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Disability and Rehabilitation Volume 41, 2019 - Issue 16
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Original Article

“Everyone sees you sitting there struggling with your food”: experiences of adolescents and young adults with cerebral palsy

Lianne RemijnHAN University of Applied Sciences, Institute of Health Studies, Nijmegen, The Netherlands; ;Radboud University Medical Center, Radboud Institute for Health Sciences, IQ healthcare, Nijmegen, The Netherlands; Correspondence[email protected]
,
Lenie van den Engel-HoekDonders Centre for Neuroscience, Department of Rehabilitation, Radboud University Medical Center, Nijmegen, The Netherlands
,
Ton SatinkHAN University of Applied Sciences, Institute of Health Studies, Nijmegen, The Netherlands;
,
Bert J. M. de SwartHAN University of Applied Sciences, Institute of Health Studies, Nijmegen, The Netherlands; ;Donders Centre for Neuroscience, Department of Rehabilitation, Radboud University Medical Center, Nijmegen, The Netherlands
&
Maria W. G. Nijhuis-van der SandenRadboud University Medical Center, Radboud Institute for Health Sciences, IQ healthcare, Nijmegen, The Netherlands; ;Donders Centre for Neuroscience, Department of Rehabilitation, Radboud University Medical Center, Nijmegen, The NetherlandsORCID Iconhttp://orcid.org/0000-0003-2637-6877
ORCID Icon
Pages 1898-1905 | Received 22 Feb 2017, Accepted 09 Mar 2018, Published online: 21 Mar 2018

Citations (13)

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Ulrika Mårtensson, Mats Cederlund, Margaretha Jenholt Nolbris, Karin Mellgren, Helle Wijk & Stefan Nilsson. (2021) Experiences before and after nasogastric and gastrostomy tube insertion with emphasis on mealtimes: a case study of an adolescent with cerebral palsy. International Journal of Qualitative Studies on Health and Well-being 16:1.
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Articles from other publishers (12)

Fatih Özder, Fatma Ilgaz & Selen Serel Arslan. (2023) Is Chewing Performance Related to Dietary Intake in Children with Cerebral Palsy?. Dysphagia.
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Sakinah Kamal, Sazlina Kamaralzaman, Shobha Sharma, Nurul Hazirah Jaafar, Phei Ming Chern, Nurul Izzaty Hassan, Hasnah Toran, Noor Akmal Shareela Ismail, Ghazali Yusri & Nur Hana Hamzaid. (2022) A Review of Food Texture Modification among Individuals with Cerebral Palsy: The Challenges among Cerebral Palsy Families. Nutrients 14:24, pages 5241.
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Anita McAllister, Eva Sjöstrand & Elisabet Rodby‐Bousquet. (2022) Eating and drinking ability and nutritional status in adults with cerebral palsy. Developmental Medicine & Child Neurology 64:8, pages 1017-1024.
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Rebecca Smith, Lucy Bryant & Bronwyn Hemsley. (2022) Dysphagia and Quality of Life, Participation, and Inclusion Experiences and Outcomes for Adults and Children With Dysphagia: A Scoping Review. Perspectives of the ASHA Special Interest Groups 7:1, pages 181-196.
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Yanran Zhang, Runze Li, Xiuxin Miao, Ling Jie Cheng & Ying Lau. (2022) Virtual motor training to improve the activities of daily living, hand grip, and gross motor function among children with cerebral palsy: Meta-regression analysis. Gait & Posture 91, pages 297-305.
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Surajit Bhattacharjee. (2021) A Review on the Types, Risk Factors, Diagnosis, and Treatment of Cerebral Palsy. Indian Journal of Physical Medicine and Rehabilitation 31:4, pages 96-100.
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Meagan C Brown, Christina M Marciniak, Ariane M Garrett & Deborah J Gaebler‐Spira. (2021) Diet quality in adults with cerebral palsy: a modifiable risk factor for cardiovascular disease prevention. Developmental Medicine & Child Neurology 63:10, pages 1221-1228.
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Sung Eun Hyun, You Gyoung Yi & Hyung-Ik Shin. (2020) Reliability and Validity of the Eating and Drinking Ability Classification System in Adults with Cerebral Palsy. Dysphagia 36:3, pages 351-361.
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Mintaze KEREM GÜNEL, Cemil ÖZAL, Kübra SEYHAN, Selen SEREL ARSLAN, Numan DEMİR & Ayşe KARADUMAN. (2020) YEME VE İÇME BECERİLERİ SINIFLANDIRMA SİSTEMİNİN TÜRKÇE VERSİYONU: SEREBRAL PALSİLİ ÇOCUKLARDA DEĞERLENDİRİCİ-İÇİ GÜVENİRLİĞİ VE DİĞER FONKSİYONEL SINIFLANDIRMA SİSTEMLERİ İLE İLİŞKİSİTHE TURKISH VERSION OF THE EATING AND DRINKING ABILITY CLASSIFICATION SYSTEM: INTRARATER RELIABILITY AND THE RELATIONSHIPS WITH THE OTHER FUNCTIONAL CLASSIFICATION SYSTEMS IN CHILDREN WITH CEREBRAL PALSY. Türk Fizyoterapi ve Rehabilitasyon Dergisi 31:3, pages 218-224.
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Mieke Kooi-van Es, Corrie E. Erasmus, Bert J.M. de Swart, Nicoline B.M. Voet, Philip J. van der Wees, Imelda J.M. de Groot & Lenie van den Engel-Hoek. (2020) Dysphagia and Dysarthria in Children with Neuromuscular Diseases, a Prevalence Study. Journal of Neuromuscular Diseases 7:3, pages 287-295.
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Renée Speyer, Reinie Cordier, Jae‐Hyun Kim, Naomi Cocks, Emilia Michou & Sarah Wilkes‐Gillan. (2019) Prevalence of drooling, swallowing, and feeding problems in cerebral palsy across the lifespan: a systematic review and meta‐analyses. Developmental Medicine & Child Neurology 61:11, pages 1249-1258.
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Diane Sellers. (2018) Eating and Drinking Ability Classification System. Dysphagia 34:2, pages 279-280.
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