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Original

Perceptions of persons with multiple sclerosis on cognitive changes and their impact on daily life

& , PhD, OT (C), OTR/L
Pages 779-788 | Accepted 01 Sep 2005, Published online: 07 Jul 2009

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Holly Emery, Christine Padgett, Tamara Ownsworth & Cynthia A. Honan. (2023) “Oh it’s changed, it’s changed 10-fold”: understanding the experience of self-concept change from the perspectives of people with multiple sclerosis. Disability and Rehabilitation 45:20, pages 3262-3271.
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Christopher P. Dwyer, Megan H. Oglesby, Robert Joyce & Sinéad M. Hynes. (2023) A Cognitive Occupation-Based programme for people with MS: acceptability, feasibility, and experiences of people with multiple sclerosis. Disability and Rehabilitation 0:0, pages 1-11.
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Holly Emery, Christine Padgett, Tamara Ownsworth & Cynthia A. Honan. (2022) A systematic review of self-concept change in multiple sclerosis. Neuropsychological Rehabilitation 32:8, pages 1774-1813.
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Hannah Elwick, Laura Smith, Jacqueline R. Mhizha-Murira, Gogem Topcu, Paul Leighton, Avril Drummond, Nikos Evangelou & Roshan das Nair. (2022) Cognitive assessment in multiple sclerosis clinical care: A qualitative evaluation of stakeholder perceptions and preferences. Neuropsychological Rehabilitation 32:7, pages 1456-1474.
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Le-Sharn Parker, Gogem Topcu, Danielle De Boos & Roshan das Nair. (2021) The notion of “invisibility” in people’s experiences of the symptoms of multiple sclerosis: a systematic meta-synthesis. Disability and Rehabilitation 43:23, pages 3276-3290.
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Joshua D. McKeever, Maria T. Schultheis, Tiffanie Sim, Jessica Goykhman, Kristina Patrick, Dawn M. Ehde & Steven Paul Woods. (2019) Selective reminding of prospective memory in Multiple Sclerosis. Neuropsychological Rehabilitation 29:5, pages 675-690.
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H. Brissart, M. Leroy, E. Morele, C. Baumann, E. Spitz & M. Debouverie. (2013) Cognitive rehabilitation in Multiple sclerosis. Neurocase 19:6, pages 553-565.
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Alex Morley, Angela Tod, Mary Cramp & Sue Mawson. (2013) The meaning of spasticity to people with multiple sclerosis: What can health professionals learn?. Disability and Rehabilitation 35:15, pages 1284-1292.
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Michelle Ploughman, Mark W. Austin, Michelle Murdoch, Anne Kearney, John D. Fisk, Marshall Godwin & Mark Stefanelli. (2012) Factors influencing healthy aging with multiple sclerosis: a qualitative study. Disability and Rehabilitation 34:1, pages 26-33.
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Yael Goverover, FrankG. Hillary, Nancy Chiaravalloti, Juan Carlos Arango-Lasprilla & John DeLuca. (2009) A functional application of the spacing effect to improve learning and memory in persons with multiple sclerosis. Journal of Clinical and Experimental Neuropsychology 31:5, pages 513-522.
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Marita P. McCabe, Candice Roberts & Lucy Firth. (2008) Work and recreational changes among people with neurological illness and their caregivers. Disability and Rehabilitation 30:8, pages 600-610.
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Nadine Akbar & Marcia Finlayson. (2021) A mixed-methods study of cognitive performance in persons with multiple sclerosis: Association between neuropsychological test performance and interviews about daily cognitive functioning. Multiple Sclerosis and Related Disorders 52, pages 102911.
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Alexa K. Stuifbergen, Heather Becker, Francisco Perez, Janet Morrison, Adama Brown, Vicki Kullberg & Wenhui Zhang. (2018) Computer-assisted cognitive rehabilitation in persons with multiple sclerosis: Results of a multi-site randomized controlled trial with six month follow-up. Disability and Health Journal 11:3, pages 427-434.
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Mario Moscovici, Susan Wnuk, Allan Okrainec, Raed Hawa & Sanjeev Sockalingam. (2018) Psychosocial Predictors of Cognition in Bariatric Surgery. Psychosomatics.
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Ashley Henneghan, Alexa Stuifbergen, Heather Becker, Vicki Kullberg & Nicole Gloris. (2017) Perceived Cognitive Deficits in a Sample of Persons Living With Multiple Sclerosis. Journal of Neuroscience Nursing 49:5, pages 274-279.
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Preeyam K. Parikh, Angela K. Troyer, Andrea M. Maione & Kelly J. Murphy. (2016) The Impact of Memory Change on Daily Life in Normal Aging and Mild Cognitive Impairment. The Gerontologist 56:5, pages 877-885.
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Cara L. Brown, Melissa Colbeck, Danielle Fogarty & Sara Funk. (2016) Learning to live with multiple sclerosis cognitive impairment and how it influences readiness for group cognitive intervention. Disability and Health Journal 9:4, pages 638-645.
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Virginie Voltzenlogel, Alexandra Ernst, Jérôme de Sèze, David Brassat, Liliann Manning & Fabrice Berna. (2016) Giving meaning to illness: An investigation of self-defining memories in patients with relapsing-remitting multiple sclerosis patients. Consciousness and Cognition 45, pages 200-209.
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Micaela Mitolo, Annalena Venneri, Iain D. Wilkinson & Basil Sharrack. (2015) Cognitive rehabilitation in multiple sclerosis: A systematic review. Journal of the Neurological Sciences 354:1-2, pages 1-9.
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Shahnaz Shahrbanian, Pierre Duquette, Ayse Kuspinar & Nancy E. Mayo. (2014) Contribution of symptom clusters to multiple sclerosis consequences. Quality of Life Research 24:3, pages 617-629.
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Sally Hartley, Maggie McArthur, Michaela Coenen, Maria Cabello, Venusia Covelli, Joanna Roszczynska-Michta, Tuuli Pitkänen, Jerome Bickenbach & Alarcos Cieza. (2014) Narratives Reflecting the Lived Experiences of People with Brain Disorders: Common Psychosocial Difficulties and Determinants. PLoS ONE 9:5, pages e96890.
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Heather Becker, Alexa Stuifbergen, HwaYoung Lee & Vicki Kullberg. (2014) Reliability and Validity of PROMIS Cognitive Abilities and Cognitive Concerns Scales Among People with Multiple Sclerosis. International Journal of MS Care 16:1, pages 1-8.
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Hannah Rose Wilkinson & Roshan das Nair. (2013) The psychological impact of the unpredictability of multiple sclerosis: a qualitative literature meta-synthesis. British Journal of Neuroscience Nursing 9:4, pages 172-178.
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Alexa K Stuifbergen, Heather Becker, Frank Perez, Janet Morison, Vicki Kullberg & Ana Todd. (2012) A randomized controlled trial of a cognitive rehabilitation intervention for persons with multiple sclerosis. Clinical Rehabilitation 26:10, pages 882-893.
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Heather Becker, Alexa Stuifbergen & Janet Morrison. (2012) Promising New Approaches to Assess Cognitive Functioning in People with Multiple Sclerosis. International Journal of MS Care 14:2, pages 71-76.
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Alexa Stuifbergen, Heather Becker, Stephanie Morgan, Janet Morrison & Frank Perez. (2011) Home-Based Computer-Assisted Cognitive Training. International Journal of MS Care 13:4, pages 189-198.
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Flavia Mattioli, Fabio Bellomi, Chiara Stampatori, Giovanni Parrinello & Ruggero Capra. (2011) Depression, disability and cognitive impairment in multiple sclerosis: a cross sectional Italian study. Neurological Sciences 32:5, pages 825-832.
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Carolyn Baylor, Kathryn Yorkston, Alyssa Bamer, Deanna Britton & Dagmar Amtmann. (2010) Variables Associated With Communicative Participation in People With Multiple Sclerosis: A Regression Analysis. American Journal of Speech-Language Pathology 19:2, pages 143-153.
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H. Brissart, M. Leroy & M. Debouverie. (2010) Première évaluation d’un programme de remédiation cognitive chez des patients atteints de sclérose en plaques : PROCOG-SEP. Revue Neurologique 166:4, pages 406-411.
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Alex J. Mitchell, Steven Kemp, Julián Benito-León & Markus Reuber. (2014) The influence of cognitive impairment on health-related quality of life in neurological disease. Acta Neuropsychiatrica 22:1, pages 2-13.
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E. Shevil & M. Finlayson. (2009) Pilot study of a cognitive intervention program for persons with multiple sclerosis. Health Education Research 25:1, pages 41-53.
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Eynat Shevil & Marcia Finlayson. (2009) Process evaluation of a self-management cognitive program for persons with multiple sclerosis. Patient Education and Counseling 76:1, pages 77-83.
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Merrill Turpin, Christine Leech & Louisa Hackenberg. (2008) Living with Parental Multiple Sclerosis: Children's Experiences and Clinical Implications. Canadian Journal of Occupational Therapy 75:3, pages 149-156.
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