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Disability and Rehabilitation Volume 42, 2020 - Issue 16
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Research Papers

Challenges and support service preferences of informal caregivers of people with systemic sclerosis: a cross-sectional survey

Danielle B. RiceLady Davis Institute, Jewish General Hospital, Montreal, QC, Canada; ;Department of Psychology, McGill University, Montreal, QC, Canada; View further author information
,
Mara Cañedo-AyalaLady Davis Institute, Jewish General Hospital, Montreal, QC, Canada; View further author information
,
Andrea Carboni-JiménezLady Davis Institute, Jewish General Hospital, Montreal, QC, Canada; View further author information
,
Marie-Eve CarrierLady Davis Institute, Jewish General Hospital, Montreal, QC, Canada; View further author information
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Julie CuminLady Davis Institute, Jewish General Hospital, Montreal, QC, Canada; View further author information
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Vanessa L. MalcarneDepartment of Psychology, San Diego State University, San Diego, CA, USA; ;San Diego Joint Doctoral Program in Clinical Psychology, San Diego State University/University of California, San Diego, CA, USA; View further author information
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Mariët HagedoornUniversity Medical Center Groningen, University of Groningen, Groningen, The Netherlands; View further author information
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Brett D. ThombsLady Davis Institute, Jewish General Hospital, Montreal, QC, Canada; ;Department of Psychology, McGill University, Montreal, QC, Canada; ;Department of Psychiatry, McGill University, Montreal, QC, Canada; ;Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada; ;Department of Medicine, McGill University, Montreal, QC, Canada; ;Department of Educational and Counselling Psychology, McGill University, Montreal, QC, CanadaCorrespondence[email protected]
View further author information
& Scleroderma Caregiver Advisory Team show all
Pages 2304-2310 | Received 11 Sep 2018, Accepted 05 Dec 2018, Published online: 29 Jan 2019

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Read on this site (1)

Ilaria Galetti, Sara di Nunzio, Laura Brogelli, Valentina Mirisola & Carla Garbagnati. (2021) How do systemic sclerosis manifestations influence patients’ lives? Results from a survey on patients and caregivers. Current Medical Research and Opinion 37:sup2, pages 5-15.
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Articles from other publishers (3)

Katherine L. Cardwell, Taylor A. Hume, Odessa J. McKenna, Lara A. Pilutti & Afolasade Fakolade. (2023) Symptom Management Among Multiple Sclerosis Care Partners in Canada. International Journal of MS Care 25:6, pages 281-287.
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Julie Mcmullan, Lynne Lohfeld & Amy Jayne McKnight. (2022) Needs of informal caregivers of people with a rare disease: a rapid review of the literature. BMJ Open 12:12, pages e063263.
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Özden GÜDÜK, Özlem GÜDÜK & Yaşar SERTBAŞ. (2020) Evde Sağlık Hizmetlerinde İnformal Bakım Verenlerin Bilgi ve Beceri Düzeyinin BelirlenmesiDetermination of the Level of Knowledge and Skill of Informal Caregivers in Home Health Care. Online Türk Sağlık Bilimleri Dergisi 5:4, pages 648-660.
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