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Research Papers

Building the repertoire of measures of walking in Rett syndrome

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Pages 1926-1931 | Received 07 Jan 2016, Accepted 09 Jul 2016, Published online: 24 Aug 2016

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Alberto Romano, Gabriella Di Rosa, Adriana Tisano, Rosa Angela Fabio & Meir Lotan. (2022) Effects of a remotely supervised motor rehabilitation program for individuals with Rett syndrome at home. Disability and Rehabilitation 44:20, pages 5898-5908.
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David R. Young, Bernhard Suter, Jackson T. Levine, Daniel G. Glaze & Charles S. Layne. (2022) Characteristic behaviors associated with gait of individuals with Rett syndrome. Disability and Rehabilitation 44:8, pages 1508-1515.
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Vasileios C. Skoutelis, Zacharias Dimitriadis, Efstratia Kalamvoki, Stamatis Vrettos, Vasileios Kontogeorgakos, Argirios Dinopoulos, Panayiotis Papagelopoulos & Anastasios Kanellopoulos. (2022) Translation, reliability and validity of the Greek functional mobility scale (FMS) for children with cerebral palsy. Disability and Rehabilitation 44:8, pages 1436-1442.
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Alberto Romano, Tindara Caprì, Martina Semino, Ilaria Bizzego, Gabriella Di Rosa & Rosa Angela Fabio. (2020) Gross Motor, Physical Activity and Musculoskeletal Disorder Evaluation Tools for Rett Syndrome: A Systematic Review. Developmental Neurorehabilitation 23:8, pages 485-501.
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Michelle Stahlhut, Jenny Downs, Mette Aadahl, Helen Leonard, Anne-Marie Bisgaard & Eva Nordmark. (2019) Patterns of sedentary time and ambulatory physical activity in a Danish population of girls and women with Rett syndrome. Disability and Rehabilitation 41:2, pages 133-141.
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Articles from other publishers (13)

Meir Lotan, Jenny Downs, Michelle Stahlhut & Alberto Romano. (2023) Evaluation Tools Developed for Rett Syndrome. Diagnostics 13:10, pages 1708.
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Karen Verheyen, Lore Wyers, Eugénie Lambrecht, An‐Sofie Schoonjans, Berten Ceulemans, Patricia van de Walle & Ann Hallemans. (2023) Functional mobility in children and young adults with Dravet syndrome. Developmental Medicine & Child Neurology.
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Alberto Romano, Elena Ippolito, Martina Favetta, Meir Lotan & Daniel Sender Moran. (2022) Individualized Remotely Supervised Motor Activity Programs Promote Rehabilitation Goal Achievement, Motor Functioning, and Physical Activity of People with Rett Syndrome—A Single-Cohort Study. International Journal of Environmental Research and Public Health 20:1, pages 659.
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R.P. Romero-Galisteo, M. González-Sánchez, L. Costa, R. Brandão, C. Ramalhete, C. Leão & L. Jacobsohn. (2022) Outcome measurement instruments in Rett syndrome: A systematic review. European Journal of Paediatric Neurology 39, pages 79-87.
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Martin Helcman & Karel Šmejkal. (2021) Biological activity of Cannabis compounds: a modern approach to the therapy of multiple diseases. Phytochemistry Reviews 21:2, pages 429-470.
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Jeffrey L. Neul, Alan K. Percy, Timothy A. Benke, Elizabeth M. Berry-Kravis, Daniel G. Glaze, Sarika U. Peters, Nancy E. Jones & James M. Youakim. (2022) Design and outcome measures of LAVENDER, a phase 3 study of trofinetide for Rett syndrome. Contemporary Clinical Trials 114, pages 106704.
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Daniele Vigli, Livia Cosentino, Mattia Pellas & Bianca De Filippis. (2021) Chronic Treatment with Cannabidiolic Acid (CBDA) Reduces Thermal Pain Sensitivity in Male Mice and Rescues the Hyperalgesia in a Mouse Model of Rett Syndrome. Neuroscience 453, pages 113-123.
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Wei Hou & Daniel C. Tarquinio. (2020) Reply to Oberman et al.. Pediatric Neurology 111, pages 88.
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Colleen Pawliuk, Kim Widger, Tammie Dewan, Gina Brander, Helen L Brown, Anne-Mette Hermansen, Marie-Claude Grégoire, Rose Steele & Harold (Hal) Siden. (2020) Scoping review of symptoms in children with rare, progressive, life-threatening disorders. BMJ Supportive & Palliative Care 10:1, pages 91-104.
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Michelle Stahlhut, Jenny Downs, Kingsley Wong, Anne-Marie Bisgaard & Eva Nordmark. (2020) Feasibility and Effectiveness of an Individualized 12-Week “Uptime” Participation (U-PART) Intervention in Girls and Women With Rett Syndrome. Physical Therapy 100:1, pages 168-179.
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Michelle Stahlhut, Bente Appel Esbensen, Jane Lunding Larsen, Anne-Marie Bisgaard, Jenny Downs & Eva Nordmark. (2018) Facilitators and Barriers of Participation in “Uptime” Activities in Girls and Women With Rett Syndrome: Perspectives From Parents and Professionals. Qualitative Health Research 29:4, pages 609-619.
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Daniele Vigli, Livia Cosentino, Carla Raggi, Giovanni Laviola, Marie Woolley-Roberts & Bianca De Filippis. (2018) Chronic treatment with the phytocannabinoid Cannabidivarin (CBDV) rescues behavioural alterations and brain atrophy in a mouse model of Rett syndrome. Neuropharmacology 140, pages 121-129.
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Michelle Stahlhut, Kylie Hill, Anne-Marie Bisgaard, Anne Kjersgaard Jensen, Michaela Andersen, Helen Leonard & Jenny Downs. (2017) Measurement of Sedentary Behaviors or “Downtime” in Rett Syndrome. Journal of Child Neurology 32:12, pages 1009-1013.
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