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Journal of Mental Health Volume 7, 1998 - Issue 1
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Research Article

User involvement in mental health service development: How far can it go?

DAVID PILGRIM & LESLEY WALDRON CommuniCare NHS Trust, Queens Park Hospital, Blackburn, UK
Pages 95-104 | Published online: 06 Jul 2009

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Suvi Raitakari, Sirpa Saario, Kirsi Juhila & Kirsi Günther. (2015) Client participation in mental health: shifting positions in decision-making. Nordic Social Work Research 5:1, pages 35-49.
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Sandra T. Neil, Jason Price, Liz Pitt, Mary Welford, Sarah Nothard, William Sellwood, John Mulligan & Anthony P. Morrison. (2013) Working together: Service Users and researchers in Psychosis research. Psychosis 5:3, pages 306-316.
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Bronwyn Wauchope, Richard O'Kearney, Linette Bone & Amanda Urbanc. (2011) Advance agreements for mental health care: an examination of process and outcomes. Australian and New Zealand Journal of Psychiatry 45:4, pages 281-288.
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David Kernick & Annie Mitchell. (2010) Working with lay people in health service research: A model of co-evolution based on complexity theory. Journal of Interprofessional Care 24:1, pages 31-40.
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Phyllis Montgomery, Karen McCauley & Patricia Hill Bailey. (2009) Homelessness, a State of Mind?: A Discourse Analysis. Issues in Mental Health Nursing 30:10, pages 624-630.
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Joanne Bryant, Joanne Bryant, Melissa Saxton, Annie Madden, Nicky Bath & Suzanne Robinson. (2008) Consumers' and providers' perspectives about consumer participation in drug treatment services: is there support to do more? What are the obstacles?. Drug and Alcohol Review 27:2, pages 138-144.
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Joanne Bryant, Joanne Bryant, Melissa Saxton, Annie Madden, Nicky Bath & Suzanne Robinson. (2008) Consumer participation in the planning and delivery of drug treatment services: the current arrangements. Drug and Alcohol Review 27:2, pages 130-137.
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Ric Bowl. (2007) The Need for Change in UK Mental Health Services: South Asian Service Users’ Views. Ethnicity & Health 12:1, pages 1-19.
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Jan Horsfall, Michelle Cleary, Garry Walter & Gillian Malins. (2007) CHALLENGING CONVENTIONAL PRACTICE: PLACING CONSUMERS AT THE CENTRE OF THE RESEARCH ENTERPRISE. Issues in Mental Health Nursing 28:11, pages 1201-1213.
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S. L. Connor$suffix/text()$suffix/text() & R. Wilson. (2006) It's important that they learn from us for mental health to progress. Journal of Mental Health 15:4, pages 461-474.
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Rosemary Telford & Alison Faulkner. (2004) Learning about service user involvement in mental health research. Journal of Mental Health 13:6, pages 549-559.
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Alison Summers. (2003) Involving users in the development of mental health services: A study of psychiatrists' views. Journal of Mental Health 12:2, pages 161-174.
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Angie Hart & Helen Thomas. (2000) Controversial attachments: The indirect treatment of fostered and adopted children via Parent Co-Therapy. Attachment & Human Development 2:3, pages 306-327.
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Sarah Oyebanjo, Paul Amlani-Hatcher, Ruth Williams, Roger Stevens, Tom Esterine, Kate Wilkins, Clare Jacklin, Jill Hamilton, Rosie Fairfax & Heidi Lempp. (2022) Development of a patient-led clinic visit framework: a case study navigating a patient’s journey for rheumatology outpatient clinic consultations in England and Wales. BMC Rheumatology 6:1.
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Penn Smith, Lisa Simpson & Anna Madill. (2021) Service user experiences of a novel in‐reach rehabilitation and recovery service for people with profound and enduring mental health needs. International Journal of Mental Health Nursing 30:5, pages 1106-1116.
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Nicola Lloyd, Amanda Kenny & Nerida Hyett. (2021) Evaluating health service outcomes of public involvement in health service design in high-income countries: a systematic review. BMC Health Services Research 21:1.
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Ann Britt Sandvin Olsson, Anita Strøm, Mette Haaland-Øverby, Kari Fredriksen & Una Stenberg. (2020) How can we describe impact of adult patient participation in health-service development? A scoping review. Patient Education and Counseling 103:8, pages 1453-1466.
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Daryl G. Kroner, Robert D. Morgan, Jeremy F. Mills & Kanu Maeda. (2020) Risk assessment tool floundering? Let's ask the client to self-predict. International Journal of Law and Psychiatry 68, pages 101541.
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Yvonne Bombard, G. Ross Baker, Elaina Orlando, Carol Fancott, Pooja Bhatia, Selina Casalino, Kanecy Onate, Jean-Louis Denis & Marie-Pascale Pomey. (2018) Engaging patients to improve quality of care: a systematic review. Implementation Science 13:1.
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Dristy Gurung, Nawaraj Upadhyaya, Jananee Magar, Nir Prakash Giri, Charlotte Hanlon & Mark J. D. Jordans. (2017) Service user and care giver involvement in mental health system strengthening in Nepal: a qualitative study on barriers and facilitating factors. International Journal of Mental Health Systems 11:1.
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Geoff MorganGeoff Morgan. 2017. Independent Advocacy and Spiritual Care. Independent Advocacy and Spiritual Care 61 92 .
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Baptiste Godrie. (2016) Révolution tranquille. L’implication des usagers dans l’organisation des soins et l’intervention en santé mentale. Revue française des affaires sociales:2, pages 89-104.
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Samantha L. Millar, Mary Chambers & Melanie Giles. (2016) Service user involvement in mental health care: an evolutionary concept analysis. Health Expectations 19:2, pages 209-221.
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Else Tambuyzer & Chantal Van Audenhove. (2015) Is perceived patient involvement in mental health care associated with satisfaction and empowerment?. Health Expectations 18:4, pages 516-526.
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Diana Rose, Marian Barnes, Mike Crawford, Edward Omeni, Dee MacDonald & Aaron Wilson. (2014) How do managers and leaders in the National Health Service and social care respond to service user involvement in mental health services in both its traditional and emergent forms? The ENSUE study. Health Services and Delivery Research 2:10, pages 1-94.
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Tineke Broer, Anna P. Nieboer & Roland Bal. (2014) Mutual powerlessness in client participation practices in mental health care. Health Expectations 17:2, pages 208-219.
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Lydia Lewis. (2014) User Involvement in Mental Health Services: A Case of Power over Discourse. Sociological Research Online 19:1, pages 1-15.
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Else Tambuyzer, Guido Pieters & Chantal Van Audenhove. (2014) Patient involvement in mental health care: one size does not fit all. Health Expectations 17:1, pages 138-150.
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Else Tambuyzer & Chantal Van Audenhove. (2013) Service User and Family Carer Involvement in Mental Health Care: Divergent Views. Community Mental Health Journal 49:6, pages 675-685.
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Magnus Karlsson & Urban Markström. (2011) Non-Profit Organizations in Mental Health: Their Roles as seen in Research. VOLUNTAS: International Journal of Voluntary and Nonprofit Organizations 23:2, pages 287-301.
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Lydia Lewis. (2012) ‘It's People's Whole Lives’: Gender, Class and the Emotion Work of User Involvement in Mental Health Services. Gender, Work & Organization 19:3, pages 276-305.
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Susan Mary Benbow. (2011) Patient and carer participation in old age psychiatry in England. Part II: models of participation. International Psychogeriatrics 24:2, pages 185-196.
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Susan Mary Benbow. (2011) Patient and carer participation in old age psychiatry in England. Part I: a systemic perspective of the historical and policy context. International Psychogeriatrics 24:2, pages 175-184.
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Daisy Bogg. (2011) Leadership for social care outcomes in mental health provision. International Journal of Leadership in Public Services 7:1, pages 32-47.
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Martine Duperré & Christine Deslauriers. (2011) La participation des personnes atteintes de maladie mentale aux entreprises de l’économie sociale : pouvoir effectif ou symbolique ?. Nouvelles pratiques sociales 23:2, pages 124-137.
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Gisli H. Gudjonsson, Gemma Webster & Timothy Green. (2018) The recovery approach to care in psychiatric services: staff attitudes before and after training. The Psychiatrist 34:8, pages 326-329.
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Bob Diamond. (2010) User involvement: Corporate and captive. Clinical Psychology Forum 1:209, pages 16-20.
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C. WILSON, A. FOTHERGILL & H. Rees. (2010) A potential model for the first all Wales mental health service user and carer-led research group. Journal of Psychiatric and Mental Health Nursing 17:1, pages 31-38.
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Lydia Lewis. (2009) Politics of Recognition: What Can a Human Rights Perspective Contribute to Understanding Users' Experiences of Involvement in Mental Health Services?. Social Policy and Society 8:2, pages 257-274.
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Helen M. Poole, Peter Murphy & Turo J. Nurmikko. (2009) Development and Preliminary Validation of the NePIQoL: A Quality-of-Life Measure for Neuropathic Pain. Journal of Pain and Symptom Management 37:2, pages 233-245.
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Joyce Davidson. (2007) Caring and daring to complain: An examination of UK national phobics society members’ perception of primary care. Social Science & Medicine 65:3, pages 560-571.
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Paul Duckett & Rebekah Pratt. (2016) The emancipation of visually impaired people in social science research practice. British Journal of Visual Impairment 25:1, pages 5-20.
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Allan Foreman & Alan Pringle. 2007. Teaching Mental Health. Teaching Mental Health 43 52 .
Vicki Lloyd, Amanda Gatherer & Sunny Kalsy. (2016) Conducting Qualitative Interview Research With People With Expressive Language Difficulties. Qualitative Health Research 16:10, pages 1386-1404.
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T. STICKLEY. (2006) Should service user involvement be consigned to history? A critical realist perspective. Journal of Psychiatric and Mental Health Nursing 13:5, pages 570-577.
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Jenny Weinstein. (2006) Involving mental health service users in quality assurance. Health Expectations 9:2, pages 98-109.
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Jonathan Quetzal Tritter & Alison McCallum. (2006) The snakes and ladders of user involvement: Moving beyond Arnstein. Health Policy 76:2, pages 156-168.
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Giovanni Salvi, Julia Jones & Mirella Ruggeri. (2011) Systematic review of the role of service users as researchers in mental health studies. Epidemiology and Psychiatric Sciences 14:4, pages 217-226.
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Jan Bostock & Bob Diamond. (2005) The value of community psychology: Critical reflections from the NHS. Clinical Psychology Forum 1:153, pages 22-25.
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Carole Truman. (2005) The autonomy of professionals and the involvement of patients and families. Current Opinion in Psychiatry 18:5, pages 572-575.
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J. GRAHAM, I. DENOUAL & D. CAIRNS. (2005) Happy with your care?. Journal of Psychiatric and Mental Health Nursing 12:2, pages 173-178.
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Deborah Rutter, Catherine Manley, Tim Weaver, Mike J Crawford & Naomi Fulop. (2004) Patients or partners? Case studies of user involvement in the planning and delivery of adult mental health services in London. Social Science & Medicine 58:10, pages 1973-1984.
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Jonathan Boote, Rosemary Telford & Cindy Cooper. (2002) Consumer involvement in health research: a review and research agenda. Health Policy 61:2, pages 213-236.
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R. Telford, C.A. Beverley, C.L. Cooper & J.D. Boote. (2002) Consumer involvement in health research: fact or fiction?. British Journal of Clinical Governance 7:2, pages 92-103.
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Carole Truman & Pamela Raine. (2002) Experience and meaning of user involvement: some explorations from a community mental health project. Health & Social Care in the Community 10:3, pages 136-143.
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Carl May, Linda Gask, Theresa Atkinson, Nicola Ellis, Frances Mair & Aneez Esmail. (2001) Resisting and promoting new technologies in clinical practice: the case of telepsychiatry. Social Science & Medicine 52:12, pages 1889-1901.
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Simon Gelsthorpe. (1999) Psychiatry: we are paid to disagree. Using the bad feelings positively. Clinical Psychology Forum 1:127, pages 16-19.
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