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Research Article

The positive impact of multiple sclerosis (MS) on carers: Associations between carer benefit finding and positive and negative adjustment domains

Pages 985-997 | Accepted 01 Jan 2005, Published online: 07 Jul 2009

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Fitsum Areguy, Steven E. Mock, Andrea Breen, Tricia Van Rhijn, Kimberley Wilson & Donna S. Lero. (2019) Communal Orientation, Benefit-finding, and Coping among Young Carers. Child & Youth Services 40:4, pages 363-382.
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Rachael Theed, Fiona Eccles & Jane Simpson. (2017) Experiences of caring for a family member with Parkinson's disease: a meta-synthesis. Aging & Mental Health 21:10, pages 1007-1016.
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Gogem Topcu, Heather Buchanan, Aimee Aubeeluck & Gülcan Garip. (2016) Caregiving in multiple sclerosis and quality of life: A meta-synthesis of qualitative research. Psychology & Health 31:6, pages 693-710.
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Robert J. Buchanan & Chunfeng Huang. (2012) Caregiver perceptions of accomplishment from assisting people with multiple sclerosis. Disability and Rehabilitation 34:1, pages 53-61.
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MichaelJ. Ireland & KennethI. Pakenham. (2010) Youth adjustment to parental illness or disability: The role of illness characteristics, caregiving, and attachment. Psychology, Health & Medicine 15:6, pages 632-645.
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Claudia Jardim & Kenneth Pakenham. (2010) Carers of adults with mental illness: Comparison of respite care users and non-users. Australian Psychologist 45:1, pages 50-58.
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Robert Buchanan, Dagmar Radin, Bonnie J. Chakravorty & Tuula Tyry. (2010) Perceptions of informal care givers: Health and support services provided to people with multiple sclerosis. Disability and Rehabilitation 32:6, pages 500-510.
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Helene Starks, Megan A. Morris, Kathryn M. Yorkston, Robin F. Gray & Kurt L. Johnson. (2010) Being in- or out-of-sync: Couples' adaptation to change in multiple sclerosis. Disability and Rehabilitation 32:3, pages 196-206.
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Anastasios B. Kouzoupis, Thomas Paparrigopoulos, Marina Soldatos & George N. Papadimitriou. (2010) The family of the multiple sclerosis patient: A psychosocial perspective. International Review of Psychiatry 22:1, pages 83-89.
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Brigid Waldron-Perrine, Lisa J. Rapport, Kelly A. Ryan & Kaja Telmet Harper. (2009) Predictors of life satisfaction among caregivers of individuals with multiple sclerosis. The Clinical Neuropsychologist 23:3, pages 462-478.
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Tatjana Barskova & Rainer Oesterreich. (2009) Post-traumatic growth in people living with a serious medical condition and its relations to physical and mental health: A systematic review. Disability and Rehabilitation 31:21, pages 1709-1733.
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H. Irvine, C. Davidson, K. Hoy & A. Lowe-Strong. (2009) Psychosocial adjustment to multiple sclerosis: exploration of identity redefinition. Disability and Rehabilitation 31:8, pages 599-606.
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Kenneth I. Pakenham. (2008) The nature of sense making in caregiving for persons with multiple sclerosis. Disability and Rehabilitation 30:17, pages 1263-1273.
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KennethI. Pakenham. (2007) The nature of benefit finding in multiple sclerosis (MS). Psychology, Health & Medicine 12:2, pages 190-196.
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Andrea Scerbe, Megan E. O’Connell, Arlene Astell, Debra Morgan, Julie Kosteniuk, Ivan Panyavin, Andrea DesRoches & Claire Webster. (2023) Digital tools for delivery of dementia education for caregivers of persons with dementia: A systematic review and meta-analysis of impact on caregiver distress and depressive symptoms. PLOS ONE 18:5, pages e0283600.
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Roshanth Rajachandrakumar & Marcia Finlayson. (2021) Multiple sclerosis caregiving: A systematic scoping review to map current state of knowledge. Health & Social Care in the Community 30:4.
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Emanuela Calandri, Federica Graziano, Martina Borghi & Silvia Bonino. (2021) The future between difficulties and resources: Exploring parents' perspective on young adults with multiple sclerosis. Family Relations 71:2, pages 686-706.
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Odessa McKenna, Afolasade Fakolade, Katherine Cardwell, Nigèle Langlois, Karen Jiang & Lara A. Pilutti. (2021) Towards conceptual convergence: A systematic review of psychological resilience in family caregivers of persons living with chronic neurological conditions. Health Expectations 25:1, pages 4-37.
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Silvia Poli, Michela Rimondini, Alberto Gajofatto, Maria Angela Mazzi, Isolde Martina Busch, Francesca Gobbin, Federico Schena, Lidia Del Piccolo & Valeria Donisi. (2021) “If You Can’t Control the Wind, Adjust Your Sail”: Tips for Post-Pandemic Benefit Finding from Young Adults Living with Multiple Sclerosis. A Qualitative Study. International Journal of Environmental Research and Public Health 18:8, pages 4156.
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Carolina Palacio Gonzalez, Juan Pablo Roman‐Calderón & Joaquín T. Limonero. (2020) The relationship between positive aspects of caring, anxiety and depression in the caregivers of cancer patients: The mediational role of burden. European Journal of Cancer Care 30:1.
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Sandra L. Neate, Keryn L. Taylor, Nupur Nag, George A. Jelinek, Steve Simpson-Yap, William Bevens & Tracey J. Weiland. (2020) Views of the Future of Partners of People with Multiple Sclerosis Who Attended a Lifestyle Modification Workshop: A Qualitative Analysis of Perspectives and Experiences. International Journal of Environmental Research and Public Health 18:1, pages 85.
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Fatemeh Motaharinezhad, laleh lajevardi, Afsoon Hassani Mehraban & Setareh Ghahari. (2020) Occupational Challenges in the Caregivers of People with Multiple Sclerosis: A Qualitative Study. Middle East Journal of Rehabilitation and Health Studies 7:4.
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Carolina Palacio G, Alicia Krikorian, María José Gómez-Romero & Joaquín T. Limonero. (2019) Resilience in Caregivers: A Systematic Review. American Journal of Hospice and Palliative Medicine® 37:8, pages 648-658.
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Carolina Palacio & Joaquín T. Limonero. (2019) The relationship between the positive aspects of caring and the personal growth of caregivers of patients with advanced oncological illness. Supportive Care in Cancer 28:7, pages 3007-3013.
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Marta Bassi, Sabina Cilia, Monica Falautano, Monica Grobberio, Luca Negri, Claudia Niccolai, Marianna Pattini, Erika Pietrolongo, Maria Esmeralda Quartuccio, Rosa Gemma Viterbo, Beatrice Allegri, Maria Pia Amato, Miriam Benin, Giovanna De Luca, Claudio Gasperini, Eleonora Minacapelli, Francesco Patti, Maria Trojano & Antonella Delle Fave. (2019) The caring experience in multiple sclerosis: Caregiving tasks, coping strategies and psychological well‐being. Health & Social Care in the Community 28:1, pages 236-246.
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Sandra L. Neate, Keryn L. Taylor, George A. Jelinek, Alysha M. De Livera, Steve Simpson, Jr, William Bevens & Tracey J. Weiland. (2019) On the path together: Experiences of partners of people with multiple sclerosis of the impact of lifestyle modification on their relationship. Health & Social Care in the Community 27:6, pages 1515-1524.
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Nelson C.Y. Yeung, Yiwei Zhang, Lili Ji, Guohua Lu & Qian Lu. (2019) Correlates of sexual quality of life among husbands of Chinese breast cancer survivors. European Journal of Oncology Nursing 40, pages 63-70.
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Sandra L. Neate, Keryn L. Taylor, George A. Jelinek, Alysha M. De Livera, Chelsea R. Brown & Tracey J. Weiland. (2019) Taking active steps: Changes made by partners of people with multiple sclerosis who undertake lifestyle modification. PLOS ONE 14:2, pages e0212422.
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Tim Luckett, Meera Agar, Michelle DiGiacomo, Caleb Ferguson, Lawrence Lam & Jane Phillips. (2019) Health status of people who have provided informal care or support to an adult with chronic disease in the last 5 years: results from a population-based cross-sectional survey in South Australia. Australian Health Review 43:4, pages 408.
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Damien Appleton, Noelle Robertson, Laura Mitchell & Rosie Lesley. (2018) Our disease: a qualitative meta-synthesis of the experiences of spousal/partner caregivers of people with multiple sclerosis. Scandinavian Journal of Caring Sciences 32:4, pages 1262-1278.
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Kenneth Ian Pakenham & Stephen Cox. (2018) Effects of Benefit Finding, Social Support and Caregiving on Youth Adjustment in a Parental Illness Context. Journal of Child and Family Studies 27:8, pages 2491-2506.
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Sandra L. Neate, Keryn L. Taylor, George A. Jelinek, Alysha M. De Livera, Chelsea R. Brown & Tracey J. Weiland. (2018) Psychological Shift in Partners of People with Multiple Sclerosis Who Undertake Lifestyle Modification: An Interpretive Phenomenological Study. Frontiers in Psychology 9.
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Neda Razaz, K. S. Joseph, Ruth Ann Marrie & Helen Tremlett. 2017. Health Issues in Women with Multiple Sclerosis. Health Issues in Women with Multiple Sclerosis 63 72 .
Andrea Giordano, Vincenzo Cimino, Angela Campanella, Giovanni Morone, Augusto Fusco, Mariangela Farinotti, Lucia Palmisano, Paolo Confalonieri, Alessandra Lugaresi, Maria Grazia Grasso, Michela Ponzio, Simone Veronese, Francesco Patti & Alessandra Solari. (2016) Low quality of life and psychological wellbeing contrast with moderate perceived burden in carers of people with severe multiple sclerosis. Journal of the Neurological Sciences 366, pages 139-145.
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Margund K. Rohr & Frieder R. Lang. (2016) The Role of Anticipated Gains and Losses on Preferences About Future Caregiving. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences 71:3, pages 405-414.
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Heidrun Golla, Stephanie Mammeas, Maren Galushko, Holger Pfaff & Raymond Voltz. (2015) Unmet needs of caregivers of severely affected multiple sclerosis patients: A qualitative study. Palliative and Supportive Care 13:6, pages 1685-1693.
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Eun-Jeong Lee, Jessica Pieczynski, Samantha DeDios-Stern, Camille Simonetti & Gloria K. Lee. (2015) Gender differences in caregiver strain, needs for support, social support, and quality of life among spousal caregivers of persons with multiple sclerosis. Work 52:4, pages 777-787.
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Sindia Madan & Kenneth I Pakenham. (2013) The stress-buffering effects of hope on changes in adjustment to caregiving in multiple sclerosis. Journal of Health Psychology 20:9, pages 1207-1221.
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David L. Albright, Debra Parker Oliver & George Demiris. (2014) Reaction to Caregiving by Hospice Caregivers Upon Enrollment. American Journal of Hospice and Palliative Medicine® 32:6, pages 641-646.
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Charles Brand, Brenda H O’Connell & Stephen Gallagher. (2015) A randomised controlled trial of benefit finding in caregivers: The Building Resources in Caregivers Study Protocol. Health Psychology Open 2:2, pages 205510291559501.
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E. Bayen, C. Papeix, P. Pradat-Diehl, C. Lubetzki & M. E. Joël. (2015) Patterns of Objective and Subjective Burden of Informal Caregivers in Multiple Sclerosis. Behavioural Neurology 2015, pages 1-10.
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Neda Razaz, Reza Nourian, Ruth Ann Marrie, W Thomas Boyce & Helen Tremlett. (2014) Children and adolescents adjustment to parental multiple sclerosis: a systematic review. BMC Neurology 14:1.
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William Hallam & Reg Morris. (2014) Post-traumatic growth in stroke carers: A comparison of theories. British Journal of Health Psychology 19:3, pages 619-635.
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Lynda Hillman. (2013) Caregiving in Multiple Sclerosis. Physical Medicine and Rehabilitation Clinics of North America 24:4, pages 619-627.
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Katie Ackroyd, Dónal G. Fortune, Siân Price, Stephen Howell, Basil Sharrack & Claire L. Isaac. (2011) Adversarial Growth in Patients with Multiple Sclerosis and their Partners: Relationships with Illness Perceptions, Disability and Distress. Journal of Clinical Psychology in Medical Settings 18:4, pages 372-379.
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Elodie J. O’Connor & Marita P. McCabe. (2010) Predictors of quality of life in carers for people with a progressive neurological illness: a longitudinal study. Quality of Life Research 20:5, pages 703-711.
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James R. Rodrigue, Noelle Dimitri, Amanda Reed, Timothy Antonellis, Martha Pavlakis, Scott R. Johnson & Didier A. Mandelbrot. (2010) Spouse Caregivers of Kidney Transplant Patients: Quality of Life and Psychosocial Outcomes. Progress in Transplantation 20:4, pages 335-342.
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Rex D. Simmons. (2010) Life issues in multiple sclerosis. Nature Reviews Neurology 6:11, pages 603-610.
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Steven Mock & Kathrin Boerner. (2010) Sense Making and Benefit Finding among Patients with Amyotrophic Lateral Sclerosis and Their Primary Caregivers. Journal of Health Psychology 15:1, pages 115-121.
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Margarita Corry & Alison While. (2009) The needs of carers of people with multiple sclerosis: a literature review. Scandinavian Journal of Caring Sciences 23:3, pages 569-588.
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W.K. Tim Wong, Jane Ussher & Janette Perz. (2009) Strength through adversity: Bereaved cancer carers' accounts of rewards and personal growth from caring. Palliative and Supportive Care 7:2, pages 187-196.
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Kenneth I. Pakenham & Stephen Cox. (2008) Development of the benefit finding in multiple sclerosis (MS) caregiving scale: A longitudinal study of relations between benefit finding and adjustment. British Journal of Health Psychology 13:4, pages 583-602.
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Michiyo ITO, Taisuke TOGARI, Min JEONG PARK & Yoshihiko YAMAZAKI. (2008) Difficulties at work experienced by patients with inflammatory bowel disease (IBD) and factors relevant to work motivation and depression. Japanese Journal of Health and Human Ecology 74:6, pages 290-310.
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K.I. Pakenham. (2007) The nature of caregiving in multiple sclerosis: development of the caregiving tasks in multiple sclerosis scale. Multiple Sclerosis Journal 13:7, pages 929-938.
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Kenneth I. Pakenham, Jessica Chiu, Samantha Bursnall & Toni Cannon. (2016) Relations between Social Support, Appraisal and Coping and Both Positive and Negative Outcomes in Young Carers. Journal of Health Psychology 12:1, pages 89-102.
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