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Disability and Rehabilitation Volume 42, 2020 - Issue 16
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Research Papers

Psychological well-being in adults with spinal muscular atrophy: the contribution of participation and psychological needs

Maarten J. FischerDepartment of Rehabilitation, Physical Therapy Science & Sports, Brain Center Rudolf Magnus, University Medical Centre Utrecht, Utrecht, The Netherlands; Correspondence[email protected]
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Fay-Lynn AsselmanDepartment of Neurology, Brain Center Rudolf Magnus, University Medical Centre Utrecht, Utrecht, The NetherlandsView further author information
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Esther T. Kruitwagen-van ReenenDepartment of Rehabilitation, Physical Therapy Science & Sports, Brain Center Rudolf Magnus, University Medical Centre Utrecht, Utrecht, The Netherlands; View further author information
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Marjolein VerhoefDepartment of Rehabilitation, Physical Therapy Science & Sports, Brain Center Rudolf Magnus, University Medical Centre Utrecht, Utrecht, The Netherlands; View further author information
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Renske I. WadmanDepartment of Neurology, Brain Center Rudolf Magnus, University Medical Centre Utrecht, Utrecht, The NetherlandsView further author information
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Johanna M. A. Visser-MeilyDepartment of Rehabilitation, Physical Therapy Science & Sports, Brain Center Rudolf Magnus, University Medical Centre Utrecht, Utrecht, The Netherlands; View further author information
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W. Ludo van der PolDepartment of Neurology, Brain Center Rudolf Magnus, University Medical Centre Utrecht, Utrecht, The NetherlandsView further author information
&
Carin D. SchröderDepartment of Rehabilitation, Physical Therapy Science & Sports, Brain Center Rudolf Magnus, University Medical Centre Utrecht, Utrecht, The Netherlands; View further author information
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Pages 2262-2270 | Received 07 Jun 2018, Accepted 02 Dec 2018, Published online: 29 Jan 2019

Citations (7)

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Read on this site (1)

I. L. B. Oude Lansink, J. W. Gorter, W. L. van der Pol, B. Bartels & A. Beelen. (2023) Impact of contractures on daily functioning in adolescents with spinal muscular atrophy: a qualitative study. Disability and Rehabilitation 0:0, pages 1-7.
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Articles from other publishers (6)

Richard Huan Xu, Ming Lu, Shuyang Zhang & Dong Dong. (2022) EQ-5D and SF-6D health utility scores in patients with spinal and bulbar muscular atrophy. The European Journal of Health Economics.
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Maggie C. Walter, Claudia Chiriboga, Tina Duong, Nathalie Goemans, Anna Mayhew, Laëtitia Ouillade, Maryam Oskoui, Ros Quinlivan, Juan F. Vázquez-Costa, John Vissing & Laurent Servais. (2021) Improving Care and Empowering Adults Living with SMA: A Call to Action in the New Treatment Era. Journal of Neuromuscular Diseases 8:4, pages 543-551.
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M. J. Fischer, M. Ketelaar, P. J. van der Veere, M. Verhoef, R. I. Wadman, J. M. A. Visser-Meily, W. L. van der Pol & C. D. Schröder. (2020) Illness Perceptions in Pediatric Spinal Muscular Atrophy: Agreement between Children and their Parents, and its Association with Quality of Life. Journal of Developmental and Physical Disabilities 33:2, pages 297-310.
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Hamish W. Y. Wan, Kate A. Carey, Arlene D’Silva, Steve Vucic, Matthew C. Kiernan, Nadine A. Kasparian & Michelle A. Farrar. (2020) Health, wellbeing and lived experiences of adults with SMA: a scoping systematic review. Orphanet Journal of Rare Diseases 15:1.
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Sonia Messina, Anna Lia Frongia, Laura Antonaci, Maria Carmela Pera, Giorgia Coratti, Marika Pane, Amy Pasternak, Matthew Civitello, Jacqueline Montes, Anna Mayhew, Richard Finkel, Francesco Muntoni & Eugenio Mercuri. (2019) A critical review of patient and parent caregiver oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in spinal muscular atrophy. Neuromuscular Disorders 29:12, pages 940-950.
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René Günther, Claudia Diana Wurster, Isabell Cordts, Jan Christoph Koch, Christoph Kamm, Daniel Petzold, Elisa Aust, Marcus Deschauer, Paul Lingor, Albert Christian Ludolph & Andreas Hermann. (2019) Patient-Reported Prevalence of Non-motor Symptoms Is Low in Adult Patients Suffering From 5q Spinal Muscular Atrophy. Frontiers in Neurology 10.
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