKenzieJames GregoryLorna Hogg. (2022) Mental Health Workers' Attitudes Towards Individuals With a Diagnosis of Borderline Personality Disorder: A Systematic Literature Review. Journal of Personality Disorders 36:1, pages 70-98.
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Rebecca Sims, Zoe A. Michaleff, Paul Glasziou & Rae Thomas. (2021) Consequences of a Diagnostic Label: A Systematic Scoping Review and Thematic Framework. Frontiers in Public Health 9.
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Dan Warrender, Heather Bain, Ian Murray & Catriona Kennedy. (2020) Perspectives of crisis intervention for people diagnosed with “borderline personality disorder”: An integrative review. Journal of Psychiatric and Mental Health Nursing 28:2, pages 208-236.
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Karlen R. Barr, Mahlie Jewell, Michelle L. Townsend & Brin F. S. Grenyer. (2020) Living with personality disorder and seeking mental health treatment: patients and family members reflect on their experiences. Borderline Personality Disorder and Emotion Dysregulation 7:1.
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Kathryn Jane Gardner, Karen M. Wright, Alison Elliott, Simon Graham & Peter Fonagy. (2019) The weirdness of having a bunch of other minds like yours in the room: The lived experiences of mentalization‐based therapy for borderline personality disorder. Psychology and Psychotherapy: Theory, Research and Practice 93:3, pages 572-586.
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R. Lester, L. Prescott, M. McCormack & M. Sampson. (2020) Service users' experiences of receiving a diagnosis of borderline personality disorder: A systematic review. Personality and Mental Health 14:3, pages 263-283.
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Ingrid Bacon, Elizabeth McKay, Frances Reynolds & Anne McIntyre. (2018) The Lived Experience of Codependency: an Interpretative Phenomenological Analysis. International Journal of Mental Health and Addiction 18:3, pages 754-771.
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Teresa McDonagh, Agnes Higgins, Jenny Archer, Eoin Galavan, Greg Sheaf & Louise Doyle. (2020) Lived experiences of adults with borderline personality disorder. JBI Evidence Synthesis 18:3, pages 283-591.
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Corinna Hackmann, Yatan Pal Singh Balhara, Kelsey Clayman, Patricia B Nemec, Caitlin Notley, Kathleen Pike, Geoffrey M Reed, Pratap Sharan, Mona Sharma Rana, Jody Silver, Margaret Swarbrick, Jon Wilson, Hannah Zeilig & Tom Shakespeare. (2019) Perspectives on ICD-11 to understand and improve mental health diagnosis using expertise by experience (INCLUDE Study): an international qualitative study. The Lancet Psychiatry 6:9, pages 778-785.
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S. Flynn, J. Raphael, J. Graney, T. Nyathi, A. Williams, N. Kapur, L. Appleby & J. Shaw. (2019) The personality disorder patient pathway: Service user and clinical perspectives. Personality and Mental Health 13:3, pages 134-143.
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Trees T. Juurlink, Miljana Vukadin, Barbara Stringer, Marjan J. Westerman, Femke Lamers, Johannes R. Anema, Aartjan T. F. Beekman & Hein J. F. van Marle. (2019) Barriers and facilitators to employment in borderline personality disorder: A qualitative study among patients, mental health practitioners and insurance physicians. PLOS ONE 14:7, pages e0220233.
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Corinna Hackmann, Jon Wilson, Amorette Perkins & Hannah Zeilig. (2019) Collaborative diagnosis between clinician and patient: why to do it and what to consider. BJPsych Advances 25:4, pages 214-222.
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Julie Lateyron & Anjali Mathur. (2018) Élaboration d’un document d’information écrit pour les personnes ayant un trouble de la personnalité borderline. Annales Médico-psychologiques, revue psychiatrique 176:10, pages 974-978.
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Nicholas J.S. Day, Annalise Hunt, Louise Cortis-Jones & Brin F.S. Grenyer. (2018) Clinician attitudes towards borderline personality disorder: A 15-year comparison. Personality and Mental Health 12:4, pages 309-320.
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Cliodhna O'Connor, Irini Kadianaki, Kristen Maunder & Fiona McNicholas. (2018) How does psychiatric diagnosis affect young people's self-concept and social identity? A systematic review and synthesis of the qualitative literature. Social Science & Medicine 212, pages 94-119.
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Amorette Perkins, Joseph Ridler, Daniel Browes, Guy Peryer, Caitlin Notley & Corinna Hackmann. (2018) Experiencing mental health diagnosis: a systematic review of service user, clinician, and carer perspectives across clinical settings. The Lancet Psychiatry 5:9, pages 747-764.
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Anne Cooke & Peter Kinderman. (2017) “But What About Real Mental Illnesses?” Alternatives to the Disease Model Approach to “Schizophrenia”. Journal of Humanistic Psychology 58:1, pages 47-71.
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Sophie I. Liljedahl, Marjolein Helleman, Daiva Daukantaité, Åsa Westrin & Sofie Westling. (2017) A standardized crisis management model for self-harming and suicidal individuals with three or more diagnostic criteria of borderline personality disorder: The Brief Admission Skåne randomized controlled trial protocol (BASRCT). BMC Psychiatry 17:1.
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Katie Loader. (2017) What are the effects of nurse attitudes towards patients with borderline personality disorder?. British Journal of Mental Health Nursing 6:2, pages 66-72.
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Hannah Davies, Andreea Halewood, Lucy Johnstone & John Waite. (2017) Counselling psychologists’ experiences of working with clients with a psychiatric diagnosis: A grounded theory analysis. Counselling Psychology Review 32:1, pages 33-43.
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Fiona Y. Y. Ng, Marianne E. Bourke & Brin F. S. Grenyer. (2016) Recovery from Borderline Personality Disorder: A Systematic Review of the Perspectives of Consumers, Clinicians, Family and Carers. PLOS ONE 11:8, pages e0160515.
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Olivia Sagan & Antigonos Sochos. (2016) Group attachment through art practice: a phenomenological analysis of being seen and showing. Therapeutic Communities: The International Journal of Therapeutic Communities 37:2, pages 45-56.
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L. Montgomery & M. Donnelly. (2014) A scoping review of the literature on the involvement of service users in personality disorder services. Irish Journal of Psychological Medicine 31:4, pages 233-243.
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Oliver Bonnington & Diana Rose. (2014) Exploring stigmatisation among people diagnosed with either bipolar disorder or borderline personality disorder: A critical realist analysis. Social Science & Medicine 123, pages 7-17.
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Joseph Hayes & Vaughan Bell. (2014) Diagnosis: one useful method among many. The Lancet Psychiatry 1:6, pages 412-413.
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Lucy Jade Lovell & Gillian Hardy. (2014) Having a diagnosis of borderline personality disorder in a forensic setting: a qualitative exploration. Journal of Forensic Practice 16:3, pages 228-240.
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Robert B. Dudas. (2018) What is it like to be diagnosed with bipolar illness, borderline personality disorder or another diagnosis with mood instability?. British Journal of Psychiatry 204:3, pages 178-179.
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Amy C. Bilderbeck, Kate E. A. Saunders, Jonathan Price & Guy M. Goodwin. (2018) Psychiatric assessment of mood instability: qualitative study of patient experience. British Journal of Psychiatry 204:3, pages 234-239.
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Bertha Rogers & Emma Dunne. (2013) A Qualitative Study on the Use of the Care Programme Approach with Individuals with Borderline Personality Disorder: A Service User Perspective. Journal of Psychosocial Nursing and Mental Health Services 51:10, pages 38-45.
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James Stroud & Rachel Parsons. (2012) Working with borderline personality disorder: A small‐scale qualitative investigation into community psychiatric nurses' constructs of borderline personality disorder. Personality and Mental Health 7:3, pages 242-253.
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Georgia Black, Graham Thornicroft & Joanna Murray. (2012) What do people in forensic secure and community settings think of their personality disorder diagnosis? A qualitative study. Social Psychiatry and Psychiatric Epidemiology 48:7, pages 1161-1168.
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Emily Handley & Nick Hutchinson. (2013) The Experience of Carers in Supporting People with Intellectual Disabilities through the Process of Bereavement: An Interpretative Phenomenological Analysis. Journal of Applied Research in Intellectual Disabilities 26:3, pages 186-194.
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Anne Lene Årseth & Berit Johannessen. (2013) Opplevelsene av å få og leve med en psykiatrisk diagnose. Tidsskrift for psykisk helsearbeid 10:1, pages 25-35.
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Edith Steffen. (2013) Theoretical Paper Both 'being with' and 'doing to': Borderline personality disorder and the integration of humanistic values in contemporary therapy practice. Counselling Psychology Review 28:1, pages 64-71.
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Michael Guilfoyle. (2013) Client subversions of DSM knowledge. Feminism & Psychology 23:1, pages 86-92.
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B. ROGERS & T. ACTON. (2011) ‘I think we're all guinea pigs really’: a qualitative study of medication and borderline personality disorder. Journal of Psychiatric and Mental Health Nursing 19:4, pages 341-347.
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Adrian Furnham & Hina Dadabhoy. (2012) Beliefs about causes, behavioural manifestations and treatment of borderline personality disorder in a community sample. Psychiatry Research 197:3, pages 307-313.
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Diana Rose & Graham Thornicroft. (2011) Service user perspectives on the impact of a mental illness diagnosis. Epidemiologia e Psichiatria Sociale 19:2, pages 140-147.
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Jane Cronin-Davis, Alan Butler & Christine A Mayers. (2009) Occupational Therapy and Interpretative Phenomenological Analysis: Comparable Research Companions?. British Journal of Occupational Therapy 72:8, pages 332-338.
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Kristy Koehne & Natisha Sands. (2008) Borderline personality disorder—An overview for emergency clinicians. Australasian Emergency Nursing Journal 11:4, pages 173-177.
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