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Research Papers

The experience of transitioning from relapsing remitting to secondary progressive multiple sclerosis: views of patients and health professionals

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Pages 1821-1828 | Received 09 Jan 2016, Accepted 07 Jul 2016, Published online: 16 Aug 2016

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Elisabeth G Celius, Heidi Thompson, Maija Pontaga, Dawn Langdon, Alice Laroni, Stanca Potra, Trishna Bharadia, David Yeandle, Jane Shanahan, Pieter van Galen, Nektaria Alexandri & Jürg Kesselring. (2021) Disease Progression in Multiple Sclerosis: A Literature Review Exploring Patient Perspectives. Patient Preference and Adherence 15, pages 15-27.
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Christopher Meek, Gogem Topcu, Nima Moghaddam & Roshan das Nair. (2021) Experiences of adjustment to secondary progressive multiple sclerosis: a meta-ethnographic systematic review. Disability and Rehabilitation 43:22, pages 3135-3146.
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Articles from other publishers (18)

A Gómez-López, J Benito-León, A Labiano-Fontcuberta, S Moreno-García & P Salgado-Cámara. (2023) Impact of a specific consultation for patients with progressive forms of multiple sclerosis on the response to their unmet care needs: a cross-sectional study. Multiple Sclerosis and Related Disorders 72, pages 104609.
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Robert Simpson, Stephanie Posa, Tania Bruno, Sharon Simpson, Marina B. Wasilewski, Lawrence R. Robinson, Sarah Munce, Mark Bayley & Anthony Feinstein. (2022) Conceptualization, use, and outcomes associated with compassion in the care of people with multiple sclerosis: a scoping review. Journal of Neurology 270:3, pages 1300-1322.
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Charee M. Thompson, Manuel D. Pulido, Sara Babu, Nicole Zenzola & Chungyi Chiu. (2022) Communication between persons with multiple sclerosis and their health care providers: A scoping review. Patient Education and Counseling 105:12, pages 3341-3368.
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A Bayas, K Schuh & M Christ. (2022) Self-assessment of people with relapsing-remitting and progressive multiple sclerosis towards burden of disease, progression, and treatment utilization—Results of a large-scale cross-sectional online survey (MS Perspectives). Multiple Sclerosis and Related Disorders 68, pages 104166.
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Gamze EKİCİ, Ege TEMİZKAN & Elif PEKŞEN. (2021) Multiple Sklerozlu Bireylerde Enerji Koruma ve Zaman Yönetimi Eğitiminin Yorgunluğa ve Okupasyonel Performansa EtkisiEffects of Energy Conservation and Time Management Training on Fatigue and Occupational Performance in Individuals with Multiple Sclerosis. Ergoterapi ve Rehabilitasyon Dergisi 9:3, pages 63-70.
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Sandy Lewis, Sibyl E. Wray, Emily Evans, Carla Romano, Lauren Bartolome, Wendy Su, Roshani Shah & Patricia A. Russo. (2021) Patients’ Experiences in Transitioning to Secondary Progressive Multiple Sclerosis: Qualitative Interviews. Neurology and Therapy 10:2, pages 887-904.
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Ya. V. Vlasov, N. G. Polyarnaya & A. N. Boyko. (2021) Comparison of medical and social characteristics and quality of life of patients with primary- and secondary-progressive multiple sclerosis. Neurology, Neuropsychiatry, Psychosomatics 13:1S, pages 39-44.
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Hernan Inojosa, Katja Akgün, Katrin Haacke & Tjalf Ziemssen. (2021) MSProDiscuss – Entwicklung eines digitalen Tools zur standardisierten Patientenanamnese, um Progredienz bei Multipler Sklerose zu identifizieren. Fortschritte der Neurologie · Psychiatrie 89:07/08, pages 374-381.
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E. Alvarez, K.V. Nair, M. Gorritz, L. Bartolome, H. Maloney, Y. Ding, T. Golan, R.L. Wade, R. Kumar, W. Su, R. Shah & P. Russo. (2021) Identification and diagnosis of Secondary Progressive Multiple Sclerosis during the clinical encounter: Results from a physician survey. Multiple Sclerosis and Related Disorders 50, pages 102858.
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Alexey Boyko, Christina Therapontos, Dana Horakova, Jarmila Szilasiová, Jolanta Kalniņa, Julia Kolontareva, Katrin Gross-Paju, Krzysztof Selmaj, Ieva Sereike, Ron Milo, Tereza Gabelić & Uroš Rot. (2021) Approaches and challenges in the diagnosis and management of secondary progressive multiple sclerosis: A Central Eastern European perspective from healthcare professionals. Multiple Sclerosis and Related Disorders 50, pages 102778.
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Hernan Inojosa, Undine Proschmann, Katja Akgün & Tjalf Ziemssen. (2019) A focus on secondary progressive multiple sclerosis (SPMS): challenges in diagnosis and definition. Journal of Neurology 268:4, pages 1210-1221.
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Patrick Vermersch, Jane Shanahan, Dawn Langdon, David Yeandle, Nektaria Alexandri & Sven Schippling. (2019) Knowledge Is Power, but Is Ignorance Bliss? Optimising Conversations About Disease Progression in Multiple Sclerosis. Neurology and Therapy 9:1, pages 1-10.
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Chloe Tolley, Daniela Piani-Meier, Sarah Bentley, Bryan Bennett, Eddie Jones, James Pike, Frank Dahlke, Davorka Tomic & Tjalf Ziemssen. (2020) A Novel, Integrative Approach for Evaluating Progression in Multiple Sclerosis: Development of a Scoring Algorithm. JMIR Medical Informatics 8:4, pages e17592.
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Ambra Mara Giovannetti, Erika Pietrolongo, Claudia Borreani, Andrea Giordano, Insa Schiffmann, Anna Barabasch, Christoph Heesen & Alessandra Solari. (2020) Conversion to secondary progressive multiple sclerosis: Multistakeholder experiences and needs in Italy. PLOS ONE 15:2, pages e0228587.
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Jiwon Oh, Katayoun Alikhani, Tania Bruno, Virginia Devonshire, Paul S Giacomini, Fabrizio Giuliani, Hamid R Nakhaipour, Robyn Schecter & Catherine Larochelle. (2019) Diagnosis and management of secondary-progressive multiple sclerosis: time for change. Neurodegenerative Disease Management 9:6, pages 301-317.
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Jeri Burtchell, Kristen Fetty, Katelyn Miller, Kit Minden & Daniel Kantor. (2019) Two Sides to Every Story: Perspectives from Four Patients and a Healthcare Professional on Multiple Sclerosis Disease Progression. Neurology and Therapy 8:2, pages 185-205.
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Alessandra Solari, Ambra Mara Giovannetti, Andrea Giordano, Carla Tortorella, Valentina Torri Clerici, Giampaolo Brichetto, Franco Granella, Alessandra Lugaresi, Francesco Patti, Marco Salvetti, Ilaria Pesci, Eugenio Pucci, Diego Centonze, Maura Chiara Danni, Simona Bonavita, Diana Ferraro, Antonio Gallo, Alberto Gajofatto, Viviana Nociti, Luigi Grimaldi, Monica Grobberio, Roberta Lanzillo, Rachele Di Giovanni, Silvia Gregori, Alessia Manni, Erika Pietrolongo, Sarah Bertagnoli, Marco Ronzoni, Laura Compagnucci, Roberta Fantozzi, Beatrice Allegri, Sebastiano Arena, Maria Chiara Buscarinu, Loredana Sabattini, Maria Esmeralda Quartuccio, Elena Tsantes, Paolo Confaloneri, Andrea Tacchino, Insa Schiffmann, Anne Christin Rahn, Ingo Kleiter, Michele Messmer Uccelli, Anna Barabasch, Christoph Heesen & the ManTra Project. (2019) Conversion to Secondary Progressive Multiple Sclerosis: Patient Awareness and Needs. Results From an Online Survey in Italy and Germany. Frontiers in Neurology 10.
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Angeliki Bogosian, Myfanwy Morgan & Rona Moss-Morris. (2019) Multiple challenges for people after transitioning to secondary progressive multiple sclerosis: a qualitative study. BMJ Open 9:3, pages e026421.
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