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Research Papers

“A non-person to the rest of the world”: experiences of social isolation amongst severely impaired people with multiple sclerosis

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Pages 2295-2303 | Received 04 Sep 2018, Accepted 05 Dec 2018, Published online: 18 Jan 2019

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Daniel Ståhl, Ylva Bjereld & Anna Dunér. (2022) Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability. Journal of Multidisciplinary Healthcare 15, pages 375-390.
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Yumi Kim, Tapan Mehta, Tracy Tracy, Hui-Ju Young, Dorothy W. Pekmezi, James H. Rimmer & Soumya J. Niranjan. (2023) A qualitative evaluation of a clinic versus home exercise rehabilitation program for adults with multiple sclerosis: The tele-exercise and multiple sclerosis (TEAMS) study. Disability and Health Journal 16:3, pages 101437.
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María Bárbara Eizaguirre, Cecilia Yastremiz, Natalia Ciufia, María Sol Roman, Ricardo Alonso, Berenice Anabel Silva, Orlando Garcea, Fernando Cáceres & Sandra Vanotti. (2023) Relevance and Impact of Social Support on Quality of Life for Persons With Multiple Sclerosis. International Journal of MS Care 25:3, pages 99-103.
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Amy Gulledge, Sarah Miller, Susan D. Newman, Martina Mueller, Lillian Christon & Patrick A. Flume. (2023) Social Isolation Among Adults Living With Cystic Fibrosis in the United States: A Single-Center Experience. The Journal for Nurse Practitioners 19:5, pages 104585.
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Yun Yi, Yuanyuan Huang, Rui Jiang, Qiang Chen, Mingzhe Yang, Hehua Li, Yangdong Feng, Shixuan Feng, Sumiao Zhou, Lixin Zhang, Yuping Ning, Zezhi Li & Fengchun Wu. (2022) The percentage and clinical correlates of alexithymia in stable patients with schizophrenia. European Archives of Psychiatry and Clinical Neuroscience 273:3, pages 679-686.
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Ruth Dobson, Dylan R. Rice, Marie D’hooghe, Rachel Horne, Yvonne Learmonth, Farrah J. Mateen, Claudia H. Marck, Saúl Reyes, Mitzi Joi Williams, Gavin Giovannoni & Helen L. Ford. (2022) Social determinants of health in multiple sclerosis. Nature Reviews Neurology 18:12, pages 723-734.
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M Ashoori, M kachooei & E Vahidi. (2022) Investigating the Relationship between Self-Compassion with Psychological Well-Being in Patients with Multiple Sclerosis (MS): The Mediating Role of Social Loneliness. Journal of Health and Care 24:1, pages 52-63.
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Marina Carvalho Arruda Barreto, Larissa Fortunato Araújo & Shamyr Sulyvan de Castro. (2022) Relação de fatores pessoais e ambientais com a prevalência de deficiências físicas adquiridas no Brasil - estudo de base populacional. Ciência & Saúde Coletiva 27:4, pages 1435-1442.
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Haifen Liao, Ping Fan, Hengfang Ruan, Ni Gong, Wei Qiu, Yiheng Zhang, Xinxin Li, Huijuan Li & Meifen Zhang. (2022) Experiences of social isolation among patients with neuromyelitis optica spectrum disorder in China: A qualitative study. Multiple Sclerosis and Related Disorders 60, pages 103711.
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Maciej Wilski, Magdalena Koper, Jarosław Gabryelski, Waldemar Brola & Tomasz Tasiemski. (2022) Mental Health Status of People with Multiple Sclerosis during the COVID-19 Pandemic. Journal of Clinical Medicine 11:3, pages 576.
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Alanna Koopmans & Chelsea Pelletier. (2022) Physical Activity Experiences of People with Multiple Sclerosis during the COVID-19 Pandemic. Disabilities 2:1, pages 41-55.
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Patrícia de Morais Ferreira Brandão, Tayla Borges Lino, Renata Terra de Oliveira, Andrelisa Vendrami Parra, Paulo Henrique Muleta Andrade & Gustavo Christofoletti. (2022) Age, motor dysfunction and neuropsychiatric symptoms impact quality of life in multiple sclerosis. Revista Brasileira de Enfermagem 75:6.
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Holly Oliver-Hall, Elena Ratschen, Christopher R. Tench, Helen Brooks, Cris S. Constantinescu & Laura Edwards. (2021) Pet Ownership and Multiple Sclerosis during COVID-19. International Journal of Environmental Research and Public Health 18:23, pages 12683.
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Amy-Lee Sesel, Louise Sharpe, Heidi N Beadnall, Michael H Barnett, Marianna Szabo & Sharon L Naismith. (2021) Development of a Web-Based Mindfulness Program for People With Multiple Sclerosis: Qualitative Co-Design Study. Journal of Medical Internet Research 23:3, pages e19309.
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Mohammad Taghi Mohseni Takalu, Seyed Ali Hosseini, Hamid Reza Khankeh, Ebrahim Pishyareh, Hossein Ali Ebrahimi & Enayatollah Bakhshi. (2020) How primary caregivers of individuals with multiple sclerosis cope with social isolation: a grounded theory study in an Iranian context. International Journal of Therapy and Rehabilitation 27:6, pages 1-13.
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