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Journal of Mental Health Volume 28, 2019 - Issue 5
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Original Articles

Embracing the new age of transparency: mental health patients reading their psychotherapy notes online

Stephen O’NeillBIDMC Social Work Department, Harvard Medical School, Boston, MA, USA; Correspondence[email protected]
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,
Hannah ChimowitzBIDMC Division of General Medicine, Harvard Medical School, Boston, MA, USA; View further author information
,
Suzanne LeveilleBIDMC Division of General Medicine, Harvard Medical School, Boston, MA, USA; ;College of Nursing and Health Sciences, University of Massachusetts Boston, Boston, MA, USAORCID Iconhttp://orcid.org/0000-0003-0427-1580View further author information
ORCID Icon &
Jan WalkerBIDMC Division of General Medicine, Harvard Medical School, Boston, MA, USA; View further author information
Pages 527-535 | Received 09 Nov 2018, Accepted 08 Jun 2019, Published online: 31 Jul 2019

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Lauri Goldkind, Lea Wolf & Walter LaMendola. (2021) Data justice: social work and a more just future. Journal of Community Practice 29:3, pages 237-256.
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Annika Bärkås, Anna Kharko, Charlotte Blease, Åsa Cajander, Asbjørn Johansen Fagerlund, Isto Huvila, Monika Alise Johansen, Bridget Kane, Sari Kujala, Jonas Moll, Hanife Rexhepi, Isabella Scandurra, Bo Wang & Maria Hägglund. (2023) Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden. Journal of Medical Internet Research 25, pages e47841.
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 Fredy Alexander Romero Guzmán, Ernesto de Jesús Solano León & Henry Eduardo Osorio Ospina. (2023) Transformación digital de la atención psicológica: estado actual de la telepsicología en Colombia. Psicoespacios 17:31.
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Jonas Moll, Gunilla Myreteg & Hanife Rexhepi. (2023) Mental Health Patients’ Experiences of Having Access to their Records Online: National Patient Survey (Preprint). JMIR Mental Health.
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Bo Wang, Eli Kristiansen, Asbjørn Johansen Fagerlund, Paolo Zanaboni, Maria Hägglund, Annika Bärkås, Sari Kujala, Åsa Cajander, Charlotte Blease, Anna Kharko, Isto Huvila, Bridget Kane & Monika Alise Johansen. (2023) Users’ Experiences with Online Access to Electronic Health Records in Mental and Somatic Healthcare: A Cross-Sectional Study in Norway (Preprint). Journal of Medical Internet Research.
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Hwayeon Danielle Shin, Keri Durocher, Brian Lo, Sheng Chen, Clement Ma, David Wiljer & Gillian Strudwick. (2023) Impact of a mental health patient portal on patients’ views of compassion: a mixed-methods study. BMC Digital Health 1:1.
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Charlotte Blease. (2022) Response to commentaries on sharing online clinical notes with patients: implications for nocebo effects and health equity. Journal of Medical Ethics 49:1, pages 32-33.
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Charlotte Blease. (2023) Sharing online clinical notes with patients: implications for nocebo effects and health equity. Journal of Medical Ethics 49:1, pages 14-21.
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Isto Huvila, Åsa Cajander, Jonas Moll, Heidi Enwald, Kristina Eriksson-Backa & Hanife Rexhepi. (2021) Technological and informational frames: explaining age-related variation in the use of patient accessible electronic health records as technology and information. Information Technology & People 35:8, pages 1-22.
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Charlotte Blease, Brian McMillan, Liz Salmi, Gail Davidge & Tom Delbanco. (2022) Adapting to transparent medical records: international experience with “open notes”. BMJ, pages e069861.
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Charlotte Blease, John Torous, Zhiyong Dong, Gail Davidge, Catherine DesRoches, Anna Kharko, Andrew Turner, Ray Jones, Maria Hägglund & Brian McMillan. (2022) Patient Online Record Access in English Primary Care: A Qualitative Study of General Practitioners’ Views (Preprint). Journal of Medical Internet Research.
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Charlotte Blease, Liz Salmi, Hanife Rexhepi, Maria Hägglund & Catherine M DesRoches. (2022) Patients, clinicians and open notes: information blocking as a case of epistemic injustice. Journal of Medical Ethics 48:10, pages 785-793.
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John G. Cagle & Rachel E. Brandon. 2022. The Oxford Textbook of Palliative Social Work. The Oxford Textbook of Palliative Social Work 379 393 .
Carolyn L. TurveyLindsey A. FuhrmeisterDawn M. KleinJane Moeckli, M. Bryant HowrenEmily E. Chasco. (2022) Patient and Provider Experience of Electronic Patient Portals and Secure Messaging in Mental Health Treatment. Telemedicine and e-Health 28:2, pages 189-198.
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Hannah Shucard, Emily Muller, Joslyn Johnson, Jan Walker, Joann G. Elmore, Thomas H. Payne, Jacob Berman & Sara L. Jackson. (2022) Clinical Use of an Electronic Pre-Visit Questionnaire Soliciting Patient Visit Goals and Interim History: A Retrospective Comparison Between Safety-net and Non-Safety-net Clinics. Health Services Research and Managerial Epidemiology 9, pages 233339282210803.
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Charlotte R Blease, Tom Delbanco, John Torous, Moa Ponten, Catherine M DesRoches, Maria Hagglund, Jan Walker & Irving Kirsch. (2020) Sharing clinical notes, and placebo and nocebo effects: Can documentation affect patient health?. Journal of Health Psychology 27:1, pages 135-146.
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Julian Schwarz, Annika Bärkås, Charlotte Blease, Lorna Collins, Maria Hägglund, Sarah Markham & Stefan Hochwarter. (2021) Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review. JMIR Mental Health 8:12, pages e34170.
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Christopher Henderson, Zachary P. Nahmias, Alan Fossa, Ethan Barnes & Susan Huang. (2021) Analysis of patient preferences on patient–provider interactions through the OpenNotes online portal in dermatology. International Journal of Women's Dermatology 7:5, pages 793-798.
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Charlotte Blease, Anna Kharko, Maria Hägglund, Stephen O’Neill, Deborah Wachenheim, Liz Salmi, Kendall Harcourt, Cosima Locher, Catherine M. DesRoches & John Torous. (2021) The benefits and harms of open notes in mental health: A Delphi survey of international experts. PLOS ONE 16:10, pages e0258056.
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Mary Fitzsimons, Kevin Power, Zita McCrea, Rachel Kiersey, Maire White, Brendan Dunleavy, Sean O'Donoghue, Veronica Lambert, Norman Delanty & Colin P. Doherty. (2021) Democratizing epilepsy care: Utility and usability of an electronic patient portal. Epilepsy & Behavior 122, pages 108197.
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Annika Bärkås, Isabella Scandurra, Hanife Rexhepi, Charlotte Blease, Åsa Cajander & Maria Hägglund. (2021) Patients’ Access to Their Psychiatric Notes: Current Policies and Practices in Sweden. International Journal of Environmental Research and Public Health 18:17, pages 9140.
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Steve O’NeillCharlotte BleaseTom Delbanco. (2021) Open Notes Become Law: A Challenge for Mental Health Practice. Psychiatric Services 72:7, pages 750-751.
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Charlotte Blease, John Torous, Anna Kharko, Catherine M DesRoches, Kendall Harcourt, Stephen O'Neill, Liz Salmi, Deborah Wachenheim & Maria Hägglund. (2021) Preparing Patients and Clinicians for Open Notes in Mental Health: Qualitative Inquiry of International Experts. JMIR Mental Health 8:4, pages e27397.
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Charlotte Blease, Liz Salmi, Maria Hagglund, Deborah Wachenheim & Catherine DesRoches. (2021) COVID-19 and Open Notes: A New Method to Enhance Patient Safety and Trust (Preprint). JMIR Mental Health.
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Charlotte R. Blease, Stephen F. O'Neill, John Torous, Catherine M. DesRoches & Maria Hagglund. (2021) Patient Access to Mental Health Notes. Journal of Nervous & Mental Disease 209:4, pages 265-269.
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Zita McCrea, Kevin Power, Rachel Kiersey, Maire White, Annette Breen, Sinead Murphy, Laura Healy, Hugh Kearney, Brendan Dunleavy, Sean O'Donoghue, Veronica Lambert, Norman Delanty, Colin Doherty & Mary Fitzsimons. (2021) Coproducing health and well-being in partnership with patients, families, and healthcare providers: A qualitative study exploring the role of an epilepsy patient portal. Epilepsy & Behavior 115, pages 107664.
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Charlotte R Blease, Stephen O'Neill, Jan Walker, Maria Hägglund & John Torous. (2020) Sharing notes with mental health patients: balancing risks with respect. The Lancet Psychiatry 7:11, pages 924-925.
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Charlotte R. Blease, Jan Walker, John Torous & Stephen O'Neill. (2020) Sharing Clinical Notes in Psychotherapy: A New Tool to Strengthen Patient Autonomy. Frontiers in Psychiatry 11.
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Julie A Wright, Suzanne G Leveille, Hannah Chimowitz, Alan Fossa, Rebecca Stametz, Deserae Clarke & Jan Walker. (2020) Validation of a brief scale to assess ambulatory patients’ perceptions of reading visit notes: a scale development study. BMJ Open 10:10, pages e034517.
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Kevin Power, Zita McCrea, Maire White, Annette Breen, Brendan Dunleavy, Sean O’Donoghue, Tim Jacquemard, Veronica Lambert, Hany El‐Naggar, Norman Delanty, Colin Doherty & Mary Fitzsimons. (2020) The development of an epilepsy electronic patient portal: Facilitating both patient empowerment and remote clinician‐patient interaction in a post‐COVID‐19 world. Epilepsia 61:9, pages 1894-1905.
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