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Original Article

“Understanding my ALS”. Experiences and reflections of persons with amyotrophic lateral sclerosis and relatives on participation in peer group rehabilitation

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Pages 1410-1418 | Received 22 Aug 2017, Accepted 15 Jan 2018, Published online: 26 Jan 2018

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Read on this site (3)

C. Paynter, S. Mathers, H. Gregory, A. P. Vogel & M. Cruice. (2022) How people living with motor neurone disease and their carers experience healthcare decision making: a qualitative exploration. Disability and Rehabilitation 44:13, pages 3095-3103.
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Hikari Ando, Rosanna Cousins & Carolyn A. Young. (2022) Flexibility to manage and enhance quality of life among people with motor neurone disease. Disability and Rehabilitation 44:12, pages 2752-2762.
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Articles from other publishers (11)

Charlotte Handberg & Ulla Werlauff. (2023) Cross-sectoral collaboration among hospital professionals on rehabilitation for patients with neuromuscular diseases. Neurodegenerative Disease Management 13:3, pages 161-175.
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Lene Klem Olesen, Karen la Cour, Sally Thorne, Heidi With & Charlotte Handberg. (2023) Perceived benefits from peer‐support among family caregivers of people with amyotrophic lateral sclerosis and cognitive impairments in a palliative rehabilitation blended online learning programme. Journal of Evaluation in Clinical Practice 29:4, pages 602-613.
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Charlotte Handberg, Lene Seibæk, Sally Thorne & Kirsten Beedholm. (2023) Reflections on the Complexity of Normalcy in Nursing and Health Care. Advances in Nursing Science 46:2, pages 210-218.
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Filipe Gonçalves, Margarida I. Teixeira & Bruno Magalhães. (2022) The role of spirituality in people with amyotrophic lateral sclerosis and their caregivers: Scoping review. Palliative and Supportive Care, pages 1-11.
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Lene Klem Olesen, Karen la Cour, Heidi With, Annette Faber Mahoney & Charlotte Handberg. (2022) A cross-sectional evaluation of acceptability of an online palliative rehabilitation program for family caregivers of people with amyotrophic lateral sclerosis and cognitive and behavioral impairments. BMC Health Services Research 22:1.
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Camille Paynter, Susan Mathers, Heidi Gregory, Adam P. Vogel & Madeline Cruice. (2022) The impact of communication on healthcare involvement for people living with motor neurone disease and their carers: A longitudinal qualitative study. International Journal of Language & Communication Disorders 57:6, pages 1318-1333.
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Ling Lian, Minying Zheng, Ruojie He, Jianing Lin, Weineng Chen, Zhong Pei & Xiaoli Yao. (2022) Analysing the influencing factors on caregivers’ burden among amyotrophic lateral sclerosis patients in China: a cross-sectional study based on data mining. BMJ Open 12:9, pages e066402.
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Camille Paynter, Susan Mathers, Heidi Gregory, Adam P. Vogel & Madeline Cruice. (2022) Using the Concept of Health Literacy to Understand How People Living with Motor Neurone Disease and Carers Engage in Healthcare: A Longitudinal Qualitative Study. Healthcare 10:8, pages 1371.
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Vittoria Anita Bilenchi, Paolo Banfi, Francesco Pagnini & Eleonora Volpato. (2022) Psychoeducational groups for people with Amyotrophic Lateral Sclerosis and their caregiver: a qualitative study. Neurological Sciences 43:7, pages 4239-4255.
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Tine Gamskjaer, Ulla Werlauff & Charlotte Handberg. (2021) Investigating job satisfaction in palliative rehabilitation: Reflections and perspectives of health professionals working with amyotrophic lateral sclerosis. Journal of Evaluation in Clinical Practice 28:1, pages 108-119.
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Angeliki Bogosian, Lorna Rixon & Catherine S. Hurt. (2020) Prioritising target non-pharmacological interventions for research in Parkinson’s disease: achieving consensus from key stakeholders. Research Involvement and Engagement 6:1.
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