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Journal of Mental Health Volume 28, 2019 - Issue 1
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Original Articles

“Chipping away”: non-consumer researcher perspectives on barriers to collaborating with consumers in mental health research

Brenda HappellSYNERGY: Nursing and Midwifery Research Centre, University of Canberra and ACT Health, Canberra, Australia, Correspondence[email protected]
ORCID Iconhttp://orcid.org/0000-0002-7293-6583
ORCID Icon,
Sarah GordonDepartment of Psychological Medicine, School of Medicine and Health Sciences, University of Otago, Wellington, Wellington South, New Zealand,
,
Julia BockingSYNERGY: Nursing and Midwifery Research Centre, University of Canberra and ACT Health, Canberra, Australia,
,
Pete EllisDepartment of Psychological Medicine, School of Medicine and Health Sciences, University of Otago, Wellington, Wellington South, New Zealand,
,
Cath RoperCentre for Psychiatric Nursing, Department of Nursing, Faculty of Health Sciences, The University of Melbourne, Melbourne, Victoria, Australia, and
,
Jackie LigginsDepartment of Psychiatry, University of Auckland, Auckland, New Zealand
,
Brett ScholzSYNERGY: Nursing and Midwifery Research Centre, University of Canberra and ACT Health, Canberra, Australia, ORCID Iconhttp://orcid.org/0000-0003-2819-994X
ORCID Icon &
Chris Platania-PhungSYNERGY: Nursing and Midwifery Research Centre, University of Canberra and ACT Health, Canberra, Australia,
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Pages 49-55 | Received 28 Nov 2017, Accepted 10 Apr 2018, Published online: 30 Apr 2018

Citations (28)

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Read on this site (9)

Brenda Happell, Julie Sharrock, Terri Warner, Aine O’Donovan, Emma Hurley & Sarah Gordon. (2023) Changing ‘the world for the better’: motivations of mental health academics for supporting expert by experience roles in mental health education. Journal of Mental Health 32:4, pages 779-786.
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Caroline Lambert, Ronnie Egan & Stuart DM Thomas. (2021) What does effective allyship between social work and lived experience workers look like in the Australian forensic mental health context?. Qualitative Research in Psychology 18:4, pages 459-472.
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Sarah Gordon, Tony Dowell, Dasha Fedchuk, Tracey Gardiner, Sue Garrett, Jo Hilder, Fiona Mathieson, Maria Stubbe & Rachel Tester. (2021) Reflections on allyship in the context of a co-produced evaluation of a youth-integrated therapies mental health intervention. Qualitative Research in Psychology 18:4, pages 571-585.
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Ruth Lambley. (2021) Small talk matters! Creating allyship in mental health research. Qualitative Research in Psychology 18:4, pages 586-600.
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Brett Scholz, Brenda Happell, Sarah Gordon, Terri Warner, Cath Roper, Pete Ellis, Shifra Waks & Chris Platania-Phung. (2021) ‘People Just Need to Try It to Be Converted!’: A Picture of Consumer Mental Health Research in Australia and New Zealand. Issues in Mental Health Nursing 42:3, pages 249-255.
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Til Wykes & Jo Evans. (2020) Gender diversity in the Journal of Mental Health – how are we doing and what do we need to do?. Journal of Mental Health 29:5, pages 493-495.
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Louise Byrne & Til Wykes. (2020) A role for lived experience mental health leadership in the age of Covid-19. Journal of Mental Health 29:3, pages 243-246.
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Amy Tapsell, Kellie M. Martin, Lorna Moxham, Shawn Burns, Dana Perlman & Christopher Patterson. (2020) Expert by Experience Involvement in Mental Health Research: Developing a Wellbeing Brochure for People with Lived Experiences of Mental Illness. Issues in Mental Health Nursing 41:3, pages 194-200.
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Til Wykes. (2019) Racing towards a digital paradise or a digital hell?. Journal of Mental Health 28:1, pages 1-3.
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Articles from other publishers (19)

Nev JonesLinda CallejasMarie BrownMichelle Colder CarrasBevin CroftShannon PagdonLindsay SheehanOladunni OluwoyeYaara Zisman-Ilani. (2023) Barriers to Meaningful Participatory Mental Health Services Research and Priority Next Steps: Findings From a National Survey. Psychiatric Services 74:9, pages 902-910.
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Natasha Y. Sheikhan, Kerry Kuluski, Shelby McKee, Melissa Hiebert & Lisa D. Hawke. (2023) Exploring the impact of engagement in mental health and substance use research: A scoping review and thematic analysis. Health Expectations.
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Lisa D. Hawke, Natasha Y. Sheikhan, Sara Roberts & Shelby McKee. (2023) Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review. Research Involvement and Engagement 9:1.
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Marie-Mychèle Pratte, Sophie Audette-Chapdelaine, Anne-Marie Auger, Catherine Wilhelmy & Magaly Brodeur. (2023) Researchers’ experiences with patient engagement in health research: a scoping review and thematic synthesis. Research Involvement and Engagement 9:1.
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Mark Goodhew, Jo River, Yvonne Samuel, Chris Gough, Kevin Street, Candice Gilford, Natalie Cutler & Fiona Orr. (2022) Learning that cannot come from a book: An evaluation of an undergraduate alcohol and other drugs subject co‐produced with experts by experience. International Journal of Mental Health Nursing 32:2, pages 446-457.
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Jo River, Brett Bellingham, Sophie Isobel, Katherine Gill, Katherine Boydell, Liam Conlon, Mark Goodhew, Natalie Cutler & Holly Kemp. (2023) Raising the Bar: A Qualitative Study of a Co-Produced Model for Promoting research Partnerships in Mental Health. International Journal of Qualitative Methods 22.
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Brenda Happell, Sarah Gordon, Julie Sharrock, Aine O'Donovan & Terri Warner. (2022) ‘What's she doing here?’ Overcoming barriers to the implementation of Expert by Experience positions in academia. Australian Occupational Therapy Journal 69:6, pages 689-702.
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Brenda Happell, Aine O. Donovan, Terri Warner, Julie Sharrock & Sarah Gordon. (2022) Creating or taking opportunity: Strategies for implementing expert by experience positions in mental health academia. Journal of Psychiatric and Mental Health Nursing 29:4, pages 592-602.
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Teng Su. (2022) Consumption Pattern and Mental Health of Employees Based on Big Data Analysis. Journal of Environmental and Public Health 2022, pages 1-7.
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Brenda Happell, Terri Warner, Shifra Waks, Aine O'Donovan, Fionnuala Manning, Rory Doody, Sonya Greaney, John Goodwin, Elisabeth Hals, Martha Griffin, Brett Scholz, Arild Granerud, Chris Platania‐Phung, Siobhan Russell, Liam MacGabhann, Jarmo Pulli, Annaliina Vatula, Kornelis Jan van der Vaart, Jerry Allon, Einar Bjornsson, Heikki Ellilä, Mari Lahti & Pall Biering. (2021) Something special, something unique: Perspectives of experts by experience in mental health nursing education on their contribution. Journal of Psychiatric and Mental Health Nursing 29:2, pages 346-358.
Crossref
Brenda Happell, Aine O'Donovan, Julie Sharrock, Terri Warner & Sarah Gordon. (2022) Understanding the impact of expert by experience roles in mental health education. Nurse Education Today 111, pages 105324.
Crossref
Diana Susan RoseDiana Susan Rose. 2022. Mad Knowledges and User-Led Research. Mad Knowledges and User-Led Research 125 153 .
Brett Scholz & Alan Bevan. (2021) Toward more mindful reporting of patient and public involvement in healthcare. Research Involvement and Engagement 7:1.
Crossref
Ben Classen, Keith Tudor, Foulagi Johnson & Brian McKenna. (2021) Embedding lived experience expertise across the mental health tertiary education sector: An integrative review in the context of Aotearoa New Zealand. Journal of Psychiatric and Mental Health Nursing 28:6, pages 1140-1152.
Crossref
Brett Bellingham, Holly Kemp, Katherine Boydell, Sophie Isobel, Katherine Gill & Jo River. (2021) Towards epistemic justice doing: Examining the experiences and shifts in knowledge of lived experience researchers over the course of a mental health research training programme. International Journal of Mental Health Nursing 30:6, pages 1588-1598.
Crossref
Brenda Happell, Sarah Gordon, Cath Roper, Pete Ellis, Shifra Waks, Terri Warner, Brett Scholz & Chris Platania‐Phung. (2020) Establishing an expert mental health consumer research group: Perspectives of nonconsumer researchers. Perspectives in Psychiatric Care 57:1, pages 33-42.
Crossref
Brenda Happell, Sarah Gordon, Cath Roper, Brett Scholz, Pete Ellis, Shifra Waks, Terri Warner & Chris Platania‐Phung. (2020) ‘It is always worth the extra effort’: Organizational structures and barriers to collaboration with consumers in mental health research: Perspectives of non‐consumer researcher allies. International Journal of Mental Health Nursing 29:6, pages 1168-1180.
Crossref
Brenda Happell, Shifra Waks, Aine Horgan, Sonya Greaney, Fionnuala Manning, John Goodwin, Julia Bocking, Brett Scholz, Elisabeth Hals, Arild Granerud, Rory Doody, Chris Platania‐Phung, Martha Griffin, Siobhan Russell, Liam MacGabhann, Jarmo Pulli, Annaliina Vatula, Graeme Browne, Kornelis Jan Vaart, Jerry Allon, Einar Bjornsson, Heikki Ellilä, Mari Lahti & Pall Biering. (2020) “It is much more real when it comes from them”: The role of experts by experience in the integration of mental health nursing theory and practice. Perspectives in Psychiatric Care 56:4, pages 811-819.
Crossref
Brett Scholz, Chris Platania‐Phung, Sarah Gordon, Pete Ellis, Cath Roper, Julia Bocking & Brenda Happell. (2019) Very useful, but do carefully: Mental health researcher views on establishing a Mental Health Expert Consumer Researcher Group. Journal of Psychiatric and Mental Health Nursing 26:9-10, pages 358-367.
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