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Ingrid Landgraff Östlie, Inger Johansson & Anders Möller. (2009) Struggle and adjustment to an insecure everyday life and an unpredictable life course. Disability and Rehabilitation 31:8, pages 666-674.
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Didem YÜKSEL YILMAZ. (2023) Belirsizlik Kuramına Göre Çocukluktan Gençliğe Multiple Skleroz Hastası Olmak: Olgu SunumuHaving Multiple Sclerosis from Childhood to Youth According to Uncertainty Theory: A Case Report. Celal Bayar Üniversitesi Sağlık Bilimleri Enstitüsü Dergisi 10:1, pages 67-70.
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Katherine South, Christine DeForge, Carol Anne Celona, Arlene Smaldone & Maureen George. (2023) Navigating liminal spaces together: a qualitative metasynthesis of youth and parent experiences of healthcare transition. Journal of Transition Medicine 5:1.
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Didem Yüksel Yılmaz, Figen Yardımcı, Firdevs Erdemir & Rana Karabudak. (2022) Defining the experiences of adolescent patients with multiple sclerosis in transition from pediatric care to adult care. Multiple Sclerosis and Related Disorders 68, pages 104123.
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Sirinthip Kittivisuit, Butsabong Lerkvaleekul, Sirisucha Soponkanaporn, Pintip Ngamjanyaporn & Soamarat Vilaiyuk. (2021) Assessment of transition readiness in adolescents in Thailand with rheumatic diseases: a cross-sectional study. Pediatric Rheumatology 19:1.
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Ihsane Amajjar, Romana Malik, Marieke van Wier, Rob Smeets & S John Ham. (2021) Transitional care of adolescents with Multiple Osteochondromas: a convergent mixed-method study ‘Patients’, parents’ and healthcare providers’ perspectives on the transfer process’. BMJ Open 11:7, pages e049418.
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Erin K. Laverty, Shireen M. Noble, Antonella Pucci & Rachel E. D. MacLean. (2021) Let’s talk about sexual health education: Youth perspectives on their learning experiences in Canada. The Canadian Journal of Human Sexuality 30:1, pages 26-38.
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Ayano Kelly, Kathleen Tymms, Kieran Fallon, Daniel Sumpton, Peter Tugwell, David Tunnicliffe & Allison Tong. (2021) Qualitative Research in Rheumatology: An Overview of Methods and Contributions to Practice and Policy. The Journal of Rheumatology 48:1, pages 6-15.
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Ivy Jiang, Gabor Major, Davinder Singh-Grewal, Claris Teng, Ayano Kelly, Fiona Niddrie, Jeffrey Chaitow, Sean O’Neill, Geraldine Hassett, Arvin Damodaran, Sarah Bernays, Karine Manera, Allison Tong & David J Tunnicliffe. (2021) Patient and parent perspectives on transition from paediatric to adult healthcare in rheumatic diseases: an interview study. BMJ Open 11:1, pages e039670.
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Ayano Kelly, Fiona Niddrie, David J Tunnicliffe, Andrea Matus Gonzalez, Camilla Hanson, Ivy Jiang, Gabor Major, Davinder Singh-Grewal, Kathleen Tymms & Allison Tong. (2020) Patients’ attitudes and experiences of transition from paediatric to adult healthcare in rheumatology: a qualitative systematic review. Rheumatology 59:12, pages 3737-3750.
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Jessica Wright, Laura Elwell, Janet McDonagh, Deirdre Kelly, Patricia McClean, James Ferguson & Jo Wray. (2019) Healthcare transition in pediatric liver transplantation: The perspectives of pediatric and adult healthcare professionals. Pediatric Transplantation 23:6.
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Line Raunsbaek Knudsen, Annette de Thurah & Merete Bjerrum. (2018) Transition from child to adult care in an outpatient clinic for adolescents with juvenile idiopathic arthritis: An inductive qualitative study. Nursing Open 5:4, pages 546-554.
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Helen E Foster, Kirsten Minden, Daniel Clemente, Leticia Leon, Janet E McDonagh, Sylvia Kamphuis, Karin Berggren, Philomine van Pelt, Carine Wouters, Jennifer Waite-Jones, Rachel Tattersall, Ruth Wyllie, Simon R Stones, Alberto Martini, Tamas Constantin, Susanne Schalm, Berna Fidanci, Burak Erer, Erkan Dermikaya, Seza Ozen & Loreto Carmona. (2017) EULAR/PReS standards and recommendations for the transitional care of young people with juvenile-onset rheumatic diseases. Annals of the Rheumatic Diseases 76:4, pages 639-646.
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Wendy M. Nehring, Cecily L. Betz & Marie L. Lobo. (2015) Uncharted Territory: Systematic Review of Providers' Roles, Understanding, and Views Pertaining to Health Care Transition. Journal of Pediatric Nursing 30:5, pages 732-747.
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Linda Dean & Sharon Black. (2015) Exploring the experiences of young people nursed on adult wards. British Journal of Nursing 24:4, pages 229-236.
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Liv Fegran, Elisabeth O.C. Hall, Lisbeth Uhrenfeldt, Hanne Aagaard & Mette Spliid Ludvigsen. (2014) Adolescents’ and young adults’ transition experiences when transferring from paediatric to adult care: A qualitative metasynthesis. International Journal of Nursing Studies 51:1, pages 123-135.
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Cecily L. Betz, Marie L. Lobo, Wendy M. Nehring & Kim Bui. (2013) Voices not heard: A systematic review of adolescents' and emerging adults' perspectives of health care transition. Nursing Outlook 61:5, pages 311-336.
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Coralie E Fuchs, Stefan M van Geelen, Rolf van Geel, Gerben Sinnema, Elise M van de Putte, Hubert JM Hermans & Wietse Kuis. (2012) Health and identity: Self-positioning in adolescent chronic fatigue syndrome and juvenile idiopathic arthritis. Clinical Child Psychology and Psychiatry 18:3, pages 383-397.
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Deborah Hilderson, Leen Eyckmans, Kristien Van der Elst, Rene Westhovens, Carine Wouters & Philip Moons. (2012) Transfer from paediatric rheumatology to the adult rheumatology setting: experiences and expectations of young adults with juvenile idiopathic arthritis. Clinical Rheumatology 32:5, pages 575-583.
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A. L. van Staa, S. Jedeloo, J. van Meeteren & J. M. Latour. (2011) Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers. Child: Care, Health and Development 37:6, pages 821-832.
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Aimee Hersh, Emily von Scheven & Ed Yelin. (2011) Adult outcomes of childhood-onset rheumatic diseases. Nature Reviews Rheumatology 7:5, pages 290-295.
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Tziona Lugasi, Marie Achille & Moire Stevenson. (2011) Patients' Perspective on Factors That Facilitate Transition From Child-centered to Adult-centered Health Care: A Theory Integrated Metasummary of Quantitative and Qualitative Studies. Journal of Adolescent Health 48:5, pages 429-440.
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Philip Moons, Sara Pinxten, Davy Dedroog, Kristien Van Deyk, Marc Gewillig, Deborah Hilderson & Werner Budts. (2009) Expectations and Experiences of Adolescents with Congenital Heart Disease on Being Transferred from Pediatric Cardiology to an Adult Congenital Heart Disease Program. Journal of Adolescent Health 44:4, pages 316-322.
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