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Research Article

An evaluation of quality of life of mothers of children with cerebral palsy

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Pages 1354-1359 | Published online: 07 Jul 2009

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Read on this site (9)

Katia De Gaetano, Donatella Saviola, Domenica Brunetti & Antonio De Tanti. (2022) The importance of assessing parent stress in families with children with severe neuromotor and intellectual disability – a pilot study. Applied Neuropsychology: Child 11:4, pages 804-810.
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Joslin Alexei Dogbe, Joana D. A. Kyeremateng, Maxwell Peprah Opoku, William Nketsia & Charles Hammond. (2022) ‘There is family tension, but they understand…’: familial and sibling relationships following the diagnosis of cerebral palsy in children in Ghana. International Journal of Developmental Disabilities 68:1, pages 35-46.
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C. Sivaratnam, B. Devenish, K. Howells, T. Chellew, K. Reynolds & N. Rinehart. (2021) Risk factors for mental health difficulties in parents of children with cerebral palsy: a systematic review and meta-analysis. Clinical Psychologist 25:1, pages 1-18.
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V. Prakash, Anjali M. Patel, K. Hariohm & Robert J. Palisano. (2017) Higher Levels of Caregiver Strain Perceived by Indian Mothers of Children and Young Adults with Cerebral Palsy Who have Limited Self-Mobility. Physical & Occupational Therapy In Pediatrics 37:1, pages 64-73.
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Mei-Hui Tseng, Kuan-Lin Chen, Jeng-Yi Shieh, Lu Lu, Chien-Yu Huang & Rune J. Simeonsson. (2016) Child characteristics, caregiver characteristics, and environmental factors affecting the quality of life of caregivers of children with cerebral palsy. Disability and Rehabilitation 38:24, pages 2374-2382.
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Robert J. Palisano, Lisa A. Chiarello, Sarah Westcott McCoy, Doreen Bartlett & Mihee An. (2015) Use of the Child Engagement in Daily Life and Ease of Caregiving for Children to Evaluate Change in Young Children with Cerebral Palsy. Physical & Occupational Therapy In Pediatrics 35:3, pages 280-295.
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Anna Cheshire, Julie H. Barlow & Lesley A. Powell. (2010) The psychosocial well-being of parents of children with cerebral palsy: a comparison study. Disability and Rehabilitation 32:20, pages 1673-1677.
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SusanB. Coyle. (2009) Health-Related Quality of Life of Mothers: A Review of the Research. Health Care for Women International 30:6, pages 484-506.
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Laurence Roy, Jacqueline Rousseau, Héloïse Allard, Debbie Feldman & Annette Majnemer. (2008) Parental Experience of Home Adaptation for Children with Motor Disabilities. Physical & Occupational Therapy In Pediatrics 28:4, pages 353-368.
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Articles from other publishers (73)

Maxwell Peprah Opoku, Joana D. A. Kyeremateng, Hala Elhoweris, Joslin Alexei Dogbe, William Nketsia, Charles Hammond & Shashidhar Belbase. (2023) Caregivers’ Accounts of School Searches for Children with Cerebral Palsy in a Developing Sub-Saharan African Context. Advances in Neurodevelopmental Disorders.
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Bimba D.R. Hewawitharana, Champa J. Wijesinghe, Aruna De Silva, John P. Phillips & Gemunu P. Hewawitharana. (2023) Disability and caregiver burden: Unique challenges in a developing country. Journal of Pediatric Rehabilitation Medicine, pages 1-9.
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Ayça Nur SEYFELİ & Anıl ÖZÜDOĞRU. (2023) Serebral Palsili Çocukların Fonksiyonelliği ile Ebeveynlerinin Kas İskelet Sistemi Ağrısı, Yorgunluk ve Yaşam Kalitesi Arasındaki İlişkinin İncelenmesiInvestigation of the Relationship Between the Functionality of Children with Cerebral Palsy and Their Parents Musculoskeletal Pain, Fatigue and Quality of Life. Ergoterapi ve Rehabilitasyon Dergisi 11:2, pages 45-54.
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Marian Sankombo. 2023. Cerebral Palsy - Updates. Cerebral Palsy - Updates.
Letycia Monteiro Cavalcanti Araújo, Vinícius J. Guimarães‐do‐Carmo, Tácia Gabriela V. S. Andrade, Sabrina Cavalcanti Claudino, Diego Moura Soares & Renato S. Melo. (2022) Musculoskeletal pain and quality of life in mothers of children with microcephaly, due to congenital Zika virus syndrome. Child: Care, Health and Development 49:2, pages 268-280.
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Barnaby Roberts, Laura Green, Venus Ahmed, Tom Latham, Peter O'Boyle, Mark H. Yazer & Rebecca Cardigan. (2022) Modelling the outcomes of different red blood cell transfusion strategies for the treatment of traumatic haemorrhage in the prehospital setting in the United Kingdom . Vox Sanguinis 117:11, pages 1287-1295.
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Natalia Orlova. (2022) CHARACTERISTICS OF THE PSYCHO-EMOTIONAL STATE OF PARENTS OF CHILDREN WITH PARALYTIC SYNDROMES AND ITS CHANGES DURING REHABILITATION MEASURES. Inter Collegas 9:1, pages 36-44.
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Natalia Orlova, Olena Riga, Tatiana Ishchenko, Оlexander Onikiienko, Olena Omelchenko, Marina Urivaeva & Inna Alenina. (2022) CHRONIC PAIN AND PHYSICAL THERAPY IN CHILDREN WITH PARALYTIC SYNDROMES: ARE THERE ANY CHANGES DURING LOCKDOWN?. Wiadomości Lekarskie 75:9, pages 2262-2269.
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Muhammed CANBAŞ, Musa POLAT, Nuryil YİLMAZ, Selim ÇAM & Ahmet KARADAĞ. (2022) SUICIDAL IDEATION AND BEHAVIORS IN MOTHERS OF CHILDREN WITH CEREBRAL PALSY. Cumhuriyet Medical Journal.
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Kamile Uzun Akkaya, Sabiha Bezgin & Bülent Elbasan. (2022) The Assessment of Factors Related to Family Life in Children with Cerebral Palsy. Güncel Pediatri 20:1, pages 70-77.
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Bilinc DOGRUOZ KARATEKİN & Afitap ICAGASİOGLU. (2022) The effects of the functional levels of children with cerebral palsy on the quality of life of caregivers. Journal of Surgery and Medicine 6:2, pages 191-195.
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Yazgi Senturk, Berkiye Kirmizigil & Emine Handan Tuzun. (2021) Effects of clinical Pilates exercises on cardiovascular endurance and psychosomatic parameters on primary caregivers of special needs children: A randomized controlled trial. Journal of Back and Musculoskeletal Rehabilitation 34:5, pages 853-864.
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Julie Hartley, Myra Bluebond-Langner, Bridget Candy, Jonathan Downie & Ellen M Henderson. (2021) The Physical Health of Caregivers of Children With Life-Limiting Conditions: A Systematic Review. Pediatrics 148:2.
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Yazgi Senturk, Berkiye Kirmizigil & Emine H Tuzun. (2021) Effects of clinical Pilates on the fitness in people with children with disabilities: a randomized controlled trial. Journal of Comparative Effectiveness Research 10:5, pages 409-422.
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Alanoud Akram Aman, Bashaer Baharoon, Haifa Jamal Idrees, Ahad Mohammedyusuf Taj, Bassmah Ali Alzahrani & Osama Yousef Muthaffar. (2021) A Cross-sectional Study to Evaluate the Quality of Life of Caregivers for Children with Cerebral Palsy. Pharmacophore 12:5, pages 69-75.
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SwapnilP Sonune, AnilK Gaur & Anuradha Shenoy. (2021) Prevalence of depression and quality of life in primary caregiver of children with cerebral palsy. Journal of Family Medicine and Primary Care 10:11, pages 4205.
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Meen Hye Lee, Alicia K. Matthews, Chang Gi Park, Catherine Vincent, Kelly Hsieh & Teresa A. Savage. (2020) Relationships among parenting stress, health‐promoting behaviors, and health‐related quality of life in Korean mothers of children with cerebral palsy. Research in Nursing & Health 43:6, pages 590-601.
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Fatih Yığman, Zeynep Aykın Yığman & Ece Ünlü Akyüz. (2020) Investigation of the relationship between disease severity, caregiver burden and emotional expression in caregivers of children with cerebral palsy. Irish Journal of Medical Science (1971 -) 189:4, pages 1413-1419.
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Sagrario Pérez-de la Cruz & Ivonne Ramírez. (2020) Parents’ Perceptions Regarding the Implementation of a Physical Therapy Stimulation Program for Children with Disabilities in Bolivia: A Qualitative Study. International Journal of Environmental Research and Public Health 17:17, pages 6409.
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Sarah C. Masefield, Stephanie L. Prady, Trevor A. Sheldon, Neil Small, Stuart Jarvis & Kate E. Pickett. (2020) The Caregiver Health Effects of Caring for Young Children with Developmental Disabilities: A Meta-analysis. Maternal and Child Health Journal 24:5, pages 561-574.
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Heidi Fritz & Carrie Sewell-Roberts. 2020. Cerebral Palsy. Cerebral Palsy 515 545 .
Şeyma TOY, Ayşegül BEYKUMÜL, Zeynep Tuğçe AVCI & Raikan BÜYÜKAVCI. (2019) Fibromyalgia in the mothers of the children with cerebral palsy, and determination of the related depression and anxiety situations. The European Research Journal 5:5, pages 873-878.
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Ayşe Sarsan. (2019) Serebral palsili çocukların klinik özellikleri ile ebeveynlerinin duygudurumları arasındaki ilişki. Pamukkale Medical Journal.
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Meen Hye Lee, Alicia K. Matthews & Chang Park. (2019) Determinants of Health-related Quality of Life Among Mothers of Children With Cerebral Palsy. Journal of Pediatric Nursing 44, pages 1-8.
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Verónica Schiariti, Egmar Longo, Alexander Shoshmin, Ludmila Kozhushko, Yanina Besstrashnova, Maria Król, Taynah Neri Correia Campos, Haryelle Náryma Confessor Ferreira, Cláudia Verissimo, Daniel Shaba, Matilda Mwale & Sandra Amado. (2018) Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning. International Journal of Environmental Research and Public Health 15:9, pages 1899.
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Chidimma J. AHANOTU, Peter O. IBİKUNLE & Adebisi İ. HAMMED. (2018) Burden of caregiving, social support and quality of life of informal caregivers of patients with cerebral palsy. Turkish Journal of Kinesiology 4:2, pages 58-64.
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Sophy T F Shih, Utsana Tonmukayakul, Christine Imms, Dinah Reddihough, H Kerr Graham, Liz Cox & Rob Carter. (2018) Economic evaluation and cost of interventions for cerebral palsy: a systematic review. Developmental Medicine & Child Neurology 60:6, pages 543-558.
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B. Schaible, G. Colquitt, M. C. Caciula, A. Carnes, L. Li & N. Moreau. (2018) Comparing impact on the family and insurance coverage in children with cerebral palsy and children with another special healthcare need. Child: Care, Health and Development 44:3, pages 370-377.
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Emine Aslan Telci, Feride Yarar, Uğur Cavlak & Orcin Telli Atalay. (2018) Comparison of musculoskeletal pain distribution, quality of life and hopelessness level in mothers with disabled children in different ambulation levels. Journal of Back and Musculoskeletal Rehabilitation 31:2, pages 305-313.
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Heidi Fritz & Carrie Sewell-Roberts. 2018. Cerebral Palsy. Cerebral Palsy 1 31 .
Valeria Jia-Yi Chiu, Li-Ping Tsai, Jang-Ting Wei, I-Shiang Tzeng & Hsin-Chi Wu. (2017) Motor performance in Prader-Willi syndrome patients and its potential influence on caregiver’s quality of life. PeerJ 5, pages e4097.
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Brian Chanda Chiluba & Geoffrey Moyo. (2017) Caring for a cerebral palsy child: a caregivers perspective at the University Teaching Hospital, Zambia. BMC Research Notes 10:1.
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Einar B. Thorsteinsson, Natasha M. Loi & Kylie Rayner. (2017) Self-efficacy, relationship satisfaction, and social support: the quality of life of maternal caregivers of children with type 1 diabetes. PeerJ 5, pages e3961.
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Carole L James, Norsyamimi Rusli & Timothy R Broady. (2017) Carers and manual handling: Survey results. International Journal of Therapy and Rehabilitation 24:4, pages 146-154.
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Chang-Kyo Yun. (2017) Relationship between the quality of life of the caregiver and motor function of children with cerebral palsy. Physical Therapy Rehabilitation Science 6:1, pages 26-32.
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Audrey Guyard, Susan I. Michelsen, Catherine Arnaud & Jerome Fauconnier. (2017) Family adaptation to cerebral palsy in adolescents: A European multicenter study. Research in Developmental Disabilities 61, pages 138-150.
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Ji-Na Yoo. (2016) Correlations among Motor Function, Quality of Life, and Caregiver Depression Levels in Children with Cerebral Palsy. The Journal of Korean Physical Therapy 28:6, pages 385-392.
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Shiji Chalipat, Sudhir Dnyaneshwar Malwade, Geeta Rajendra Karambelkar, Sharad Ramkrishna Agarkhedkar & Vyshna Thejus Kannan. (2016) ASSESSMENT OF QUALITY OF LIFE OF PARENTS OF CHILDREN WITH CEREBRAL PALSY. Journal of Evidence Based Medicine and Healthcare 3:85, pages 4673-4677.
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Moisés Rosa Batista, Jaqueline Pontes Batista, Jussara Caetano Furtado, Luiz Duarte de Ulhôa Rocha Junior, Eduardo Henrique Tavares, Hygor Nunes Araújo, Rogério de Melo Costa Pinto & Nívea de Macedo Oliveira Morales. (2016) EFEITO DO EXERCÍCIO FÍSICO SOBRE A SAÚDE E SOBRECARGA DE MÃES DE CRIANÇAS E ADOLESCENTES COM PARALISIA CEREBRAL. Revista Brasileira de Medicina do Esporte 22:3, pages 222-226.
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John T. KillianJr.Jr., Jane B. Lane, Hye-Seung Lee, James H. Pelham, Steve A. Skinner, Walter E. Kaufmann, Daniel G. Glaze, Jeffrey L. Neul & Alan K. Percy. (2016) Caretaker Quality of Life in Rett Syndrome: Disorder Features and Psychological Predictors. Pediatric Neurology 58, pages 67-74.
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Linda Lowes, Teresa Sha Clark & Garey Noritz. (2016) Factors associated with caregiver experience in families with a child with cerebral palsy. Journal of Pediatric Rehabilitation Medicine 9:1, pages 65-72.
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Fidias Carreño Mora, Fernando Ortiz Corredor, Eugenia Espinosa García & Claudia Elena Pérez Hernández. (2015) Validación de un instrumento para evaluar la carga del cuidador en parálisis cerebral. Revista de Salud Pública 17:4, pages 578-588.
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Jermaine M. Dambi, Jennifer Jelsma & Tecla Mlambo. (2015) Caring for a child with Cerebral Palsy: The experience of Zimbabwean mothers. African Journal of Disability 4:1.
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Adam Posłuszny, Andrzej Myśliwiec, Edward Saulicz, Iwona Doroniewicz, Paweł Linek & Tomasz Wolny. (2015) The occurrence of the cervical pain syndromes in parents of children with physical disability in the population of Poland. Disability and Health Journal 8:2, pages 278-283.
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Bilge Yagmurlu, H. Melis Yavuz & Hilal Sen. (2014) Well-Being of Mothers of Children with Orthopedic Disabilities in a Disadvantaged Context: Findings from Turkey. Journal of Child and Family Studies 24:4, pages 948-956.
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Eduardo Borba Neves, Evelise Fernandes Pietrovski & Rafaela Franco Claudino. (2015) Quality of Life and low back pain in primary caregivers of children with cerebral palsy. Cadernos Saúde Coletiva 23:1, pages 50-56.
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Jermaine M Dambi & Jennifer Jelsma. (2014) The impact of hospital-based and community based models of cerebral palsy rehabilitation: a quasi-experimental study. BMC Pediatrics 14:1.
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Taryn B Bemister, Brian L Brooks, Richard H Dyck & Adam Kirton. (2014) Parent and family impact of raising a child with perinatal stroke. BMC Pediatrics 14:1.
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Kimberly D. Ward, Lisa A. Chiarello, Doreen J. Bartlett, Robert J. Palisano, Sarah Westcott McCoy & Lisa Avery. (2014) Ease of Caregiving for Children: A measure of parent perceptions of the physical demands of caregiving for young children with cerebral palsy. Research in Developmental Disabilities 35:12, pages 3403-3415.
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İbrahim Engin Şimşek, Suat Erel, Tülay Tarsuslu Şimşek, Songül Atasavun Uysal, Hilal Yakut, Yavuz Yakut & Fatma Uygur. (2014) Factors Related to the Impact of Chronically Disabled Children on Their Families. Pediatric Neurology 50:3, pages 255-261.
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Modesta Pousada, Noemí Guillamón, Eulàlia Hernández-Encuentra, Elena Muñoz, Diego Redolar, Mercè Boixadós & Beni Gómez-Zúñiga. (2013) Impact of Caring for a Child with Cerebral Palsy on the Quality of Life of Parents: A Systematic Review of the Literature. Journal of Developmental and Physical Disabilities 25:5, pages 545-577.
Crossref
Kênnea Martins Almeida, Breno Morais da Fonseca, Amanda Azevedo Gomes & Murilo Xavier Oliveira. (2013) Fatores que influenciam a qualidade de vida de cuidadores de paralisados cerebrais. Fisioterapia em Movimento 26:2, pages 307-314.
Crossref
Noemí Guillamón, Ruben Nieto, Modesta Pousada, Diego Redolar, Elena Muñoz, Eulàlia Hernández, Mercè Boixadós & Benigna Gómez‐Zúñiga. (2013) Quality of life and mental health among parents of children with cerebral palsy: the influence of self‐efficacy and coping strategies. Journal of Clinical Nursing 22:11-12, pages 1579-1590.
Crossref
Ekhlas Al-Gamal. (2013) Quality of life and anticipatory grieving among parents living with a child with cerebral palsy. International Journal of Nursing Practice 19:3, pages 288-294.
Crossref
Ilknur Cifci Tekinarslan. (2013) A Comparison Study of Depression and Quality of Life in Turkish Mothers of Children with down Syndrome, Cerebral Palsy, and Autism Spectrum Disorder. Psychological Reports 112:1, pages 266-287.
Crossref
Amanda Brait Zerbeto & Regina Yu Shon Chun. (2013) Qualidade de vida dos cuidadores de crianças e adolescentes com alterações de fala e linguagem. CoDAS 25:2, pages 128-134.
Crossref
Halim Yilmaz, Gulten Erkin & Alparslan Ali İZKİ. (2013) Quality of Life in Mothers of Children with Cerebral Palsy. ISRN Rehabilitation 2013, pages 1-5.
Crossref
R.T. Miura & E.B.L. Petean. (2012) Paralisia Cerebral Grave: O Impacto na Qualidade de Vida de Mães Cuidadoras. Mudanças - Psicologia da Saúde 20:1-2, pages 7-12.
Crossref
CHIKAKO YAMAUCHI. (2012) Children’s Health and Parental Labour Supply*. Economic Record 88:281, pages 195-213.
Crossref
Ana Fonseca, Bárbara Nazaré & Maria Cristina Canavarro. (2012) Parental psychological distress and quality of life after a prenatal or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy infants. Disability and Health Journal 5:2, pages 67-74.
Crossref
Susan B. Coyle. (2011) Maternal concern, social support, and health‐related quality of life across childhood. Research in Nursing & Health 34:4, pages 297-309.
Crossref
Bock-Ryn Kim, Ok-Hee Cho & Yang-Sook Yoo. (2011) Effects of Death Education Program on Family Caregivers of Disabled Individuals. The Korean Journal of Hospice and Palliative Care 14:1, pages 20-27.
Crossref
A. Guyard, J. Fauconnier, M.-A. Mermet & C. Cans. (2011) Impact sur les parents de la paralysie cérébrale chez l’enfant : revue de la littérature. Archives de Pédiatrie 18:2, pages 204-214.
Crossref
Judilita Teresa de Melo Carvalho, Nyedja Menezes Rodrigues, Lícia Vasconcelos Carvalho da Silva & Daniella Araújo de Oliveira. (2010) Qualidade de vida das mães de crianças e adolescentes com paralisia cerebral. Fisioterapia em Movimento 23:3, pages 389-397.
Crossref
M. B. Byrne, D. A. Hurley, L. Daly & C. G. Cunningham. (2010) Health status of caregivers of children with cerebral palsy. Child: Care, Health and Development 36:5, pages 696-702.
Crossref
Oznur Yılmaz, Sibel Aksu Yıldırım, Cigdem Öksüz, Sibel Atay & Ebru Turan. (2010) Mothers' depression and health-related quality of life in neuromuscular diseases: Role of functional independence level of the children. Pediatrics International 52:4, pages 648-652.
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Cejane Oliveira Martins Prudente, Maria Alves Barbosa & Celmo Celeno Porto. (2010) Relation Between Quality of Life of Mothers of Children With Cerebral Palsy and the Children's Motor Functioning, After Ten Months of Rehabilitation. Revista Latino-Americana de Enfermagem 18:2, pages 149-155.
Crossref
Rochelle H. Stokes & Liisa Holsti. (2010) Paediatric Occupational Therapy: Addressing Parental Stress with the Sense of Coherence. Canadian Journal of Occupational Therapy 77:1, pages 30-37.
Crossref
E. Davis, A. Shelly, E. Waters, R. Boyd, K. Cook & M. Davern. (2009) The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers. Child: Care, Health and Development 36:1, pages 63-73.
Crossref
Anna Dąbrowska. (2008) Sense of coherence and coping with stress in fathers of children with developmental disabilities**. Polish Psychological Bulletin 39:1.
Crossref
E. André, I. Hodgkinson, C. Bérard & V. des Portes. (2007) Qualité de vie de l'enfant polyhandicapé: questionnaire portant sur l'influence de l'état de santé et de l'alimentation entérale. Archives de Pédiatrie 14:9, pages 1076-1083.
Crossref
L. Bertella, I. Mori, G. Grugni, R. Pignatti, F. Ceriani, E. Molinari, A. Ceccarelli, A. Sartorio, R. Vettor & C. Semenza. (2007) Quality of life and psychological well-being in GH-treated, adult PWS patients: a longitudinal study. Journal of Intellectual Disability Research 51:4, pages 302-311.
Crossref
N. de Souza, V. Sardessai, K. Joshi, V. Joshi & M. Hughes. (2006) The determinants of compliance with an early intervention programme for high-risk babies in India. Child: Care, Health and Development 32:1, pages 63-72.
Crossref

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